Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

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All posts for November 2024

Do you sometimes get dizzy while sitting and you eyes get blurry for a few seconds?

Do you sometimes get dizzy while sitting and you eyes get blurry for a few secon...

flourtortillatacos

•4 months ago

2 Replies

Why the 3 month rule??

Hi, and apologies for duplication but I'm trying to find info on how the clearly inadequate 3 month interval for injections became established? After happily...

Hi, and apologies for duplication but I'm trying to find info on how the clearly...

Myoldcat

•4 months ago

72 Replies

Delicate matter!

As we know, B12 deficiency causes a number of symptoms, but has anyone suffered from a very itchy bottom, that’s not attributable to piles (Haemorrhoids) or...

As we know, B12 deficiency causes a number of symptoms, but has anyone suffered ...

Pa234aw

•4 months ago

7 Replies

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what is your reaction to alcohol?

Following reinjuring my back 5 days ago and being in a lot of pain, -not able to sleep- etc, I am desperate for just one good night. In the past ( before...

Following reinjuring my back 5 days ago and being in a lot of pain, -not able to...

totallyFrustrated

•4 months ago

25 Replies

Low B12 Absorption AND Low B12 Transport to Cells

Hi Guys I have been taking my DNA analyses further and getting some real insights into my body make up. Laymans explanation to give you a heads up: I have...

Hi Guys I have been taking my DNA analyses further and getting some real insigh...

Wwwdot

•4 months ago

38 Replies

Links to scientific papers, medical journals etc

Hi, I have an appointment next week with my doctor who has recently stopped my B12 injections. I was just wondering if anyone can provide links to scientific...

Hi, I have an appointment next week with my doctor who has recently stopped my B...

Dfthbhjj

•4 months ago

7 Replies

Advanced warning - site maintenance planned for Thurs 5 December - starting 11 am UK time

Apparently it should only take an hour but it may be less or it could be more Link to an article on what site maintenance means...

Apparently it should only take an hour but it may be less or it could be more L...

Gambit62

Administrator•4 months ago

1 Reply

Folate

I'm due routine bloods .The G.p has put B12 on the form. Luckily got it on paper. Obviously not having that as a waste of money and levels will be high ....

I'm due routine bloods .The G.p has put B12 on the form. Luckily got it on paper...

Nackapan

•4 months ago

9 Replies

Take a bow!

NHS is at least sometimes prescribing what is needed to SI subcutaneously. All who contributed to the understanding SI was violable in any way, be it sharing...

NHS is at least sometimes prescribing what is needed to SI subcutaneously. All...

WIZARD6787

•4 months ago

5 Replies

SI Approved By NHS

I've got the go ahead to give myself my B12 jabs at home. I had mine on Tuesday and mentioned that its difficult to get an appointment, the receptionists can...

I've got the go ahead to give myself my B12 jabs at home. I had mine on Tuesday ...

Sparklingsunshine

•4 months ago

38 Replies

Sublingual B12 V injections?

I saw GP yesterday as have loads of symptoms of b12 deficiency although with sub clinical blood results. (134) He advised continuing sublingual Vitb12 for 2...

I saw GP yesterday as have loads of symptoms of b12 deficiency although with sub...

Caradoc1a

•4 months ago

21 Replies

Thiamine

Can we absorb other B vitamins. ? think I might need vitamin B 1 I maybe need to inject it I already wrote a post but it hasn’t appeared so I think I must...

Can we absorb other B vitamins. ? think I might need vitamin B 1 I maybe need ...

Yingtong22

•4 months ago

17 Replies

blood results

just had my blood results back from GP. Blood haematinic levels Serum vitamin B12 level 389 ng/L [197.0 - 771.0] Serum folate level 3.5 ug/L [2.0 - 18.7]...

just had my blood results back from GP. Blood haematinic levels Serum vitamin...

Rustythedog

•4 months ago

3 Replies

Long Covid

I just listened to a radio programme about the effects of long covid. A women whose spinal cord was affected- now walks with crutches, intermittent bouts of...

I just listened to a radio programme about the effects of long covid. A women wh...

MorningMist

•4 months ago

14 Replies

High Blood sugar

Hello , does anyone know if B12 deficiency can affect HbA1c results mine was 45 ? I have been told I am within the pre diabetic range. My cholesterol is ok...

Hello , does anyone know if B12 deficiency can affect HbA1c results mine was 45 ...

JEM57

•4 months ago

7 Replies

what were you like at 6 1/2 months with emotions and nerve pain with outings

hello everyone, so I'm 6 1/2 months with injections daily and I'm so much better but for now I go out about at least 3 times a day to town for Morning Mass ,...

hello everyone, so I'm 6 1/2 months with injections daily and I'm so much bett...

JesusMercy60

•4 months ago

4 Replies

PROM Wiseguy

This post was created after reading Wiseguy's post "B12 PROM (Patient-Reported Outcome Measure)" I posted separately as although I find value in the...

This post was created after reading Wiseguy's post "B12 PROM (Patient-Reported O...

WIZARD6787

•4 months ago

Be the first to reply

Low reticulocytes after regular self-injecting

Hello All! Hope everyone is having a good day. I wonder if anyone could advise me - I'm rapidly losing all confidence in my GP - I took it upon myself to...

Hello All! Hope everyone is having a good day. I wonder if anyone could advis...

New144

•4 months ago

16 Replies

Anaemia

my mch and Mchc have been falling over the last 5months but just saying abnormal on my doctors notes my ferritin dropped but is 53 and said no action as it...

my mch and Mchc have been falling over the last 5months but just saying abnormal...

ninja1

•4 months ago

6 Replies

Neurofast Methycobalamin Injections 2,500 mcg

Anyone come across these?

GetTheJDIn

•4 months ago

3 Replies

Guidance on IF test

Hi there, I had an IF antibodies test years ago and was under the impression that as it was lower than the guideline amount, I do not have Pernicious Anaemia....

Hi there, I had an IF antibodies test years ago and was under the impression tha...

Squirrel_enthusiast

•4 months ago

9 Replies

How Often Do You Have B12 Injections?

Hello! I was diagnosed with B12 deficiency back in January after routine blood tests showed my B12 to be low, and I have been having the B12 injections at my...

Hello! I was diagnosed with B12 deficiency back in January after routine blood ...

Hidden

•4 months ago

41 Replies

So mad at doctors

Hi all,Here again with docs wanting to minimize my b12 jabs.For those that don't know, I was diagnosed with PA over 6 years ago. My b12 was bottomed out,...

Hi all,Here again with docs wanting to minimize my b12 jabs.For those that don't...

Wowo23

•4 months ago

13 Replies

B12 PROM (Patient-Reported Outcome Measure)

I came across a 2024 article describing the first stage in development of a B12 deficiency PROM (Patient-Reported Outcome Measure) which can be used to...

I came across a 2024 article describing the first stage in development of a B12 ...

WiscGuy

•4 months ago

11 Replies

Lack of Research on Vitamin B12 Deficiency Guidelines

I ran across a 2024 article that might be of interest to some members of this group. I quote the entire abstract, then provide a link to the article.......

I ran across a 2024 article that might be of interest to some members of this gr...

WiscGuy

•4 months ago

4 Replies

Gastroenterologists

Greetings all. I’m giving in and asking if anyone has any experience with a good gastroenterologist who will endeavour to discover the root cause of stomach...

Greetings all. I’m giving in and asking if anyone has any experience with a good...

pj16

•4 months ago

1 Reply

New to this and want some advice please, thanks

Over the past couple of weeks I realised that I probably have PA. I became hypothyroid in April 24 after RAI in January for hyperthyroid. Lots of neuro, motor,...

Over the past couple of weeks I realised that I probably have PA. I became hypot...

Caradoc1a

•4 months ago

10 Replies

Anyone have MCAS (Mast Cell Activation Syndrome) ?

I’ve been looking into this the last couple of days, and I think I may have this. I definitely have a histamine intolerance as it has reared its ugly head...

I’ve been looking into this the last couple of days, and I think I may have this...

Chickens44

•4 months ago

3 Replies

B12 not sure what to do.

Hi I live in Spain.I have a few autoimmune conditions. Lupus, Sjrogrens, vitiligo. On my last rheumatology appointment he mentioned a positive intrinsic factor...

Hi I live in Spain.I have a few autoimmune conditions. Lupus, Sjrogrens, vitilig...

Lookingfiranswers

•4 months ago

12 Replies

Removed from waiting list

Hi all, don't know what to do. I was diagnosed with gallstones in Jan 2020, and put on waiting list in 2021. Finally got to see consultant in Mar 2024. Was...

Hi all, don't know what to do. I was diagnosed with gallstones in Jan 2020, and...

LawsTra

•4 months ago

6 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(114)

All things Pernicious Anaemia Society(114)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2024

Do you sometimes get dizzy while sitting and you eyes get blurry for a few seconds?

Why the 3 month rule??

Delicate matter!

what is your reaction to alcohol?

Low B12 Absorption AND Low B12 Transport to Cells

Links to scientific papers, medical journals etc

Advanced warning - site maintenance planned for Thurs 5 December - starting 11 am UK time

Folate

Take a bow!

SI Approved By NHS

Sublingual B12 V injections?

Thiamine

blood results

Long Covid

High Blood sugar

what were you like at 6 1/2 months with emotions and nerve pain with outings

PROM Wiseguy

Low reticulocytes after regular self-injecting

Anaemia

Neurofast Methycobalamin Injections 2,500 mcg

Guidance on IF test

How Often Do You Have B12 Injections?

So mad at doctors

B12 PROM (Patient-Reported Outcome Measure)

Lack of Research on Vitamin B12 Deficiency Guidelines

Gastroenterologists

New to this and want some advice please, thanks

Anyone have MCAS (Mast Cell Activation Syndrome) ?

B12 not sure what to do.

Removed from waiting list

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive