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Pernicious Anaemia Society

31,893 members • 23,028 posts

All posts for April 2017

iron levels

what will happen if my iron levels don't improve?

ellafidler16

•7 years ago

9 Replies

Thanks to everyone!

Sixteen months ago I was diagnosed with B12 deficiency after I asked the GP for a test, having read the PA symptoms and realised that I had many of them. I...

Sixteen months ago I was diagnosed with B12 deficiency after I asked the GP for ...

henaddict

•7 years ago

2 Replies

insurance denying B12 in 2017

I have been taking prescription Nascobal (B12) spray for PA for several years. My insurance, AV Med, is now denying this medication and ANY vitamin replacement...

I have been taking prescription Nascobal (B12) spray for PA for several years. M...

hmstgirl

•7 years ago

17 Replies

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Results help

Please can somebody help with these results. B12 253 (170-730) Ferritin 46 (10-290) Feeling really tired right now.

Please can somebody help with these results. B12 253 (170-730) Ferritin 46 (10-2...

emmylou71

•7 years ago

6 Replies

Palpitations

Just wondering if anyone else gets these palpitations? I thought they would go after iron tablets and B12 injections but they seem to have got worse! They...

Just wondering if anyone else gets these palpitations? I thought they would go a...

greenbexy

•7 years ago

23 Replies

What tests should I ask for

I was diagnosed with PA and low D in November 2016. I have been doing SI of cyano daily along with cofactors. Also follow protocol for Vit D deficiency. I...

I was diagnosed with PA and low D in November 2016. I have been doing SI of cyan...

Nancyj345

•7 years ago

2 Replies

Dr's opinions on b12 published in BmJ

Twould seem that some doctors do get it http://www.bmj.com/content/349/bmj.g5226/rapid-responses

Twould seem that some doctors do get it http://www.bmj.com/content/349/bmj.g522...

Steap

•7 years ago

33 Replies

Advice on B12d/PA testing.

Hi, Please can someone give me some advice. I have posted a few times previously and got some great advice. At the moment I have iron deficiency anaemia...

Hi, Please can someone give me some advice. I have posted a few times previousl...

Cn13

•7 years ago

2 Replies

B12 injections

Hi all. Last April I was feeling very poorly after the loss of my grandad and I had bloods done which showed I had low b12 188 (200 lowest) and low vit d. My...

Hi all. Last April I was feeling very poorly after the loss of my grandad and I...

Button11

•7 years ago

16 Replies

B12 Defiency

hi guys, i just need some advice. For the past couple of months i have had dizziness, memory loss, pins and needles, unblance, headaches, feeling full...

hi guys, i just need some advice. For the past couple of months i have had dizzi...

shriti83

•7 years ago

12 Replies

What is the TREATMENT for PA? Not just B12 but what type b12 and how often?

Hello all and thank you in advance for your thoughts and comments. I was diagnosed with PA 3 months ago. So CONFUSED on what the treatment should be. Is there...

Hello all and thank you in advance for your thoughts and comments. I was diagnos...

Cwilli

•7 years ago

27 Replies

Lasik/PRK

Has anyone with pernicious anemia had an experience with Lasik/PRK?

ratch

•7 years ago

4 Replies

Intermittent pins and needles in toes and sometimes fingers

For the past few months I have been getting pins and needles and sometimes numbness in my toes. I don't have it all the time and seems worse when I am walking...

For the past few months I have been getting pins and needles and sometimes numbn...

carer999

•7 years ago

6 Replies

Anemia caused by Thalassemia

Hello, I am new here and wanted to see if anyone could offer any help. I have always been anemic due to a Mediterranean blood disease I have, beta Thalassemia...

Hello, I am new here and wanted to see if anyone could offer any help. I have al...

Alexa422

•7 years ago

8 Replies

Hi.. Everyone

Hi.. I've been anemic since ages.. I tried to take my tablets but they weren't suitable (gave me strong cramps and pain) and then I thought if I eat well I...

Hi.. I've been anemic since ages.. I tried to take my tablets but they weren't s...

madee

•7 years ago

13 Replies

Advice please

Hi I've not posted before on this site although I've 'lurked'for a while. I am 60 yrs old. In 1991, 26 yrs ago , I had a right hemi colectomy which included...

Hi I've not posted before on this site although I've 'lurked'for a while. I am 6...

Ccupcakes

•7 years ago

12 Replies

PA genetics

i have over 30 relatives on both sides of my family with PA. I had a Uncle die because his Doctors said his anemia wasn't that bad.. despite them knowing about...

i have over 30 relatives on both sides of my family with PA. I had a Uncle die b...

txttuff

•7 years ago

2 Replies

Are you able to work?

Hi everyone I hope this doesn't seem nosey - I'm curious how many sufferers manage to hold down a job? I work full-time just now but every day is a struggle...

Hi everyone I hope this doesn't seem nosey - I'm curious how many sufferers mana...

Sharon75

•7 years ago

33 Replies

Help for my son, please.

One of the forum members on the gluten free gorillas site suggested that I approach you to ask for some info on my son's blood test results. He is 20 years old...

One of the forum members on the gluten free gorillas site suggested that I appro...

knitwitty

•7 years ago

9 Replies

PA and Diarrhea

HI i'm a 50 year old male who was diagnosed with Pernicious Anaemia 15 years ago. I have regular 12 weekly b12 jabs at the local gp. I was wondering if anyone...

HI i'm a 50 year old male who was diagnosed with Pernicious Anaemia 15 years ago...

gafferg66

•7 years ago

10 Replies

Serum albumin

Hello everybody, can anybody help with this reading on my blood test please? Normal range (34-51). My reading was 54? Is there any need to be concerned? As...

Hello everybody, can anybody help with this reading on my blood test please? No...

Lizreds1

•7 years ago

5 Replies

Same cross roads as many

Hello everyone. Been a reader of the great forum here for a while but never posted. I am now at a cross roads like many of you. Im a 35 year old male (UK)...

Hello everyone. Been a reader of the great forum here for a while but never post...

kristianjones

•7 years ago

14 Replies

Confused by blood results

I've had results back from recent bloods, all is now well after nearly everything out of kilt! The things that are confusing me is that monocytes are below and...

I've had results back from recent bloods, all is now well after nearly everythin...

greenbexy

•7 years ago

2 Replies

How much folate or folic acid do you use daily alongside with B12 treatment?

That's it really - I'd like to hear from as many of you as possible. I've started to take 1000 mcg methylfolate daily since starting on SI journey on this...

That's it really - I'd like to hear from as many of you as possible. I've starte...

SlimCat

•7 years ago

15 Replies

Osteoporosis of the spine- but also good news!

My lambkicking days appear to be over, Hidden ...... have got osteoporosis of the spine now ! If anyone can let me know if there's anything I should or...

My lambkicking days appear to be over, Hidden ...... have got osteoporosis of th...

Cherylclaire

Forum Support•7 years ago

16 Replies

Advice needed on alternative to PPI`s to treat a diagnosis of Chronic Gastric Atrophy

Hi all, Looks like finally getting to bottom of my problems. Just been diagnosed by Gastroscopy as having H.Pylori and Chronic Gastric Atrophy, after being...

Hi all, Looks like finally getting to bottom of my problems. Just been diagnosed...

Barry1955

•7 years ago

8 Replies

B12 getting better

Hi Guys, After loading doses and than weekly doses and now fortnightly, than monthly. I can say I am feeling really good, I have to much Iron in my system. I...

Hi Guys, After loading doses and than weekly doses and now fortnightly, than mo...

Hidden

•7 years ago

2 Replies

Is there a magic dictionary for abbreviations?

I know this sounds stupid but having just started out on the long road to enlightenment, I feel I have to learn a new language! Could any of you point me in...

I know this sounds stupid but having just started out on the long road to enligh...

Doubleblank

•7 years ago

9 Replies

SI Newbie here, question on ampoules - how to get all medicine out?

Hi there, and many thanks for this wonderful forum. I started my SI journey on Monday - and actually wrote a post about the confusion of 0.5ml liquid vs the 1...

Hi there, and many thanks for this wonderful forum. I started my SI journey on M...

SlimCat

•7 years ago

7 Replies

should I go private?

Hi all, I'm back, no progress with GP :( now wondering to get myself referred privately to a hematologist. Brief history, had to take iron (ferrous sulphate)...

Hi all, I'm back, no progress with GP :( now wondering to get myself referred p...

catalonia13

•7 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2017

iron levels

Thanks to everyone!

insurance denying B12 in 2017

Results help

Palpitations

What tests should I ask for

Dr's opinions on b12 published in BmJ

Advice on B12d/PA testing.

B12 injections

B12 Defiency

What is the TREATMENT for PA? Not just B12 but what type b12 and how often?

Lasik/PRK

Intermittent pins and needles in toes and sometimes fingers

Anemia caused by Thalassemia

Hi.. Everyone

Advice please

PA genetics

Are you able to work?

Help for my son, please.

PA and Diarrhea

Serum albumin

Same cross roads as many

Confused by blood results

How much folate or folic acid do you use daily alongside with B12 treatment?

Osteoporosis of the spine- but also good news!

Advice needed on alternative to PPI`s to treat a diagnosis of Chronic Gastric Atrophy

B12 getting better

Is there a magic dictionary for abbreviations?

SI Newbie here, question on ampoules - how to get all medicine out?

should I go private?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive