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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2018

I got my first injection today!!!!!

I had made an appointment with my PC Dr 2 weeks ago after reading your responses to my questions. While there today I told her that I didn't think the oral...

I had made an appointment with my PC Dr 2 weeks ago after reading your responses...

Whatdayisit

•5 years ago

7 Replies

Iron level

Some help please ,I am a female in my 30s i have Thalassemia trait which means i am a carrier. I Visited GP for result of blood test below And two different GP...

Some help please ,I am a female in my 30s i have Thalassemia trait which means i...

Advice1

•5 years ago

8 Replies

Low B12 level.

Hi My son in law has been really depressed and anxious for a few months now. He has palpitations and is sweating, is irritable, and very self conscious,...

Hi My son in law has been really depressed and anxious for a few months now. ...

lucylocks

•5 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Better picture I hope

Hope this picture is better

Mummy365

•5 years ago

3 Replies

Can anyone understand these reading numbers.

I finally got the results from first test, was hoping someone on here would understand it more than me. If anyone can help I would be truly grateful. Tia x

I finally got the results from first test, was hoping someone on here would unde...

Mummy365

•5 years ago

1 Reply

Solgar megasorb

Anyone take these at all . Trying to get a good mix of b vitamins along with my injections folic acid iron and vit d I already take

Anyone take these at all . Trying to get a good mix of b vitamins along with my ...

Andypandy30

•5 years ago

6 Replies

Severe symptoms months after taking methyl b12

ew months ago, I woke up feeling like I was drugged. I was extremely dissociated, felt like I was on the verge of passing out, rapid heart rate, rapid...

ew months ago, I woke up feeling like I was drugged. I was extremely dissociated...

Hidden

•5 years ago

11 Replies

B12 active test for P.A?

Hi, I’ve previously had a B12 serum test (suspected b12 deficiency) from my gp which has come back normal. P.A runs in my family and I’m very symptomatic. I’m...

Hi, I’ve previously had a B12 serum test (suspected b12 deficiency) from my gp w...

Thyroid1892

•5 years ago

13 Replies

New symptoms following injections

Hi, I had b12 level of 319 but am symptomatic of PA and had deficiency in pregnancy as well as family history so my GP agreed to give me a loading dose of six...

Hi, I had b12 level of 319 but am symptomatic of PA and had deficiency in pregna...

Numbsew

•5 years ago

7 Replies

New Scientist: The truth about supplements

Interesting article about supplements in this week's New Scientist -...

fbirder

•5 years ago

4 Replies

Help re B12 and folate treatment please...

i am here supporting my daughter who has been struggling with low B12 and folate for about 18 months. She was, before diagnosis, very poorly and ended up in...

i am here supporting my daughter who has been struggling with low B12 and folate...

hhelen

•5 years ago

11 Replies

Can I take vitamins instead of injections for not absorbing vitamins orally. Is there one strong enough to work? My level is 100 very low.

Any suggestions for absorbing b12 without injections.

Yuillepamela

•5 years ago

10 Replies

so tired. now looking at buying my own b12

hi i live in the uk. I was only diagnosed with b12 deficiency in February. I had a blood test to extreme fatigue and got a phone call with no explanation...

hi i live in the uk. I was only diagnosed with b12 deficiency in February. I ha...

Hidden

•5 years ago

14 Replies

Tinnitus

I have been SI for over a year now, at first approx once a week but in April I stepped up to every other day as I had debilitating sciatica (still waiting for...

I have been SI for over a year now, at first approx once a week but in April I ...

annmarierodnes

•5 years ago

14 Replies

B12/MTHFR

my wife is poorly having all symptoms of B12 deficiency. Unfortunately GP is not helpful, she seems oblivious to this problem, that's very worrying. I provided...

my wife is poorly having all symptoms of B12 deficiency. Unfortunately GP is not...

45hillbilly

•5 years ago

34 Replies

I added my photo

I don't know if everyone does this or not. I was asked if I live in the UK. No is the answer to that question. I live in the US, in Nebraska.

I don't know if everyone does this or not. I was asked if I live in the UK. No i...

Whatdayisit

•5 years ago

7 Replies

Confused with my Intrinsic Factor Antibody test results

Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor antibodies were normal. So I was relieved. But reading into the results, I am...

Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor a...

emvj

•5 years ago

4 Replies

Help!!

4 months ago I started developing pins and needles sensation all over my body. Had bloods taken and my b12 level was 84. I then had 5 injections within 2 weeks...

4 months ago I started developing pins and needles sensation all over my body. H...

Jessie8

•5 years ago

22 Replies

Vitamin B12 "normal" Folate low

Vitamin B12 is 365 (normal range 181-910), but my Serum Folate is 5.1 (should be >5.4). My Serum Ferratin was 28ug( (normal 10-291). What does this mean...

Vitamin B12 is 365 (normal range 181-910), but my Serum Folate is 5.1 (should be...

clarabelle17

•5 years ago

12 Replies

No replies😧

Posted earlier today. Does that mean no one has crashed like this post loading doses of B12?? Had one trip downstairs . Body like lead then managed to get back...

Posted earlier today. Does that mean no one has crashed like this post loading d...

Nackapan

•5 years ago

15 Replies

Taking Vitamin D with oil capsules

The advice is to take vitaimin D with the fattiest meal of the day. If take I vitamin D with evening primrose oil capsule or any other oil capsule will that...

The advice is to take vitaimin D with the fattiest meal of the day. If take I vi...

carer999

•5 years ago

1 Reply

Advice needed please

Hi, my husband recently had his B12 levels checked after a routine blood test came back with a value of 9 ug/L serum ferritin levels. Is this low? His b12...

Hi, my husband recently had his B12 levels checked after a routine blood test ca...

Tweddelly

•5 years ago

5 Replies

Advise

Hi as from my previous posts . I had my doctor telling me I should stop injections as b12 was high at 2000 . I wanted to ask if one could feel very down and...

Hi as from my previous posts . I had my doctor telling me I should stop injectio...

Andypandy30

•5 years ago

6 Replies

Reassurance needed please

I'm in a different gear now . Not what I was expecting. Had first lot of Nhs loading doses of vit B . Finished 1o days ago. Initially I got worse , housebound...

I'm in a different gear now . Not what I was expecting. Had first lot of Nhs loa...

Nackapan

•5 years ago

3 Replies

Here I Go Again- Gastrin Levels

Here I Go Again! Went to my GI Dr and he is concerned about my Gastrin level. Fasting gastrin serum 301 (>=100). I mentioned to him that with PA you usually...

Here I Go Again! Went to my GI Dr and he is concerned about my Gastrin level. F...

runnergirl24

•5 years ago

4 Replies

Anyone Use Prescription Deplin (or Cerefolin) for Folic Acid?

Wondering if anyone here with PA uses prescription Deplin (or Cerefolin) for Folic Acid? Anyone have thoughts on using this? Thanks much.

Wondering if anyone here with PA uses prescription Deplin (or Cerefolin) for Fol...

LadyBanfaith

•5 years ago

3 Replies

EBV

Havent been on here in a while and havent been feeling good. Just recently found out that I have chronic Epstein Barr Virus. This could he causing the low wbc,...

Havent been on here in a while and havent been feeling good. Just recently found...

JennaShi

•5 years ago

13 Replies

Better late than never

At last a response from David Lidington after our request that he attend a function held by Martyn Hooper this month. Dear Mr P, Thank you for contacting me...

At last a response from David Lidington after our request that he attend a funct...

clivealive

Forum Support•5 years ago

13 Replies

Exocrine Pancreatic Insufficiency

I have PA. Like many of you I have been struggling with digestive problems. I take Betaine HCl and a digestive enzyme with each meal. I developed pain right...

I have PA. Like many of you I have been struggling with digestive problems. I ta...

Hidden

•5 years ago

22 Replies

Do the oral B12 sprays definitely work for patients with positive anti-body for intrinsic factor?

Hi All Super quick question to see if anyone has been using the B12 oral spray's and its resulted in absorption and health/symptom benefits? I am definitely...

Hi All Super quick question to see if anyone has been using the B12 oral spray's...

Katyluisa

•5 years ago

25 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2018

I got my first injection today!!!!!

Iron level

Low B12 level.

Better picture I hope

Can anyone understand these reading numbers.

Solgar megasorb

Severe symptoms months after taking methyl b12

B12 active test for P.A?

New symptoms following injections

New Scientist: The truth about supplements

Help re B12 and folate treatment please...

Can I take vitamins instead of injections for not absorbing vitamins orally. Is there one strong enough to work? My level is 100 very low.

so tired. now looking at buying my own b12

Tinnitus

B12/MTHFR

I added my photo

Confused with my Intrinsic Factor Antibody test results

Help!!

Vitamin B12 "normal" Folate low

No replies😧

Taking Vitamin D with oil capsules

Advice needed please

Advise

Reassurance needed please

Here I Go Again- Gastrin Levels

Anyone Use Prescription Deplin (or Cerefolin) for Folic Acid?

EBV

Better late than never

Exocrine Pancreatic Insufficiency

Do the oral B12 sprays definitely work for patients with positive anti-body for intrinsic factor?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive