Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,966 members • 23,102 posts

All posts for April 2024

dry eyes and mouth?

hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been...

hi again all! I am very depleted in ferritin and am awaiting an infusion. I als...

Lhood08

•9 hours ago

3 Replies

Bad batch of B12

Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every...

Hi I'm just adding to the posts about bad batches of B12 - there's been a cou...

LizWilsonpa

•13 hours ago

4 Replies

Problem with NHS policy - again!

Off on holiday soon. At my last injection appointment I told the practice nurse that my next scheduled jab would be 4 days into my holiday and there was no way...

Off on holiday soon. At my last injection appointment I told the practice nurse ...

Barneyboy48

•15 hours ago

5 Replies

Want to take advantage of all our features? Just log in!

GP must have B12 deficiency too.

So here's the thing there must be GPs or medical professionals who are B12 deficient so it begs the question. How do they feel about how they are treated?...

So here's the thing there must be GPs or medical professionals who are B12 defic...

Beckburybelle

•24 hours ago

15 Replies

Hevert ampoules

hi all. Sorry never posted here before so sorry if I post the wrong thing! move used Rotexmedica hydroxy 1ml for years but can’t get any now. Please can...

hi all. Sorry never posted here before so sorry if I post the wrong thing! move...

Katys1981zzz

•2 days ago

21 Replies

You most effective gut bacteria/pro or prebiotic supps

Prynhawn da my friends🫶 Just got recommended to take some kind of cultures as a way to help heal whatever weirdness is going on with my gut absorption.......

Prynhawn da my friends🫶 Just got recommended to take some kind of cultures as ...

a-wonderful-seed

•2 days ago

15 Replies

high b12 high mch and mcv

Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 -...

Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 ...

nyx19

•2 days ago

12 Replies

vitamin D and magnesium deficiency from B12 loading doses

good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've...

good day, I'm on my sixth month of loading methy B12 and learning so much on wi...

JesusMercy60

•3 days ago

5 Replies

how quickly did you regress after B12 loading?

I finished my initial B12 loading almost exactly one month ago and initially felt enormously better. However, during the last week I have started to feel like...

I finished my initial B12 loading almost exactly one month ago and initially fel...

TheLabSquad

•3 days ago

31 Replies

Does anyone else experience this? pain of the deltoid and trapezius muscles, possibly due to IM b12 both by PCP (monthly) and SI (EOD)

hi there I’m trying to figure out if the IM b12 injections are starting to cause this pain I feel on both sides of my body … areas as specified above. I...

hi there I’m trying to figure out if the IM b12 injections are starting to cau...

Schpsych2414

•3 days ago

5 Replies

Benfotiamine B1 5 Day Trial

I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not...

I decided to do a trial of Berfotiamine after reading randomized trials for peri...

WIZARD6787

•3 days ago

6 Replies

Misdiagnosis? Fibromyalgia or PA?

I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been...

I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it wa...

Chickens44

•3 days ago

21 Replies

More B12 when ill ?

Hi everyone. Strange question. I’m injecting weekly. But just caught the kids flu. Is the advice to inject more frequently when unwell ?

Hi everyone. Strange question. I’m injecting weekly. But just caught the kids fl...

PAapr22

•4 days ago

6 Replies

Hydroxo-B12 in the US?

Is it possible to source shelf-stable hydroxocobalamin in the United States? I self-inject EOD with methyl-B12, but it needs to be refrigerated and is a...

Is it possible to source shelf-stable hydroxocobalamin in the United States? I ...

canyongirl

•4 days ago

6 Replies

6 months later

Inspired by a post by Wwwdot "One Year Later" I decided to walk the same 5K route that I had walked 6 months ago. I 'knew' my self treatment was successful....

Inspired by a post by Wwwdot "One Year Later" I decided to walk the same 5K rou...

WIZARD6787

•4 days ago

4 Replies

methylfolate side effects?

Has anybody had side effects or adverse reactions to taking methylfolate? And if so, what kinds of effects? I’m been experiencing a number of symptoms, for...

Has anybody had side effects or adverse reactions to taking methylfolate? And if...

MartynLewis

•4 days ago

6 Replies

Type 2 diabetes

Is there any link between PA, Hypothyroidism and type 2 diabetes?

doityourself

•4 days ago

24 Replies

Haematologist’s unsupportive B12 response

In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m...

In a recent pathology test, my gastroenterologist was concerned with my low haem...

GoneWithTheWind1972

•4 days ago

28 Replies

Another cause of Pernicious Anaemia?

We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the...

We know that certain gastric operations cause Pernicious Anaemia and therefore l...

wedgewood

•4 days ago

4 Replies

Red, hot ears

I've had an odd symptom that I don't see discussed very much in the B12 deficiency community. There are times when I get very hot ears -- they read 100° F...

I've had an odd symptom that I don't see discussed very much in the B12 deficien...

chonkytonk

•5 days ago

5 Replies

b12 keeps dropping ferritin

Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after...

Hi Friends, Has anyone had success raising and maintaining ferritin after it dr...

MuppDog

•5 days ago

13 Replies

Distorted Facts?

I was talking to a doctor friend of mine today who recently retired. He’s a wonderfully patient and caring guy and I value his knowledge. BUT today (he’s a...

I was talking to a doctor friend of mine today who recently retired. He’s a wond...

B12again

•5 days ago

9 Replies

New PAS support groups - New York and Sweden

Hi, I noticed recently that the list of PAS support groups had been updated. https://pernicious-anaemia-society.org/member-support-groups/ There are PAS...

Hi, I noticed recently that the list of PAS support groups had been updated. h...

Sleepybunny

•5 days ago

Be the first to reply

B12 supplied at GP Surgery

Hello, for the last 6 months or so my GP has been supplying the B12 vials for injecting at the surgery. Previously I picked up a script and got the vials...

Hello, for the last 6 months or so my GP has been supplying the B12 vials for in...

Meggymoo63

•5 days ago

8 Replies

Suspected Pa , symptoms question

Hi , A family member has had issues with stomach pain, bowel cramps , mild diarrhoea for over 3 years on and off. Has had times when he was fine then goes...

Hi , A family member has had issues with stomach pain, bowel cramps , mild dia...

WeeB

•5 days ago

15 Replies

Versandapo B12 Panpharma now in stock !

Wed 24 April 2024 I’ve been waiting for Panpharma to be back in stock since Dec 2023. I just received an email that they are in stock. I thought I’ll check...

Wed 24 April 2024 I’ve been waiting for Panpharma to be back in stock since Dec...

Ryaan

•5 days ago

2 Replies

Damaging Artificial sweeteners

Many of us who suffer from B12D/PA already suffer from gut issues. Consuming any artificial sweeteners is likely to make this even...

Many of us who suffer from B12D/PA already suffer from gut issues. Consuming a...

Budsa

•6 days ago

2 Replies

Really lost - doctor advised me to stop injecting and now B12 keeps going down

Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was...

Hi everyone, First, I want to say how much this group has been a help and sourc...

marlesk

•6 days ago

19 Replies

needle size

The needle My husband injects me with b12 is 23G x 1 1/4” Is this the right size as painful injecting plus when the liquid goes in.

The needle My husband injects me with b12 is 23G x 1 1/4” Is this the right size...

Rayburn

•6 days ago

9 Replies

B12 is a cofactor to the energy I get from the sun.

This is from 68 years of experience and observation 3 of them under supplementing B12. It is assumed that diet is the reason that those in the mediterranean...

This is from 68 years of experience and observation 3 of them under supplementin...

WIZARD6787

•6 days ago

2 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2024

dry eyes and mouth?

Bad batch of B12

Problem with NHS policy - again!

GP must have B12 deficiency too.

Hevert ampoules

You most effective gut bacteria/pro or prebiotic supps

high b12 high mch and mcv

vitamin D and magnesium deficiency from B12 loading doses

how quickly did you regress after B12 loading?

Does anyone else experience this? pain of the deltoid and trapezius muscles, possibly due to IM b12 both by PCP (monthly) and SI (EOD)

Benfotiamine B1 5 Day Trial

Misdiagnosis? Fibromyalgia or PA?

More B12 when ill ?

Hydroxo-B12 in the US?

6 months later

methylfolate side effects?

Type 2 diabetes

Haematologist’s unsupportive B12 response

Another cause of Pernicious Anaemia?

Red, hot ears

b12 keeps dropping ferritin

Distorted Facts?

New PAS support groups - New York and Sweden

B12 supplied at GP Surgery

Suspected Pa , symptoms question

Versandapo B12 Panpharma now in stock !

Damaging Artificial sweeteners

Really lost - doctor advised me to stop injecting and now B12 keeps going down

needle size

B12 is a cofactor to the energy I get from the sun.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive