Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2024

Methyl or Hydro B12 injections - is it safe to switch between both each month?

Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the...

Is it safe to switch between different types of B12 injections? For example, one...

LaraPA

•3 months ago

6 Replies

Work on healing balance

My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance...

My balance is no longer a major issue. I am working on improving it. I do work o...

WIZARD6787

•3 months ago

1 Reply

Folate and B12 levels recent blood test results

Hi everyone, I'd be most grateful for your thoughts on blood test results received yesterday, The background to my query: I have PA, diagnosed 18 months...

Hi everyone, I'd be most grateful for your thoughts on blood test results rece...

skylark25

•3 months ago

9 Replies

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Please sign petition's if and when you can to bring change to mandatory training on identifying a B12 deficiency.

We read many stories on this forum of wrong diagnosis or simply being brushed aside. We fight lengthy battles to try and get adequate treatment for our...

We read many stories on this forum of wrong diagnosis or simply being brushed as...

Jillymo

•3 months ago

4 Replies

Cyancobalamin versus hydroxocobalamin

I have accidentally purchased ampoules of cyanobalamin instead of hydroxybalamin.Am I able to use this instead as at the moment can’t find a site with...

I have accidentally purchased ampoules of cyanobalamin instead of hydroxybalami...

Io1000

•3 months ago

21 Replies

How long will this last for?

Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain...

Long story short, I’ve been feeling very tired for months (even years) to the po...

Peacelily24

•3 months ago

12 Replies

dry eyes and mouth?

hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been...

hi again all! I am very depleted in ferritin and am awaiting an infusion. I als...

Lhood08

•3 months ago

7 Replies

Bad batch of B12

Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every...

Hi I'm just adding to the posts about bad batches of B12 - there's been a cou...

LizWilsonpa

•3 months ago

21 Replies

Problem with NHS policy - again!

Off on holiday soon. At my last injection appointment I told the practice nurse that my next scheduled jab would be 4 days into my holiday and there was no way...

Off on holiday soon. At my last injection appointment I told the practice nurse ...

Barneyboy48

•3 months ago

13 Replies

GP must have B12 deficiency too.

So here's the thing there must be GPs or medical professionals who are B12 deficient so it begs the question. How do they feel about how they are treated?...

So here's the thing there must be GPs or medical professionals who are B12 defic...

Beckburybelle

•3 months ago

38 Replies

Hevert ampoules

hi all. Sorry never posted here before so sorry if I post the wrong thing! move used Rotexmedica hydroxy 1ml for years but can’t get any now. Please can...

hi all. Sorry never posted here before so sorry if I post the wrong thing! move...

Katys1981zzz

•3 months ago

21 Replies

You most effective gut bacteria/pro or prebiotic supps

Prynhawn da my friends🫶 Just got recommended to take some kind of cultures as a way to help heal whatever weirdness is going on with my gut absorption.......

Prynhawn da my friends🫶 Just got recommended to take some kind of cultures as ...

a-wonderful-seed

•3 months ago

18 Replies

high b12 high mch and mcv

Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 -...

Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 ...

nyx19

•3 months ago

21 Replies

vitamin D and magnesium deficiency from B12 loading doses

good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've...

good day, I'm on my sixth month of loading methy B12 and learning so much on wi...

JesusMercy60

•3 months ago

7 Replies

how quickly did you regress after B12 loading?

I finished my initial B12 loading almost exactly one month ago and initially felt enormously better. However, during the last week I have started to feel like...

I finished my initial B12 loading almost exactly one month ago and initially fel...

TheLabSquad

•3 months ago

31 Replies

Does anyone else experience this? pain of the deltoid and trapezius muscles, possibly due to IM b12 both by PCP (monthly) and SI (EOD)

hi there I’m trying to figure out if the IM b12 injections are starting to cause this pain I feel on both sides of my body … areas as specified above. I...

hi there I’m trying to figure out if the IM b12 injections are starting to cau...

Schpsych2414

•3 months ago

5 Replies

Benfotiamine B1 5 Day Trial

I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not...

I decided to do a trial of Berfotiamine after reading randomized trials for peri...

WIZARD6787

•3 months ago

12 Replies

Misdiagnosis? Fibromyalgia or PA?

I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been...

I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it wa...

Chickens44

•3 months ago

22 Replies

More B12 when ill ?

Hi everyone. Strange question. I’m injecting weekly. But just caught the kids flu. Is the advice to inject more frequently when unwell ?

Hi everyone. Strange question. I’m injecting weekly. But just caught the kids fl...

PAapr22

•3 months ago

6 Replies

Hydroxo-B12 in the US?

Is it possible to source shelf-stable hydroxocobalamin in the United States? I self-inject EOD with methyl-B12, but it needs to be refrigerated and is a...

Is it possible to source shelf-stable hydroxocobalamin in the United States? I ...

canyongirl

•3 months ago

12 Replies

6 months later

Inspired by a post by Wwwdot "One Year Later" I decided to walk the same 5K route that I had walked 6 months ago. I 'knew' my self treatment was successful....

Inspired by a post by Wwwdot "One Year Later" I decided to walk the same 5K rou...

WIZARD6787

•3 months ago

6 Replies

methylfolate side effects?

Has anybody had side effects or adverse reactions to taking methylfolate? And if so, what kinds of effects? I’m been experiencing a number of symptoms, for...

Has anybody had side effects or adverse reactions to taking methylfolate? And if...

MartynLewis

•3 months ago

6 Replies

Type 2 diabetes

Is there any link between PA, Hypothyroidism and type 2 diabetes?

doityourself

•3 months ago

27 Replies

Haematologist’s unsupportive B12 response

In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m...

In a recent pathology test, my gastroenterologist was concerned with my low haem...

GoneWithTheWind1972

•3 months ago

28 Replies

Another cause of Pernicious Anaemia?

We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the...

We know that certain gastric operations cause Pernicious Anaemia and therefore l...

wedgewood

•3 months ago

8 Replies

Red, hot ears

I've had an odd symptom that I don't see discussed very much in the B12 deficiency community. There are times when I get very hot ears -- they read 100° F...

I've had an odd symptom that I don't see discussed very much in the B12 deficien...

chonkytonk

•3 months ago

5 Replies

b12 keeps dropping ferritin

Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after...

Hi Friends, Has anyone had success raising and maintaining ferritin after it dr...

MuppDog

•3 months ago

14 Replies

Distorted Facts?

I was talking to a doctor friend of mine today who recently retired. He’s a wonderfully patient and caring guy and I value his knowledge. BUT today (he’s a...

I was talking to a doctor friend of mine today who recently retired. He’s a wond...

B12again

•3 months ago

9 Replies

New PAS support groups - New York and Sweden

Hi, I noticed recently that the list of PAS support groups had been updated. https://pernicious-anaemia-society.org/member-support-groups/ There are PAS...

Hi, I noticed recently that the list of PAS support groups had been updated. h...

Sleepybunny

•3 months ago

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B12 supplied at GP Surgery

Hello, for the last 6 months or so my GP has been supplying the B12 vials for injecting at the surgery. Previously I picked up a script and got the vials...

Hello, for the last 6 months or so my GP has been supplying the B12 vials for in...

Meggymoo63

•3 months ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2024

Methyl or Hydro B12 injections - is it safe to switch between both each month?

Work on healing balance

Folate and B12 levels recent blood test results

Please sign petition's if and when you can to bring change to mandatory training on identifying a B12 deficiency.

Cyancobalamin versus hydroxocobalamin

How long will this last for?

dry eyes and mouth?

Bad batch of B12

Problem with NHS policy - again!

GP must have B12 deficiency too.

Hevert ampoules

You most effective gut bacteria/pro or prebiotic supps

high b12 high mch and mcv

vitamin D and magnesium deficiency from B12 loading doses

how quickly did you regress after B12 loading?

Does anyone else experience this? pain of the deltoid and trapezius muscles, possibly due to IM b12 both by PCP (monthly) and SI (EOD)

Benfotiamine B1 5 Day Trial

Misdiagnosis? Fibromyalgia or PA?

More B12 when ill ?

Hydroxo-B12 in the US?

6 months later

methylfolate side effects?

Type 2 diabetes

Haematologist’s unsupportive B12 response

Another cause of Pernicious Anaemia?

Red, hot ears

b12 keeps dropping ferritin

Distorted Facts?

New PAS support groups - New York and Sweden

B12 supplied at GP Surgery

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