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Pernicious Anaemia Society

31,918 members • 23,047 posts

All posts for May 2017

Self Injecting

I have taken the decision to self inject Hydroxocobalamin. Can someone give me some links for all the things i will need. It feels good to be taking control of...

I have taken the decision to self inject Hydroxocobalamin. Can someone give me s...

•7 years ago

Update! Seen my GP again. B12 272 folate 8.8

Good morning, More advise please? (Please see my last post for full history) Saw my GP this morning and took Mum with me for support, which was needed and...

Good morning, More advise please? (Please see my last post for full history) Saw...

•7 years ago

Are mouth ulcers are symptom of b12 and folic acid deficiency?

Hi I was diagnosed with b12 deficiency in August my levels were 143. I've been getting injections. I also have folate deficiency. I'm really struggling at...

Hi I was diagnosed with b12 deficiency in August my levels were 143. I've been g...

•7 years ago

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Advice please

Please advise I'm in the UK ,my latest blood results showed among other things a serum b12 of 152 range is 150.00-1000.00 Ferritin serum 31 range is...

Please advise I'm in the UK ,my latest blood results showed among other things ...

•7 years ago

Fire lit!

Well had my GP appointment today and what a difference my haematologist has made. My Levo has been upped to 100mg,with a view that it will be upped again I...

Well had my GP appointment today and what a difference my haematologist has made...

•7 years ago

Folinic acid

Does anyone know the difference between methyl folate and folinic acid? I have been si 1mg methylcobalamin for 6 weeks every other day. Also taking 1600 mcg of...

Does anyone know the difference between methyl folate and folinic acid? I have b...

•7 years ago

Latest bloods

Here are my latest bloods. Active is still over range. B12 up nicely and I've not had any since my last injection on 2/5/17 Both my mvc and MCH are increased...

Here are my latest bloods. Active is still over range. B12 up nicely and I've no...

•7 years ago

Looking for someone else with Subacute Combined Degeneration

Hi all, I have posted previously but have not asked if anyone else has my particular problem. The Subacute Combined Degeneration stems from the damage from...

Hi all, I have posted previously but have not asked if anyone else has my parti...

•7 years ago

What to ask.....?

Hi guys, I have a doctors appt booked for tomorrow regarding my B12 levels. As you can probably see from my previous posts I had a blood test done in October...

Hi guys, I have a doctors appt booked for tomorrow regarding my B12 levels. As y...

•7 years ago

MRI issues

I've had three MRI scans since September last year. The first was a brain scan and some time after that I begin to experience skin burning on the front of my...

I've had three MRI scans since September last year. The first was a brain scan a...

•7 years ago

2 months 3 months

What symptoms would be considered to indicate neurological involvement? In order to be prescribed 2 monthly injections one needs to present with some symptoms...

What symptoms would be considered to indicate neurological involvement? In orde...

•7 years ago

b12 240 after loading doses

hi everyone my b12 levels where 145 and vitamin d was 18 i was put on folic acid had 6 b12 injections over 2 weeks and put on vitamin d capsules when blood...

hi everyone my b12 levels where 145 and vitamin d was 18 i was put on folic acid...

elainelxx1976xx

•7 years ago

B12 injections and weight loss?

Has anyone else noticed rapid weight loss with self injecting B12 ? (I started with 1 a week for 10-12 weeks as it was very low and no help from GP, and now...

Has anyone else noticed rapid weight loss with self injecting B12 ? (I started w...

•7 years ago

New here... can I ask for some guidance, please?

Hi, I have recently begun taking b12 orally and not sure if I am taking enough. My b12 level is 190 (180-900), and my GP is not willing to treat me, but...

Hi, I have recently begun taking b12 orally and not sure if I am taking enough. ...

•7 years ago

Pinching Pain in neck,shoulders and down my arm with b12 deficiency?

I'm having my injection every 12 weeks, every time it's due I experience pinching pain in my neck and shoulder, has anyone else experienced this? Do I need to...

I'm having my injection every 12 weeks, every time it's due I experience pinchin...

•7 years ago

B12 injection

How much does b12 injection cost

How much does b12 injection cost

•7 years ago

Tinnitus

I was diagnosed with B12 deficiency 2 and a half years ago. I had been ill for a long time prior to diagnosis. Just before diagnosis I had tinnitus and was...

I was diagnosed with B12 deficiency 2 and a half years ago. I had been ill for a...

•7 years ago

Letters on Levo?

I always get loose Mercury Pharma levo from my local chemist as opposed to the boxed ones they have as I like to stick to the same brand. My records have been...

I always get loose Mercury Pharma levo from my local chemist as opposed to the b...

•7 years ago

Mouth sore and shredded.

Hi! I've been on my B-12 shots and iron infusion for a full month and after the last loading session I developed a shredding of the skin on inside of my mouth....

Hi! I've been on my B-12 shots and iron infusion for a full month and after the ...

•7 years ago

10th International Conference on Homocysteine and One Carbon Metabolism

Hi, Thought you might be interested in Martyn Hooper's blog post about this conference....

Hi, Thought you might be interested in Martyn Hooper's blog post about this conf...

•7 years ago

Self Injecting

I have been self injecting 1mg hydroxycobalamin. I went down the si route last July following the gradual onset of extreme tiredness/fatigue/unable to stay...

I have been self injecting 1mg hydroxycobalamin. I went down the si route last J...

•7 years ago

Well my GP has to take notice

I might finally get injections and supplements now thanks to my Hematologist.

I might finally get injections and supplements now thanks to my Hematologist.

•7 years ago

PAS news NICE guidelines

Hi, Thought you might be interested in this. https://pernicious-anaemia-society.org/pernicious-anaemia-society/important-step-closer-new-guideline/

Hi, Thought you might be interested in this. https://pernicious-anaemia-societ...

•7 years ago

referred to this site from thyroid UK.beginning to panic

I had a private blood test done a couple of weeks ago. My B12 is sitting at 88. T4&T3 okay have Hasimotos and on 100mgs Levo Hoping to get an appointment...

I had a private blood test done a couple of weeks ago. My B12 is sitting at 88....

•7 years ago

B12 or thyroid?

Hi, This might not be able to be answered yet but I had my 6 b12 loading doses early Feb. Blood test a couple of weeks later it was around 1100 (140-724)...

Hi, This might not be able to be answered yet but I had my 6 b12 loading doses e...

•7 years ago

B12 injections vs oral sup and sprays

Hi does anyone know or have any solid evidence of which is more effective and beneficial method of absorbing B12..injections orals or sprays? To boost B12...

Hi does anyone know or have any solid evidence of which is more effective and...

•7 years ago

Help with self medicating

Hi All I would really appreciate some help as I have started to self inject again. I started to self inject January 2016 as experienced severe confusion, had...

Hi All I would really appreciate some help as I have started to self inject agai...

•7 years ago

Help? My B12 272 folate 8.8

Good afternoon I would like some advice please. Last June 2016 my vitamin b12 levels were low of 156 also my folate was low (unsure on the number) i had 2...

Good afternoon I would like some advice please. Last June 2016 my vitamin b12 le...

•7 years ago

Allergic reaction to b12 shots

Ive gotten severe reaction from my b12 shots that are getting worse ..my dr. Told me to take benedryl before shots which havent helped at all..anyone out there...

Ive gotten severe reaction from my b12 shots that are getting worse ..my dr. Tol...

•7 years ago

Test results interpretation please

Hello all, I've been kindly directed here by admin from thyroid UK. I would be super grateful for your interpretation of my b 12 and iron results. I have a...

Hello all, I've been kindly directed here by admin from thyroid UK. I would be...

•7 years ago

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