Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for December 2014

PA related Gastric issues?

I was diagnosed with PA about 4 yrs ago, after almost a decade of complaining to many docs about being exhausted all the time. I'm 49, Canadian. I give myself...

I was diagnosed with PA about 4 yrs ago, after almost a decade of complaining to...

•9 years ago

BMJ Review and Folate

To clarify the situation with folate in the BMJ review - for the people who seem to think a) it is not mentioned or b) it is not mentioned in the right...

To clarify the situation with folate in the BMJ review - for the people who seem...

•9 years ago

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Buying b12

Hi everyone, I was hoping someone could tell me where I can order some b12 inj online that can be shipped to Australia. I have found a few sites eg. Trim...

Hi everyone, I was hoping someone could tell me where I can order some b12 inj o...

•9 years ago

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I've recently been diagnosed with B12 deficiency and due to start my loading dose tomorrow. My GP has also taken blood to determine whether I have PA. I must...

I've recently been diagnosed with B12 deficiency and due to start my loading dos...

•9 years ago

active query

Is all supplemental cobalamin active?? Is there a good post or link somewhere that explains the way supplemented cobalamin is available to the body, and why it...

Is all supplemental cobalamin active?? Is there a good post or link somewhere th...

•9 years ago

Anyone know of a PA expert in the US?

Hi All-- I want to find an expert in the US. If they are near Seattle, WA would be ideal. I was diagnosed with PA 7 years ago at age 40 via antibody to...

Hi All-- I want to find an expert in the US. If they are near Seattle, WA would ...

•9 years ago

Marre - What is it you take for bile?

Can't remember the name of it but it was something to do with cholesterol?

Can't remember the name of it but it was something to do with cholesterol?

•9 years ago

Confused about what should a be concern

Hi. First the tests: My mother has pernicious anemia and has regular b12 injections. I had a Homocystene blood test earlier in the year to investigate heart...

Hi. First the tests: My mother has pernicious anemia and has regular b12 injec...

•9 years ago

A Christmas Tip...

...not for the postman or anyone like that ... We all know the difficulties we face in getting doctors to read anything, so this is my Christmas tip: I would...

...not for the postman or anyone like that ... We all know the difficulties we ...

•9 years ago

Happy Christmas!

Hi everyone! I'd just like to say Happy Christmas and thanks for the invaluable support that this forum has provided me over the past 6 months!

Hi everyone! I'd just like to say Happy Christmas and thanks for the invaluable ...

•9 years ago

Gut Instinct

Hi All - I'd like to suggest an alternative strategy for some of you to get diagnosed and treated for PA based on tests for one of the other "fringe...

Hi All - I'd like to suggest an alternative strategy for some of you to get di...

•9 years ago

Ferritin high rbc help

Hi I've got very odd symptoms at the moment. Very tingly, weakmess etc. sensory issues often numb hands and feet. Whole body rls. My b12 is 600. My...

Hi I've got very odd symptoms at the moment. Very tingly, weakmess etc. sensor...

•9 years ago

Despair

I despair. My grandad was diagnosed with pa too late, he was diagnosed after collapsing at Christmas. The neurological damage was already done and could not be...

I despair. My grandad was diagnosed with pa too late, he was diagnosed after col...

•9 years ago

Bicarbonate of Soda

I was telling someone on here last week about the problems I had when I took bicarb - and the fact it made me really vomit and I nearly passed out. Which is...

I was telling someone on here last week about the problems I had when I took bic...

•9 years ago

What B12 Deficiency Really Does...

This is a bit of a faff but on the link below scroll down to Engels link to the Blood Journal...

This is a bit of a faff but on the link below scroll down to Engels link to the ...

•9 years ago

Neuropathic symptoms have moved from left to right

I posted 4 months ago to say that I had various neuro symptoms on my left side last December that cleared up when I started B12 injections but then I started...

I posted 4 months ago to say that I had various neuro symptoms on my left side l...

•9 years ago

Why do we keep asking, Why?

Just reading Martyn's latest blog post: Yet again the question which seems to be being asked is, "Why do some people need injections more frequently than every...

Just reading Martyn's latest blog post: Yet again the question which seems to be...

•9 years ago

Mirapex

Hello everybody My pain Dr. recently prescribed me a Mirapexf ( pramipexole) .18 mg as a pain reliever, for my peripheral neuropathy ( feet pain ) and guess...

Hello everybody My pain Dr. recently prescribed me a Mirapexf ( pramipexole) .1...

•9 years ago

Blood test results...low ferritin

Hi, i posted on here recently as I was wondering whether b12 deficiency could be responsible for any of my symptoms. I was diagnosed with ME 15 years ago and...

Hi, i posted on here recently as I was wondering whether b12 deficiency could be...

•9 years ago

Grievous Guidelines

I wish I had a dollar for every hour I stayed awake till dawn re-arranging and updating my family's encyclopedic medical files in preparation for consultations...

I wish I had a dollar for every hour I stayed awake till dawn re-arranging and u...

•9 years ago

Latest blood results

Hello, I am a diagnosed thyroid hypo (myxoedema). I have recd my latest blood results today and been advised on the thyroid forum to come here and give my...

Hello, I am a diagnosed thyroid hypo (myxoedema). I have recd my latest blood r...

•9 years ago

Progress

I joined the PAS and this forum at the beginning of Sept this year having been diagnosed with PA in May 2013. I hadn't received any loading doses and was put...

I joined the PAS and this forum at the beginning of Sept this year having been d...

•9 years ago

Hydroxo available in Oral form?

Anyone ever had oral formulations of hydroxo?

Anyone ever had oral formulations of hydroxo?

•9 years ago

Advice please on confusing problem.

I have top of range RBC in range Hb. and take ferrous sulphate for iron deficiency anaemia. I have top of range Vit B 12 when supplementing. Low MCV & MCH. I...

I have top of range RBC in range Hb. and take ferrous sulphate for iron deficien...

•9 years ago

B12 deficiency in the dark

i have recently been diagnosed with b12 deficiency, and am shocked at what i have read here, i suffered from pins and needles in hands, arms when i woke up an...

i have recently been diagnosed with b12 deficiency, and am shocked at what i hav...

•9 years ago

forgetfulness & b12

After Neurologist appointment for my forgetfulness, I convinced my GP for weekly B12 injections for couple of months. He requires some evidence to prove that...

After Neurologist appointment for my forgetfulness, I convinced my GP for weekly...

•9 years ago

Irreversible damage?

Hello, After a full year of struggling to raise my B12 levels, I fear that I have had permanent damage. Everyday, late afternoon, I feel really aweful. My...

Hello, After a full year of struggling to raise my B12 levels, I fear that I hav...

•9 years ago

Went from cyano jabs to methyl sublingual

Hello all, When diagnosed with B12 deficiency, I was given cyano jabs. My B12 would go up after the jab but right back down within a month. ( ex: jab: B12 at...

Hello all, When diagnosed with B12 deficiency, I was given cyano jabs. My B12 wo...

•9 years ago

Non-PA symptoms: insomnia / trouble sleeping, fast pulse

An odd symptom that I've had for some time is insomnia and trouble sleeping, and a fast pulse and heart rate. Sometimes I wake in the night with my heart...

An odd symptom that I've had for some time is insomnia and trouble sleeping, and...

•9 years ago

American Lady Posted about Road Sign Test Comprehension?

A bizarre heading I know, but a while back a lady posted about having a cognitive test done relating to her comprehension of roadsigns and such like. I know...

A bizarre heading I know, but a while back a lady posted about having a cognitiv...

•9 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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