Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for July 2015

Help

Can anyone help me with this. I asked for more frequent injections ( currently 3 months) as I'm still extremely tired

Can anyone help me with this. I asked for more frequent injections ( currently 3...

•9 years ago

Recent B12 blood test results. Do I need to supplement?

Hi there, I recently had my Vit B12 tested as I have an under active thyroid and it is suggested we check B12 also. My results are: 423 pg/ml (200-1100) I...

Hi there, I recently had my Vit B12 tested as I have an under active thyroid an...

•9 years ago

PA and homozygous MTHFR C667T - Treating with methylcobalamin

Hi just wondering for those using methylcobalamin to treat their PA and have this gene mutation, how often do you receive your methyl dose? Drs have been...

Hi just wondering for those using methylcobalamin to treat their PA and have th...

•9 years ago

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Regulating Body Temperature

Hi all, I've had PA for a year and I also have thyroid issues. Both are being treated appropriately. I was just wondering if anyone with PA has trouble...

Hi all, I've had PA for a year and I also have thyroid issues. Both are being t...

•9 years ago

Thrush

Not sure if it's a coincidence, since it's only been a week since I was told to stop B12 supplementation. Now, for the first time since starting inhaled...

Not sure if it's a coincidence, since it's only been a week since I was told to ...

•9 years ago

TheyWorkForYou email alert - Anaemia/B12 Deficiency

"To ask Her Majesty’s Government how they propose to alert medical practitioners to the severe and irreversible nerve damage that can occur when pernicious...

"To ask Her Majesty’s Government how they propose to alert medical practitioners...

•9 years ago

B12 deficiency & muscle weakness & muscle fatigue

I have B12 deficiency due to long tem (6 years) use of Omeprazole. I have had most of the symptoms of B12 deficiency and most have gone following B12 therapy...

I have B12 deficiency due to long tem (6 years) use of Omeprazole. I have had m...

Robin_Young_1201

•9 years ago

B12 deficiency and liver stores of B12

My doctor and I are still trying to figure out what's wrong with me. I have a lot of symptoms that sound like B12 deficiency but my blood results show that I...

My doctor and I are still trying to figure out what's wrong with me. I have a lo...

•9 years ago

Finally after six long weeks of waiting....

My doctor sent IF antibody and Paritial cell antibody tests to double check the PA diagnosis I had in 2005....they have come back negative!!! Does this mean I...

My doctor sent IF antibody and Paritial cell antibody tests to double check the ...

•9 years ago

Omg disaplinary

I went back to work as feeling so much better and my manager has put me on a disaplinary for being off with PA. He said said its not an on going illness even...

I went back to work as feeling so much better and my manager has put me on a dis...

•9 years ago

PA and Labyrinth Vertigo

Hi all. Great to find that there is so much support available. I have been unwell for sometime and since March this year the doctors have been testing why I...

Hi all. Great to find that there is so much support available. I have been unwel...

•9 years ago

What do I do for the best? B12 injections now to be denied?

So, I'm having the B12 injections and I know it can take months to help neurological problems such as I have and although I've seen improvements in arms and...

So, I'm having the B12 injections and I know it can take months to help neurolog...

•9 years ago

Additional B12 supplements

Hi, I am a 50 year old woman and have been diagnosed with pernicious anaemia with a B12 level of 91. I have had 4 loading doses of cyanocobalamin and due my...

Hi, I am a 50 year old woman and have been diagnosed with pernicious anaemia wit...

•9 years ago

Bit of help page 2

This is the second page of my blood test results. Had to do it as a separate post as this site will only let you post one photo for some reason

This is the second page of my blood test results. Had to do it as a separate pos...

•9 years ago

A bit of help.

Hi to everyone, this is my first post here and was wondering if any of you more knowledgeable members would take a look at my blood test results and maybe...

Hi to everyone, this is my first post here and was wondering if any of you more...

•9 years ago

Could I have Pernicious Anaemia?

Hi, this is my first post. I have been feeling tired, fatigued, foggy brain, headaches, itchy skin, burning crawling sensation in palms so I got bloods checked...

Hi, this is my first post. I have been feeling tired, fatigued, foggy brain, hea...

•9 years ago

Dose Anyone Know What CL on Blood Test Results Means

I have seen other's blood test results pictures and they have what I assume to be disease code where CL is on my picture blood test results. It's funny how...

I have seen other's blood test results pictures and they have what I assume to b...

•9 years ago

Dumb and dumber with NHS money to burn (Tracey Witty blog)

Appalling ignorance from a consultant haemotologist in http://www.b12deficiency.info/blog/

Appalling ignorance from a consultant haemotologist in http://www.b12deficiency....

•9 years ago

B12...symptom or diagnosis?

I am 50 year old female, numbness and tingling from mid-shin to toes. Post gastric by-pass 2004, with 175 pound weight loss and faithful about taking my...

I am 50 year old female, numbness and tingling from mid-shin to toes. Post gast...

•9 years ago

Fed up

Last Friday afternoon I had my appeal for my benfits due too the damage caused by not getting my b12 injections. It was clear that they have never dealt with a...

Last Friday afternoon I had my appeal for my benfits due too the damage caused b...

•9 years ago

Vitamin b12 not being treated

Hi everyone. I have just signed up to this site so I could seek advice from people who are experiencing similar problems. So, I've been feeling generally Ill...

Hi everyone. I have just signed up to this site so I could seek advice from peop...

•9 years ago

Adenosylcobalamin - anyone tried it?

Has anyone added this version of B12 in, and if so, what were the results? Did you try the liquid or tablet form? Apparently it does a different job from...

Has anyone added this version of B12 in, and if so, what were the results? Did y...

•9 years ago

Stopping treatment?

Was diagnosed with a B12 deficiency a little over 2 years ago with blood levels at 110. I was then prescribed daily sub linguals (1000mg/day). Most recently my...

Was diagnosed with a B12 deficiency a little over 2 years ago with blood levels ...

•9 years ago

help with diagnosis

Hi everyone, I have recently been diagnosed with low B12 and I am currently having injections every other day. I have been exhausted to the point where I have...

Hi everyone, I have recently been diagnosed with low B12 and I am currently havi...

•9 years ago

Did anyone have side effects with methyl? Which form do you use?

I understand that methylcobalamin is absolutely life-giving to many. However, some people do have severe adverse effects and I hope to discuss that here....

I understand that methylcobalamin is absolutely life-giving to many. However, so...

•9 years ago

B COMPLEX tablets

I have noticed that the B Complex tablets that I have been taking for many years contain Cyano B12. Does anyone know of a B Complex tablet that contains...

I have noticed that the B Complex tablets that I have been taking for many years...

•9 years ago

No useful advice from doctor - can any of you help?

Hi there, My name is Rachel and I am 24 years old. In the last 3 months I've been diagnosed with pernicious anaemia, as well as endometriosis and coeliac...

Hi there, My name is Rachel and I am 24 years old. In the last 3 months I've bee...

•9 years ago

Unsympathetic Medical Profession

21 years ago I was diagnosed with ulcerative colitis; within 12 months of being diagnosed I had my bowel removed. I was then treated for anemia on numerous...

21 years ago I was diagnosed with ulcerative colitis; within 12 months of being ...

michellelofthouse

•9 years ago

Suppliments along with b12 injections??

Hi, I currently have b12 injections every 8 weeks but am finding the tiredness increasingly difficult. My practice nurse said another of her patients...

Hi, I currently have b12 injections every 8 weeks but am finding the tiredness i...

•9 years ago

Needing increasingly more B12 and balancing it.

Good morning! Thank you again to everyone who has helped me so far and please forgive me for asking more questions but I'd really appreciate your views on...

Good morning! Thank you again to everyone who has helped me so far and please...

•9 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(76)

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