Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,669 members•24,064 posts

All posts for July 2024

Too much b12 please help?

Hi everyone, I'm reaching out for some guidance and advice. I've recently experienced tingling and muscle aches and neck and leg tingling , and I'm concerned...

Hi everyone, I'm reaching out for some guidance and advice. I've recently exper...

Damacian

•4 months ago

18 Replies

Kirklees - switch from GP to Locala for injections.

Kirklees health authorities have recently (1/7/24) switched from B12 being delivered by local GP practices to Locala (our local community health service that...

Kirklees health authorities have recently (1/7/24) switched from B12 being deliv...

Reloadfaun

•4 months ago

2 Replies

B12 SI Orders from Hot Germany? :-(

I have been waiting for a break in the Germany weather to re-order my Hydroxy. I believe it needs to be kept at below 25c - and i worry that temperature in...

I have been waiting for a break in the Germany weather to re-order my Hydroxy. ...

Treesong2023

•4 months ago

5 Replies

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Sublingual B12?

Was wondering if anyone can tell me if sublingual B12 could be used as an alternative to injecting? I assume the b12 would be absorbed into the bloodstream via...

Was wondering if anyone can tell me if sublingual B12 could be used as an altern...

Dfthbhjj

•4 months ago

17 Replies

I wrote a book about my experiences with B12

Hi, I just want to say thanks to this forum - it saved my life a few years ago when I knew my body was shutting down yet the GP's were telling me everything...

Hi, I just want to say thanks to this forum - it saved my life a few years ago w...

Jengastar

•4 months ago

15 Replies

CAN ANYONE HELP ME UNDERSTAND THESE RESULTS? Ive Already got a dozen heart conditions and autoimmune diseases! But this is NEW!

my last three blood tests have came back scary and i cant get anyone to explain it to me !!! these are what my MD GOT BACK WHEN HE SENT TO A SPECIAL DR THAT...

my last three blood tests have came back scary and i cant get anyone to explain ...

Tashantr01

•4 months ago

1 Reply

Should I be pushing for further investigation? Help appreciated ❤️

Hi everyone, It's my first post here after watching over the last few weeks! I'm from the UK and having a bit of a mare getting my GP to seriously investigate...

Hi everyone, It's my first post here after watching over the last few weeks! I'm...

Battypatty2

•4 months ago

21 Replies

I am in shock!

On top of everything else I received the results of a recent scan. For the longest time I have suffered with my back and was diagnosed but never treated for...

On top of everything else I received the results of a recent scan. For the long...

Nonameme

•4 months ago

5 Replies

New oral b12 drug

Hi everyone, for past 20+ years I struggled with fatigue,gastric issues pins and nèedles in hands and feet and electric shock sensations down my right...

Hi everyone, for past 20+ years I struggled with fatigue,gastric issues pins an...

Mrsmr

•4 months ago

8 Replies

I'm so sorry I am always confused

I need to supplement vit D but vutamin D requires magnesium. But magnesium cancels out iron and I need iron so what do I do? This is doing my head in

I need to supplement vit D but vutamin D requires magnesium. But magnesium cance...

Popcorn12345

•4 months ago

29 Replies

Increase injections?

I currently self inject once a week - I started about 3 months ago as I was having lots of pins and needles and burning in my hands, arms and feet. GP agreed...

I currently self inject once a week - I started about 3 months ago as I was havi...

Alilev

•4 months ago

3 Replies

ESSENTIAL VIEWING - Dr David Morris - Role of B12

Hi All This video is a breath of fresh air. https://vimeo.com/891099138/4150efa06b?share=copy New and old forum members should get a brew and watch. So...

Hi All This video is a breath of fresh air. https://vimeo.com/891099138/4150...

Wwwdot

•4 months ago

52 Replies

Nay sayers

I am passionate about spreading the word about B12 deficiency. Being diagnosed and treated has transformed my life. I met with an old friend the other day who...

I am passionate about spreading the word about B12 deficiency. Being diagnosed ...

Ipsofacto01

•4 months ago

48 Replies

Reversing out or more needed? really need help !

Please help... I was on EOD for 30 days prescribed by neurologist given I have PA . Felt fantastic and was able to literally run into the surgery get jabbed...

Please help... I was on EOD for 30 days prescribed by neurologist given I hav...

Damacian

•4 months ago

8 Replies

B complex includes b12

I have been doing SI EOD Hydroxocobalamin for 8 weeks now, with cofactors. I have just seen a nutritionist to see if I can get my gut back to optimum health....

I have been doing SI EOD Hydroxocobalamin for 8 weeks now, with cofactors. I hav...

Chickens44

•4 months ago

4 Replies

The Royal

An old programme set in the 60's A woman repeatedly going to the G.p with balance issues and fatigue . Told psychosomatic, ect. Seen by another G.p by chance....

An old programme set in the 60's A woman repeatedly going to the G.p with balanc...

Nackapan

•4 months ago

11 Replies

Blimey

It's 3 days since my first injection and my word the burning nerve pain is even worse.Is this infact a good sign? Is this reversing out?

It's 3 days since my first injection and my word the burning nerve pain is even ...

Popcorn12345

•4 months ago

6 Replies

Help us Help You

Rebecca is running for Pernicious Anaemia Society to raise valuable funds to help us help you. Please support her by making a donation. However small your...

Rebecca is running for Pernicious Anaemia Society to raise valuable funds to hel...

PAScomms

•4 months ago

1 Reply

first b12 injection learning all I can

hello, first post so I’ll try to keep it concise as I have a lot going on. I appreciate any tips and/or input you care to share. I’m 55years old, post...

hello, first post so I’ll try to keep it concise as I have a lot going on. I app...

Knittergirl3

•4 months ago

20 Replies

PA and family links

i just want to say to the people who have replied to me that i shall be away for a few days - maybe more - as i have to take my husband to Papworth Hospital...

i just want to say to the people who have replied to me that i shall be away for...

24yearsandcounting

•4 months ago

7 Replies

Query on Notifications.

I have not received any email notifications now for a long time. Is there an issue with notifications? Received them since joining a few years ago but stopped...

I have not received any email notifications now for a long time. Is there an iss...

Natural1970

•4 months ago

4 Replies

How often in the beginning?

Hi all, Looking for some advice as I begin this journey. I am currently in the middle of my loading doses at my GP. Whilst I havent noticed huge changes yet...

Hi all, Looking for some advice as I begin this journey. I am currently in the ...

Pinkxe

•4 months ago

14 Replies

injecting in the abdomen IM questions

hello, does anyone inject in the abdomen, I use alternating thighs and I was looking up on you tube for inj. in the abdomen but there is only one and it is...

hello, does anyone inject in the abdomen, I use alternating thighs and I was lo...

JesusMercy60

•4 months ago

17 Replies

That was scary

Just done my first b12 injection. I hate needles so that was terrifying. Having a few stingy sensations in my tummy, I hope that's normal

Just done my first b12 injection. I hate needles so that was terrifying. Having ...

Popcorn12345

•4 months ago

38 Replies

Results query

Hi, In May 2021 I had the intrinsic factor blood test and my results were as follows. 89 u/ml. With a normal range of 0-24 u/ml. And the following notes. The...

Hi, In May 2021 I had the intrinsic factor blood test and my results were as fol...

Mysticat81

•4 months ago

10 Replies

pernicious anemia and pregnancy

Hello everyone, I’ve been diagnosed with PA for 6 years now and injections every fortnight mostly keep me on top of things. my husband and I are hoping to...

Hello everyone, I’ve been diagnosed with PA for 6 years now and injections eve...

ChloeW92

•4 months ago

8 Replies

Intrinsic factor blood test

I had a blood test and got the result today - I haven't a clue what this means?? Any ideas? Intrinsic factor antibody level Intrinsic factor antibody level <...

I had a blood test and got the result today - I haven't a clue what this means??...

Loobs39

•4 months ago

7 Replies

momograms do they affect b12 levels

hello My friends, I have to go get a mamogram soon and during this b12 recovery I've read that certain procedures can use up our b12. I was wondering if...

hello My friends, I have to go get a mamogram soon and during this b12 recovery...

JesusMercy60

•4 months ago

6 Replies

Solgar sublingual methylcobalamin - unsealed?

Hi - I have just received a jar of Solgar methylcobalamin “nuggets” that I ordered from eBay as I’m a bit disorganised and wanted them quickly. I’ve not used...

Hi - I have just received a jar of Solgar methylcobalamin “nuggets” that I order...

GW1000

•4 months ago

2 Replies

Sluggish digestion and feeling of food just sitting there?

For a few months I have been gaining weight and feeling that after a reasonable meal food is just sitting there for a few hours after eating. My appetite is...

For a few months I have been gaining weight and feeling that after a reasonable ...

RoMello

•4 months ago

18 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2024

Too much b12 please help?

Kirklees - switch from GP to Locala for injections.

B12 SI Orders from Hot Germany? :-(

Sublingual B12?

I wrote a book about my experiences with B12

CAN ANYONE HELP ME UNDERSTAND THESE RESULTS? Ive Already got a dozen heart conditions and autoimmune diseases! But this is NEW!

Should I be pushing for further investigation? Help appreciated ❤️

I am in shock!

New oral b12 drug

I'm so sorry I am always confused

Increase injections?

ESSENTIAL VIEWING - Dr David Morris - Role of B12

Nay sayers

Reversing out or more needed? really need help !

B complex includes b12

The Royal

Blimey

Help us Help You

first b12 injection learning all I can

PA and family links

Query on Notifications.

How often in the beginning?

injecting in the abdomen IM questions

That was scary

Results query

pernicious anemia and pregnancy

Intrinsic factor blood test

momograms do they affect b12 levels

Solgar sublingual methylcobalamin - unsealed?

Sluggish digestion and feeling of food just sitting there?

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