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Pernicious Anaemia Society

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What do you think of this video on homocysteine?

https://youtu.be/9lb_Js5KMq4?si=0sBd0Bc8XxZA4NqUI watched this and wondered are our problems, fatigue, inflammation etc. to do with toxic build up of...

https://youtu.be/9lb_Js5KMq4?si=0sBd0Bc8XxZA4NqUI watched this and wondered are ...

Oneash

•10 days ago

7 Replies

What tests should I ask my GP for if I think I have pernicious anaemia?

Hello. I’m looking for advice on how to talk to my GP about pernicious anaemia and request the right tests. I’m a 30 year old woman and work as a journalist...

Hello. I’m looking for advice on how to talk to my GP about pernicious anaemia a...

msbooples

•26 days ago

12 Replies

Food poisoning

forgive me if arrived twice. Caught Campylobacter 3 weeks ago in Portugal. Only treatment there probiotics though I ended up in Faro Hospital on drip and CT...

forgive me if arrived twice. Caught Campylobacter 3 weeks ago in Portugal. Only ...

smg1950

•1 month ago

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Where can I buy BD medical 2ml syringes and needles for B12 injections please?

Hi, Please can someone advise me where I can purchase BD medical 2ml syringes and needles from as I currently have 0.5ml syringes but unfortunately my hand...

Hi, Please can someone advise me where I can purchase BD medical 2ml syringes an...

Bess48

•2 months ago

8 Replies

Other cobalamins

I have just now completed a second full month of self injecting cyanocobalamin twice a week and feeling much better. Many symptoms have receded. No more brain...

I have just now completed a second full month of self injecting cyanocobalamin t...

djrpdx

•2 months ago

8 Replies

Being asked to track my working hours after OH referral..

Hi everyone. Wondering if anyone can advise. I was diagnosed with B12 deficiency a few years ago and have been getting injections every 8 weeks since then. I...

Hi everyone. Wondering if anyone can advise. I was diagnosed with B12 deficien...

Squirrel_enthusiast

•2 months ago

7 Replies

Sally Pacholok tonight 7pm UK time (Daylight Savings Time) in 90 minutes. Monday 9 Sept

I know it's been mentioned before but we have a very important speaker tonight. Meeting URL:...

I know it's been mentioned before but we have a very important speaker tonight. ...

HugoMinney

•2 months ago

1 Reply

blood tests

doc won’t accept this active test as my serum test is 354. 191-663 b12 Folate 4.3. 3.89 - 26.8 Quite a difference I’m at a loss

doc won’t accept this active test as my serum test is 354. 191-663 b12 Folate ...

ninja1

•3 months ago

8 Replies

Low mch and lowmchc

I’m wondering if I hzve some sort of anemia My Mchc is low. 298 320-370 Mch 24.7’ 27-32 Mcv...

I’m wondering if I hzve some sort of anemia My Mchc is low. 298 320-370 M...

ninja1

•3 months ago

10 Replies

Please does anybody know where to buy on brand methycobalamin for injections. Please paste website or something! Thank you

Please does anybody know where to buy brand-name methycobalamin for injections. I have pernicious anemia and this us the only one that works for...

Please does anybody know where to buy brand-name methycobalamin for injections....

Flembot7

•3 months ago

4 Replies

Letters to GP templates and NICE guidelines

Hi Can someone tell me where to find the template letters to the GP? Also the NICE guidelines re the frequency of jabs, and Doctors wanting to do a repeat...

Hi Can someone tell me where to find the template letters to the GP? Also the ...

emmjay77

•3 months ago

1 Reply

Can pernicious anaemia be caused by long term use of lansoprazole?

Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then I began to feel ill with various symptoms the doctor was not interested in or...

Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then ...

wiserlady

•3 months ago

46 Replies

CAN ANYONE HELP ME UNDERSTAND THESE RESULTS? Ive Already got a dozen heart conditions and autoimmune diseases! But this is NEW!

my last three blood tests have came back scary and i cant get anyone to explain it to me !!! these are what my MD GOT BACK WHEN HE SENT TO A SPECIAL DR THAT...

my last three blood tests have came back scary and i cant get anyone to explain ...

Tashantr01

•4 months ago

1 Reply

B12 & Folic Acid and Anxiety

I have suffered with anxiety and panic for a long time but since my loading doses of hydroxocobalamin and folic acid my anxiety and panic are unbearable. I...

I have suffered with anxiety and panic for a long time but since my loading dose...

Chocolatelover15

•4 months ago

26 Replies

Mean cell volumes

I've been injecting 1mg of B12 twice weekly for several years and had a recent blood test which showed high levels of B12 which is pretty normal when...

I've been injecting 1mg of B12 twice weekly for several years and had a recent b...

th3joker

•4 months ago

2 Replies

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about 2 years ago with PA along with many of the accompanying...

I have been battling for about 10 years with numerous health issues and was fina...

YearsNow

•4 months ago

14 Replies

advice about iron infusion

I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels...

I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and...

Divii

•5 months ago

8 Replies

B12 injections causing rebound effect?

Hi there, I'm wondering if any of you have experienced this... I've noticed over the years that (yep, YEARS!), after I get my monthly B12 injection...

Hi there, I'm wondering if any of you have experienced this... I've noticed ove...

annagaia06

•5 months ago

14 Replies

PA what GP should have told me and I have only just found out myself due to not being treated with all my other abnormal results deficiency

please help me I have B12 + folate + ferritin deficiencies but being given B12 injections should have been 12 weekly but was more 20 weeks plus they would not...

please help me I have B12 + folate + ferritin deficiencies but being given B12 ...

mjm1929

•5 months ago

3 Replies

Pernicious anaemia

My 14 year old daughter has been mainly in bed sleeping for 7 to 8 weeks. She sleeps most of the time and is complaining of aches throughout her body. I have...

My 14 year old daughter has been mainly in bed sleeping for 7 to 8 weeks. She sl...

TracyEsmond

•6 months ago

43 Replies

Hello all, sone advise please.

I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my...

I am undiagnosed B12 diffident but started self injecting and it has changed my ...

Lowbattry03

•7 months ago

11 Replies

early pregnancy -Hydroxy33

Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get...

Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnan...

AstiSP

•7 months ago

14 Replies

B 12 level... confusing

Is 250 pg/ml an acceptable level of b12 for a person with neuro deficit like random pricking on the skin.. from head to toe... This result is inspite of...

Is 250 pg/ml an acceptable level of b12 for a person with neuro deficit like ran...

Muef

•8 months ago

2 Replies

super high gastrin level

hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was...

hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, ...

Lhood08

•8 months ago

15 Replies

feeling depressed and disheartened

So I'm having my 2 weeks loading injections (6 injections) for pernicious anaemia at the GP I had no relief of symptoms until yesterday my 4th injection I had...

So I'm having my 2 weeks loading injections (6 injections) for pernicious anaem...

mully

•8 months ago

17 Replies

Just diagnosed. Does this explain my life? Especially my recent experiences?

For as long as I can remember, I have been suffering with various levels of depression and anxiety, lack of energy, poor sleep habits and headaches.Yet both...

For as long as I can remember, I have been suffering with various levels of depr...

Valid94

•8 months ago

29 Replies

Good Supplier Of Folate 🇬🇧

Any recommendations for 5mg supplier of folate please?

B12again

•9 months ago

14 Replies

Share your Story

Hello good people, The Patient Revolution is currently reaching out to patients across the globe to ask people for their stories of industrialized health...

Hello good people, The Patient Revolution is currently reaching out to patie...

Cobalt1312

•9 months ago

2 Replies

Why do my SI suddenly hurt so much more?

Hi all! I’m 20 self injections EOD into my treatment, so I’ve been on hydroxocobalamin for a month and a bit. My first 8 or 9 injections, the pain of...

Hi all! I’m 20 self injections EOD into my treatment, so I’ve been on hydroxocob...

AJackson21

•9 months ago

14 Replies

Imerslund-Gräsbeck one to know about

https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me....

https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had a...

Oneash

•9 months ago

9 Replies

Write a post or ask a question

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All things Pernicious Anaemia Society posts

What do you think of this video on homocysteine?

What tests should I ask my GP for if I think I have pernicious anaemia?

Food poisoning

Where can I buy BD medical 2ml syringes and needles for B12 injections please?

Other cobalamins

Being asked to track my working hours after OH referral..

Sally Pacholok tonight 7pm UK time (Daylight Savings Time) in 90 minutes. Monday 9 Sept

blood tests

Low mch and lowmchc

Please does anybody know where to buy on brand methycobalamin for injections. Please paste website or something! Thank you

Letters to GP templates and NICE guidelines

Can pernicious anaemia be caused by long term use of lansoprazole?

CAN ANYONE HELP ME UNDERSTAND THESE RESULTS? Ive Already got a dozen heart conditions and autoimmune diseases! But this is NEW!

B12 & Folic Acid and Anxiety

Mean cell volumes

AUGH!

advice about iron infusion

B12 injections causing rebound effect?

PA what GP should have told me and I have only just found out myself due to not being treated with all my other abnormal results deficiency

Pernicious anaemia

Hello all, sone advise please.

early pregnancy -Hydroxy33

B 12 level... confusing

super high gastrin level

feeling depressed and disheartened

Just diagnosed. Does this explain my life? Especially my recent experiences?

Good Supplier Of Folate 🇬🇧

Share your Story

Why do my SI suddenly hurt so much more?

Imerslund-Gräsbeck one to know about

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