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Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for January 2023

Advice please so confused

I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a sinus infection. A few days later I couldn't walk in straight line,terrible...

I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a si...

Paula1710

•1 year ago

26 Replies

Ileum vs Terminal Ileum

I have seen mention made of the ileum and of the terminal ileum. I haven't been able to discover whether these both refer to the same thing, or whether...

I have seen mention made of the ileum and of the terminal ileum. I haven't been ...

WiscGuy

•1 year ago

3 Replies

B12 Deficiency Quiz

My friend sent me this quiz. She's a PA and received it from the site yesterday. I feel happy every time I see B12 deficiency mentioned in the media. I also...

My friend sent me this quiz. She's a PA and received it from the site yesterday...

MoKayD

•1 year ago

3 Replies

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Not tolerating hydroxycobalamin lozenges

I have probably had b12 def since I got really ill 43 years ago, but kept taking B complex and so all testing failed to show a problem. I had my first...

I have probably had b12 def since I got really ill 43 years ago, but kept takin...

2Thess2

•1 year ago

18 Replies

Gut is now at metaplasia stage and it's irreversible. Need advice, friends.

Hello, It has been some time since I last wrote so I will refresh your memories a bit. In a nutshell, I was diagnosed with autoimmune atrophic gastritis two...

Hello, It has been some time since I last wrote so I will refresh your memories...

Hidden

•1 year ago

17 Replies

difference between micro and macro nutrients? Any ideas ?

hi everyone.. can anyone please tell me the difference between micro and macro nutrients?

hi everyone.. can anyone please tell me the difference between micro and macro n...

Lowblow

•1 year ago

7 Replies

many thanks to forum for information

many to to everyone who respond to me re getting my b12 ampoules from the German pharmacies. I eventually was able to get my order via Amazon.de. Peace of mind...

many to to everyone who respond to me re getting my b12 ampoules from the German...

Higgs99

•1 year ago

Be the first to reply

cyanocobalamin vs methylcobalamin

hi I have received both cyanocobalamin and methylcobalamin in last week both 1000 mg of each. I feel like i dont have any side effects from the methylcobalamin...

hi I have received both cyanocobalamin and methylcobalamin in last week both 100...

Asb2

•1 year ago

6 Replies

B12 Active Test...and effect of B12 loading injections

Another quick question PA Folks - just making sure I understand things.. Q: If i have B12 SI shots - do they invalidate a future... active... B12 blood test?...

Another quick question PA Folks - just making sure I understand things.. Q: If ...

Treesong2023

•1 year ago

2 Replies

HRT - decreases B12 levels?

Hi all I posted about abdominal pain/problems in December- got a whole lot of helpful replies. GP sent me for blood tests and scan - all clear thankfully....

Hi all I posted about abdominal pain/problems in December- got a whole lot of ...

LizWilsonpa

•1 year ago

4 Replies

Hevert

Hi All I have just ordered a 10 pack of Hevert from Amazon.de to try as Versandapo is still down. I have never used Amazon.de or Hevert before so I'm hoping...

Hi All I have just ordered a 10 pack of Hevert from Amazon.de to try as Versanda...

Sunshine1932

•1 year ago

9 Replies

Self-injecting 2 ml EOD.

Hi Family…. Has anyone self-injected 2 ml EOD, subcutaneous? If so has there been any adverse reactions, I currently inject 1ml EOD, for about 6 months. PA...

Hi Family…. Has anyone self-injected 2 ml EOD, subcutaneous? If so has there b...

RisingOne

•1 year ago

13 Replies

Some support please

I'm 1 week away from next injeciton and symptoms of muscles aching, pain, fatigue, and low mood are back. Know they will go away again but it's hard. I keep up...

I'm 1 week away from next injeciton and symptoms of muscles aching, pain, fatigu...

DocAJB

•1 year ago

5 Replies

Does the liver store B12 after loading?

Hi Folks. A few quick questions? I have read differing messages from various messages here, and from clinical papers on whether we can eventually hold b12...

Hi Folks. A few quick questions? I have read differing messages from various m...

Treesong2023

•1 year ago

14 Replies

Television

Watching an early repeat of ;Heartbeat. Still a novelty being able to watch TV again. A character died of heart failure because of PA diagnosis missed. No...

Watching an early repeat of ;Heartbeat. Still a novelty being able to watch TV a...

Nackapan

•1 year ago

21 Replies

B12 ampules left outside.

I think my German bought Pascoes may have been left in my porch for three very chilly days. Getting colder than room temperature etc. I assume that will...

I think my German bought Pascoes may have been left in my porch for three very ...

Treesong2023

•1 year ago

3 Replies

nerve damage?

Hey hive Im worried that ive got permanent nerve damage. I wake up with numb hands then spend the day shaking them out, or feeling stabbing sensations in my...

Hey hive Im worried that ive got permanent nerve damage. I wake up with numb h...

ozwald28

•1 year ago

63 Replies

Impact on relationships

Has anyone's relationships suffered with this illness. I'm very hard to be around as at times in snappy, angry or just scared about the future. It's hard being...

Has anyone's relationships suffered with this illness. I'm very hard to be aroun...

Hidden

•1 year ago

77 Replies

Relationship between B12 deficiency and certain ADHD symptoms

I have felt for some time that, among other things, B12 deficiency exacerbates some ADHD symptoms. Therefore I was interested to see the relationships...

I have felt for some time that, among other things, B12 deficiency exacerbates s...

WiscGuy

•1 year ago

2 Replies

itchy rash with the methylcobalamin

has anyone gotted injection site rashes only with methylcobalamin? I got it on my upper buttox area so could be from wearing jeans right after injection. Never...

has anyone gotted injection site rashes only with methylcobalamin? I got it on m...

Asb2

•1 year ago

Be the first to reply

Swoping from SI using Hydroxocobalamin to Cyanocobalamin

Hi all, 👋 I have a question to all you good people out there.... I've been buying and self injecting for over 3 years now with Hydroxocobalamin from a Germany...

Hi all, 👋 I have a question to all you good people out there.... I've been buyi...

Onlyme75

•1 year ago

9 Replies

Frightening example of Doctors attitude towards B12D.

I couldn't believe it when I read this GP's article. I pity his patients. https://www.pulsetoday.co.uk/views/copperfield/to-b12-or-not-to-b12/

I couldn't believe it when I read this GP's article. I pity his patients. http...

charks

•1 year ago

106 Replies

Itchy skin with no rash

Wondering if anyone else has itchy skin? I've been SI B12 for a year and been feeling much better for the last 3 months, so reducing injections to 1 per week...

Wondering if anyone else has itchy skin? I've been SI B12 for a year and been f...

redbobbie5

•1 year ago

23 Replies

GP gave me prescription of B12 despite range at > 2000!

I was expecting a conversation to be had after recent blood tests (even the nurse rolled her eyes at having my B12 tested) and yet yesterday I received a...

I was expecting a conversation to be had after recent blood tests (even the nurs...

Hidden

•1 year ago

3 Replies

B12 Conference Netherlands June 2023

Hi All, Thought some of you might be interested in this conference. Maybe your doctors might be interested? First International Conference on Vitamin B12...

Hi All, Thought some of you might be interested in this conference. Maybe you...

Sleepybunny

•1 year ago

3 Replies

cobalamin v methylcobalamin sublinguals

Having real fight on my hands with my doctor over B12 injections, are getting monthly shots and no loading shots. She does not believe that my B12 deficiency...

Having real fight on my hands with my doctor over B12 injections, are getting mo...

Janeames

•1 year ago

11 Replies

Which needles should I use?

I have just bought my first lot of B12 from Germany to self inject. I also have syringes. Which brand/size needles should I order? Every time I go to do this...

I have just bought my first lot of B12 from Germany to self inject. I also have ...

Callie58

•1 year ago

6 Replies

Maybe I have more than PA...

So, I was diagnosed last year by a PA expert with functional B12 deficiency PA (non-autoimmune), and initially responded to 1ml B12 SI every other day. Then we...

So, I was diagnosed last year by a PA expert with functional B12 deficiency PA (...

Beccy_123

•1 year ago

26 Replies

mood swings/crying/anxiety hopelessness

hi I just started weekly injections last week 1000mcg at my gp. I am scheduled with a hematologist because my gp has very little knowledge of lack of b12 and...

hi I just started weekly injections last week 1000mcg at my gp. I am scheduled w...

Asb2

•1 year ago

5 Replies

“You are what you eat” … unless you have PA

watching this programme … through a different lens now I know I have PA. I always cooked from scratch, ate lots of fresh fruit and veg and different grains,...

watching this programme … through a different lens now I know I have PA. I al...

Wwwdot

•1 year ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2023

Advice please so confused

Ileum vs Terminal Ileum

B12 Deficiency Quiz

Not tolerating hydroxycobalamin lozenges

Gut is now at metaplasia stage and it's irreversible. Need advice, friends.

difference between micro and macro nutrients? Any ideas ?

many thanks to forum for information

cyanocobalamin vs methylcobalamin

B12 Active Test...and effect of B12 loading injections

HRT - decreases B12 levels?

Hevert

Self-injecting 2 ml EOD.

Some support please

Does the liver store B12 after loading?

Television

B12 ampules left outside.

nerve damage?

Impact on relationships

Relationship between B12 deficiency and certain ADHD symptoms

itchy rash with the methylcobalamin

Swoping from SI using Hydroxocobalamin to Cyanocobalamin

Frightening example of Doctors attitude towards B12D.

Itchy skin with no rash

GP gave me prescription of B12 despite range at > 2000!

B12 Conference Netherlands June 2023

cobalamin v methylcobalamin sublinguals

Which needles should I use?

Maybe I have more than PA...

mood swings/crying/anxiety hopelessness

“You are what you eat” … unless you have PA

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive