Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,197 members • 23,368 posts

All posts for June 2024

Can't use Panpharma 😫

Although I'm prescribed B12 ampoules via my gp, I can only use certain brands without agonising stinging and burning. My local pharmacy hasn't been able to...

Although I'm prescribed B12 ampoules via my gp, I can only use certain brands wi...

Myoldcat

•3 hours ago

6 Replies

Bit of a success with frequency of B12 injections

Hi, I just wanted to share a bit of a positive experience. I had about a year long history of feeling jittery, bit light headed, palpitations, classic anxiety...

Hi, I just wanted to share a bit of a positive experience. I had about a year lo...

Charlie2024

•16 hours ago

16 Replies

B12 injections causing rebound effect?

Hi there, I'm wondering if any of you have experienced this... I've noticed over the years that (yep, YEARS!), after I get my monthly B12 injection...

Hi there, I'm wondering if any of you have experienced this... I've noticed ove...

annagaia06

•19 hours ago

5 Replies

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Parkinsons

Hello My dad has parkinsons and I have read that most patients with a parkinsons diagnosis have low b12. My dad has been taking cyanocobalamin for years so he...

Hello My dad has parkinsons and I have read that most patients with a parkinsons...

RedOne1

•21 hours ago

2 Replies

Apple pectin

Has anyone tried this?

Nackapan

•1 day ago

9 Replies

at last

more than 12 months several trips to neurologist, scans and blood tests I’ve now been put back on B12 injections (on the advice of the neurologist to the GP...

more than 12 months several trips to neurologist, scans and blood tests I’ve now...

Imcn1960

•2 days ago

5 Replies

Does any1 know if immunoglobulin treatment inhosp for someone recently diagnosed peripheral neuropathy/lots infections linked tob12inanyway?

Hi, I'm not sure of all the facts but wonder if anyone can help advise please? it's a family member of a family member. He has been in and out of hosp this...

Hi, I'm not sure of all the facts but wonder if anyone can help advise please? i...

Jo5454

•2 days ago

1 Reply

Wondering if iron dose age should vary depending on weight please?

Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if this should vary depending on weight please as when I was ordering Three Arrows...

Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if t...

Jo5454

•2 days ago

5 Replies

Hearing and PA

Hi PA experts. I’m looking into links between sudden hearing loss in an ear, tinnitus and PA. There are many posts on ear pain but does anyone know a link...

Hi PA experts. I’m looking into links between sudden hearing loss in an ear, t...

PAapr22

•2 days ago

15 Replies

Monitoring

Hello everyone Its been a while since i've been on this forum so apologies if this is a common question or if it has been asked recently but I'll make it...

Hello everyone Its been a while since i've been on this forum so apologies if t...

Davy28

•2 days ago

4 Replies

Saw Dr Klein at the Cambridge blood clinic.

So I finally saw Dr Klein, He says 100% I have pernicious anaemia and it’s quite bad. I have to inject ever other day for a year. Apparently my folate and...

So I finally saw Dr Klein, He says 100% I have pernicious anaemia and it’s qui...

Gobbozoid

•3 days ago

31 Replies

B12 shots with folic acid

So, I was diagnosed with b12 and folic acid defficiency due to a bowel resection I had. GP has put me on 12 weekly Hydroxocobalamin 1mg IM injections as well...

So, I was diagnosed with b12 and folic acid defficiency due to a bowel resection...

Jimboz

•3 days ago

7 Replies

Advice on B12 injections

Hello :) I’ve not used this before, so hoping I’m writing in the right place! A couple of years ago my B12 was lowish at 160 - and the Dr advised that I...

Hello :) I’ve not used this before, so hoping I’m writing in the right place! ...

olive1010101

•3 days ago

9 Replies

My symptoms seem to be getting worse

I have had PA for years, it was discovered because I had a mini stroke at 34. Once discovered I was put on B12 injections. After some time my energy came...

I have had PA for years, it was discovered because I had a mini stroke at 34. O...

outlander28

•4 days ago

7 Replies

Humira side effects?!

so as anyone who has read up any of my posts I’ve got frequent urination with blood and bladder pain. Now I’ve been telling my rheumatologist every time I...

so as anyone who has read up any of my posts I’ve got frequent urination with bl...

Gobbozoid

•4 days ago

3 Replies

Frequent urination after injections

Just wondering...I have recently been increasing my injections from 1 monthly, to 2 weekly and now to one weekly. I have noticed with this increase that the...

Just wondering...I have recently been increasing my injections from 1 monthly, t...

EiCa

•4 days ago

4 Replies

needle sizes

Hello, I’m currently using BD MICROLANCE 3 NEEDLES BLUE 23G X 1" to SI into my thigh, at the Doctors they use an orange needle. Which is best for the least...

Hello, I’m currently using BD MICROLANCE 3 NEEDLES BLUE 23G X 1" to SI into my t...

FlorencePocket-Owl

•4 days ago

10 Replies

B12 and piece of mind. Coming to terms with being sick.

Every time I feel I am dealing with this, something troubles me. As well as low B12 I seem to have had cystitis again recently and am antibiotics, I can’t...

Every time I feel I am dealing with this, something troubles me. As well as low ...

Gobbozoid

•4 days ago

11 Replies

Arthritis and P.A

Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid...

Today the g.p. has told me that the mri I had shows arthritis in my upper back a...

Suesue246

•5 days ago

20 Replies

Abdominal Cutaneous Nerve Entrapment

I have been suffering with bloating, nausea and burning pain from my hip down to my groin, and across my abdomen for over two years. I have seen many...

I have been suffering with bloating, nausea and burning pain from my hip down to...

Chickens44

•5 days ago

4 Replies

New concept

At least to me. I wanted to do a trial of Folic Acid and knew it might be impossible to evaluate the effects as it is summer and I am able to improve by what...

At least to me. I wanted to do a trial of Folic Acid and knew it might be impo...

WIZARD6787

•5 days ago

2 Replies

Anxiety and panic attacks

Hello, I am a newbie... I have been SI every other day for 6 weeks. I had increased anxiety and a panic attack after my last couple of injections so have...

Hello, I am a newbie... I have been SI every other day for 6 weeks. I had in...

Krysagnes

•5 days ago

29 Replies

Too much b12?

As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in...

As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wk...

Palum

•5 days ago

9 Replies

Methyl ampoules shipment in hot weather

Hi, I ordered Methylcobalamin from Arnika in Germany and they said that it will be shipped next week. According to the weather report it will be around +30...

Hi, I ordered Methylcobalamin from Arnika in Germany and they said that it will ...

olga67

•6 days ago

8 Replies

Wondering about the possibility of Pernicious Anaemia?

Hello everyone, My B12 is historically low normal and one of my GP’s thinks it could be due to a fast metabolism. However, my mind wont let it rest and some...

Hello everyone, My B12 is historically low normal and one of my GP’s thinks i...

Owl84

•7 days ago

32 Replies

Lump after jab.........

Good morning everyone I have eventually purchased B12 and all the required stuff to SI.......Been having jabs every 8 weeks since 2016..........Going to start...

Good morning everyone I have eventually purchased B12 and all the required stuf...

edeuweed

•7 days ago

21 Replies

Pins and needles in back

Just wanting to see if anyone else has experienced pins and needles in there back? It comes and goes just not sure if it's normal in the back as everything...

Just wanting to see if anyone else has experienced pins and needles in there bac...

gemmacampbell

•8 days ago

4 Replies

Sleep issues and melatonin

Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain...

Hi everyone, has anyone sound information regarding the use of melatonin with au...

Helliborous

•8 days ago

22 Replies

Update on ferritin testing issue - private vs. NHS results

Hi everyone. Posting as a new post, rather than add to the long thread on my previous post....

Hi everyone. Posting as a new post, rather than add to the long thread on my pr...

KBird01

•8 days ago

2 Replies

scared again. Blood in urine.

So I’ve previously had blood in urine, and urination issues non stop since that time. Approximately 3-4 years ago. I was peeing loads and had sensitive...

So I’ve previously had blood in urine, and urination issues non stop since that...

Gobbozoid

•8 days ago

23 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2024

Can't use Panpharma 😫

Bit of a success with frequency of B12 injections

B12 injections causing rebound effect?

Parkinsons

Apple pectin

at last

Does any1 know if immunoglobulin treatment inhosp for someone recently diagnosed peripheral neuropathy/lots infections linked tob12inanyway?

Wondering if iron dose age should vary depending on weight please?

Hearing and PA

Monitoring

Saw Dr Klein at the Cambridge blood clinic.

B12 shots with folic acid

Advice on B12 injections

My symptoms seem to be getting worse

Humira side effects?!

Frequent urination after injections

needle sizes

B12 and piece of mind. Coming to terms with being sick.

Arthritis and P.A

Abdominal Cutaneous Nerve Entrapment

New concept

Anxiety and panic attacks

Too much b12?

Methyl ampoules shipment in hot weather

Wondering about the possibility of Pernicious Anaemia?

Lump after jab.........

Pins and needles in back

Sleep issues and melatonin

Update on ferritin testing issue - private vs. NHS results

scared again. Blood in urine.

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