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Pernicious Anaemia Society

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All posts for June 2020

Autoimmune gastric

Went to same day clinic today because top of my stomach was hurting when I push down on it she prescribed me omeprazole. First time feeling this .

Went to same day clinic today because top of my stomach was hurting when I push ...

Honey1978

•4 years ago

6 Replies

Gp surgeries

I am so sad - I have been a nurse and highly trained now for 46 years , I’ve had PA , with lack of intrinsic and malabsorption, I have fibromyalgia, iron...

I am so sad - I have been a nurse and highly trained now for 46 years , I’ve had...

Frenchiebabe

•4 years ago

54 Replies

New to group

Hi All I’m hoping to see if any of you lovely people have advice on help with my running, I have to have B12 injections every 3 months as my intrinsic was...

Hi All I’m hoping to see if any of you lovely people have advice on help with my...

Eleek59299

•4 years ago

6 Replies

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Active B12 of 31.5, folate of 1.72 - missing periods?

Hi Everyone, I’d really appreciate help with my friend’s daughter’s blood results please. Her main symptoms are being more tired than usual, some...

Hi Everyone, I’d really appreciate help with my friend’s daughter’s blood result...

Lesleyg13

•4 years ago

9 Replies

Feedback re advice to not self inject posted yesterday

Hello all Regarding my endo advice not to self inject explained to me today is that he is concerned about risk of infection. He advised me today to carry on...

Hello all Regarding my endo advice not to self inject explained to me today is ...

smilingjane

•4 years ago

17 Replies

Autoimmune gastric

Yesterday I ate cake like two slices and peanut paddy different times of the day and I took my vitamin d2 my doctor prescribe I took them in may but ran out so...

Yesterday I ate cake like two slices and peanut paddy different times of the day...

Honey1978

•4 years ago

4 Replies

B12 and acne

So im sure this question has been asked many times before ☺️ Any advice would be greatly appriciated. I self inject, ideally i need an injection every 3-4...

So im sure this question has been asked many times before ☺️ Any advice would be...

Zc66

•4 years ago

21 Replies

Day after B12 injection

I’ve recently had a b12 injection at my docs and the following day I felt absolutely knackered. Heavy hot feet, no energy. The nurse always asks me if I get...

I’ve recently had a b12 injection at my docs and the following day I felt absolu...

Hidden

•4 years ago

42 Replies

Addisons disease

I’ve just had my urine cortisol test results back they’ve said contact my gp ASAP as it’s suggestive of Addisons. Results 39 nmol Range 55-138 nmol Again I’ve...

I’ve just had my urine cortisol test results back they’ve said contact my gp AS...

Hidden

•4 years ago

31 Replies

Possible B12 deficiency, looking for recommended test list before B12 shot

I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but...

I ran across someone posting on Reddit who has symptoms that might be from B12 d...

genesurf

•4 years ago

16 Replies

Self injecting. No problem

Hi, I was diagnosed with PA in 2000 using the schilling test. For the past year my Dr. Keeps wanting to stop, or reduce the injections. Since the covid 19 they...

Hi, I was diagnosed with PA in 2000 using the schilling test. For the past year ...

Tonyworks

•4 years ago

16 Replies

Self injecting B12 HI everyone

I have a query. I was recently diagnosed with low B12 and prescribed B12 jabs. As they are only 3 monthly, (after the loading doses), i decided to self inject...

I have a query. I was recently diagnosed with low B12 and prescribed B12 jabs. A...

smilingjane

•4 years ago

24 Replies

low hemoglobin and red blood counts

Came across this forum as I was looking for some answers to a variety of symptoms I have been experiencing for some time. I have had below normal red blood...

Came across this forum as I was looking for some answers to a variety of symptom...

ENG76

•4 years ago

17 Replies

Private Intrinsic Factor Testing recommendations

Could anyone recommend a company for IFAB testing please? I've been looking all day, I can only find Medichecks.

Could anyone recommend a company for IFAB testing please? I've been looking all ...

Bunny12345678

•4 years ago

3 Replies

My neuropathy has decreased that It's barley noticeable at times. Stress and inactivity increases it though.

Why? I don't know. I might to start to believe a 100% recovery might be around the corner somewhere. Some changes I've made though, I've increased my...

Why? I don't know. I might to start to believe a 100% recovery might be around...

Geckowacko

•4 years ago

11 Replies

Probably a Dumb Question

I recently read that individuals who have type A blood appear to have a worse reaction to Covid 19 infections. So, because I have type A blood, I started...

I recently read that individuals who have type A blood appear to have a worse re...

MoKayD

•4 years ago

9 Replies

Y

What cause lightheaded

Honey1978

•4 years ago

6 Replies

B12 - Teenager

Hi All Does anyone have any knowledge of B12 levels for teenagers and of possible PA? My daughter has been displaying some symptoms, exhaustion upon exercise...

Hi All Does anyone have any knowledge of B12 levels for teenagers and of possibl...

High_Valour

•4 years ago

4 Replies

My experience with PA and Covid-19

Hello, I am 20 years old and I recently contracted covid-19 and I also have pernicious anemia. I have been treating my pernicious anemia for 6 months. My...

Hello, I am 20 years old and I recently contracted covid-19 and I also have pern...

Dakota17777

•4 years ago

10 Replies

Blood tests advice please

Can anyone advise me please as to if they think I need hydroxycobalamin injections or oral supplement please? I have a lot of symptoms and have been off work...

Can anyone advise me please as to if they think I need hydroxycobalamin injectio...

Bunny12345678

•4 years ago

5 Replies

Rib pain

Does anyone experience rib pain at all? I've had this a while, it comes and goes but when it hurts it feels like my bottom ribs are bruised, doesn't hurt...

Does anyone experience rib pain at all? I've had this a while, it comes and goes...

Clare184

•4 years ago

11 Replies

Getting Blood Test done !

Since Lockdown it has become impossible to get a Blood Test done in Havering - Is it same in any other health authorities in England ?

Since Lockdown it has become impossible to get a Blood Test done in Havering - I...

baboigeorge83

•4 years ago

20 Replies

Can B12 lozenges lose potency?

After blood tests revealed a severe B12 deficiency last year, I started taking B12 sublingual lozenges. I've been taking one a day (Seeking Health Hydroxo B12...

After blood tests revealed a severe B12 deficiency last year, I started taking B...

tinyelephant

•4 years ago

2 Replies

Lightheaded

Don’t no why I’m lightheaded I take b12 and iron but I haven’t had my blood check sense this virus

Don’t no why I’m lightheaded I take b12 and iron but I haven’t had my blood chec...

Honey1978

•4 years ago

2 Replies

Will I get better?

When or will I see improvements? Diagnosed june 2020 with PA but suffering since feb 2018. Concentration gone, memory gone, time goes fast, brain fog,......

When or will I see improvements? Diagnosed june 2020 with PA but suffering sinc...

PhilAB

•4 years ago

14 Replies

High B12 serum, Medichecks result active confusing.

Hi, I'm hoping someone might be able to help me. My husband has been ill for past year, worse since lockdown started. He has slept 18+ hours every day, has...

Hi, I'm hoping someone might be able to help me. My husband has been ill for pas...

sid3108

•4 years ago

28 Replies

injections,methylcobalamin drops v cyanocobalamin ?

As happening to many other people.gp has informed me that injections have stopped and gave me a prescription for 50ug 3 times daily cyanocobalamin tablets.at...

As happening to many other people.gp has informed me that injections have stoppe...

Mollieharry

•4 years ago

13 Replies

Caution!!!!!!

CyanocoMinn - when the Doctor stoped my B12 Injection I was put on these . I have been taking them for 2 months I stopped taking them yesterday.. my pins and...

CyanocoMinn - when the Doctor stoped my B12 Injection I was put on these . I hav...

Airtime2020

•4 years ago

11 Replies

B12 injections £27 in Chester Manchester surrounding areas

I don't know if I'm allowed posting this or Please remove if not allowed my little pharmacist sent me this link to get B12 but is in Chester Manchester...

I don't know if I'm allowed posting this or Please remove if not allowed my l...

Pascha1

•4 years ago

25 Replies

Care Opinion website

Hi, This is a feedback website where people can comment on the care they have received anonymously. https://www.careopinion.org.uk/info/about I saw it...

Hi, This is a feedback website where people can comment on the care they have re...

Sleepybunny

•4 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2020

Autoimmune gastric

Gp surgeries

New to group

Active B12 of 31.5, folate of 1.72 - missing periods?

Feedback re advice to not self inject posted yesterday

Autoimmune gastric

B12 and acne

Day after B12 injection

Addisons disease

Possible B12 deficiency, looking for recommended test list before B12 shot

Self injecting. No problem

Self injecting B12 HI everyone

low hemoglobin and red blood counts

Private Intrinsic Factor Testing recommendations

My neuropathy has decreased that It's barley noticeable at times. Stress and inactivity increases it though.

Probably a Dumb Question

Y

B12 - Teenager

My experience with PA and Covid-19

Blood tests advice please

Rib pain

Getting Blood Test done !

Can B12 lozenges lose potency?

Lightheaded

Will I get better?

High B12 serum, Medichecks result active confusing.

injections,methylcobalamin drops v cyanocobalamin ?

Caution!!!!!!

B12 injections £27 in Chester Manchester surrounding areas

Care Opinion website

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive