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Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for July 2019

Swollen lymph node behind my ear since I found out I’ve pernicious anaemia ?

Hi, I was diagnosed with pernicious anaemia over a year ago. I also have grade b oseophagitis which causes me really bad heart burn and I’ve never actually...

Hi, I was diagnosed with pernicious anaemia over a year ago. I also have grade b...

Meganmc12345

•5 years ago

2 Replies

Suitable medication for diabetes

In February my HbA1c reading was 41. Last week in hospital A&E it was 53. I understand that below 41 is okay; 42 to 47 is pre-diabetes; 48 and above is...

In February my HbA1c reading was 41. Last week in hospital A&E it was 53. I ...

Cetus

•5 years ago

10 Replies

Decreasing b12

Hi everyone, Diagnosed with hypothyroidism in April and my B12 has been going lower on each blood test despite no change in diet, I’m wondering if anyone...

Hi everyone, Diagnosed with hypothyroidism in April and my B12 has been going ...

ML44

•5 years ago

5 Replies

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Daily b12 injections

Hi all..Iv posted a while back on b12... I have a family history of pernicious anaemia and Multiple sclerosis....both have very similar symptoms and...

Hi all..Iv posted a while back on b12... I have a family history of pernicious a...

Margomck32

•5 years ago

6 Replies

B9 Folic acid

Hi All From reading blogs on the site, I understand that b12, b9 and iron have to be in balance with intrinsic factor to enable b12 to be absorbed in the...

Hi All From reading blogs on the site, I understand that b12, b9 and iron have t...

Alfabeta

•5 years ago

1 Reply

Struggling with air bubbles in syringe - self injecting

Hi everyone I am trying to self inject but I am really struggling with getting what I think are air bubbles out of the syringe. I have tried twice and both...

Hi everyone I am trying to self inject but I am really struggling with getting ...

liaratsoni

•5 years ago

13 Replies

Tremors and b12

How do I stop tremors from this deficiency I’m so tired n scared of tremors...is there any medication for tremors? Im on weekly shots ,tremors r reduced but...

How do I stop tremors from this deficiency I’m so tired n scared of tremors...is...

Gunj_redjem

•5 years ago

15 Replies

Symptoms come and go

Does anyone have symptoms that come and go. One day better than another? Not started b12 I. M. yet.

Does anyone have symptoms that come and go. One day better than another? Not st...

Damseltree

•5 years ago

4 Replies

Need help getting Cyanocobalamin Injections outside of the USA

Hello, I live in the USA, and having a difficult time finding a website to order Cyanocobalamin online. I no longer have health insurance, and I haven't had...

Hello, I live in the USA, and having a difficult time finding a website to order...

Hidden

•5 years ago

8 Replies

3 Month Update. Input Requested

Hey everyone, So this post is a 3 month look back since my b12 deficiency diagnosis/treatment and to go over any progress made. I have plenty of questions so...

Hey everyone, So this post is a 3 month look back since my b12 deficiency diag...

lownskater52

•5 years ago

11 Replies

What next/ question for those with AIAG/ PA

I will try and mot blow up the feed pf this group, thank you for answering my questions. For those with both Autoimmune Gastritis and PA, what do you do to...

I will try and mot blow up the feed pf this group, thank you for answering my qu...

JennaShi

•5 years ago

7 Replies

Why symptoms recur

Why do symptoms return back some days.. can we be symptom free ever? Can we live a normal life ever.. especially in the morning enery goes v down and symptoms...

Why do symptoms return back some days.. can we be symptom free ever? Can we live...

Gunj_redjem

•5 years ago

61 Replies

Autoimmune atrophic gastritis vitamin deficiencies

Is it common to have multiple vitamin deficiencies with atrophic gastritis? I have struggled with my stomach since I was a child. If I wait too long before...

Is it common to have multiple vitamin deficiencies with atrophic gastritis? I ha...

Hidden

•5 years ago

1 Reply

Sticky Hughes and PA?

Do you any of you have a diagnosis of Anti phospholipid syndrome/ Sticky Hughes along side of PA?

Do you any of you have a diagnosis of Anti phospholipid syndrome/ Sticky Hughes ...

JennaShi

•5 years ago

6 Replies

B12 and teeth/gum issues?

Hi folks, Wondering if anyones experienced any issues with teeth/gums with there B12 deficiency? Around the time of my diagnosis I had a horrible gum infection...

Hi folks, Wondering if anyones experienced any issues with teeth/gums with there...

AmHW

•5 years ago

12 Replies

Gabapentin for nerve pain

Hi folks! Still fighting the good fight and trying to get appropriate treatment for my other half who has a B12 deficiency that had obviously been going on for...

Hi folks! Still fighting the good fight and trying to get appropriate treatment ...

Kaylz1985

•5 years ago

4 Replies

B12 working

Can people tell me how their b12 is working for them ?

Scothyroidy

•5 years ago

9 Replies

Vitamin D

Hi all, I wrote a few days ago regarding a possible B12 deficiancy. I recieved some really useful information on here and although i have not recieved an...

Hi all, I wrote a few days ago regarding a possible B12 deficiancy. I recieved s...

Aly2

•5 years ago

50 Replies

Is it reversible?

I have had serious brain damage in 2018.. since then I have been taking hydroxocobalamin injections my neuro said u must b fine till now as b12 deficiency is...

I have had serious brain damage in 2018.. since then I have been taking hydroxo...

Gunj_redjem

•5 years ago

27 Replies

2ml Articlox hurts

I've been SI for almost a year now with Hydroxocobalamin 1mg in 1ml from Mycare.de and have found the process to be easy and pain free. On a recent trip to...

I've been SI for almost a year now with Hydroxocobalamin 1mg in 1ml from Mycare...

Portia1974

•5 years ago

7 Replies

Hyperventilating, anxiety and panic attacks?

Hi, new here but not new to PA. I've had PA since I was 15 (now 36) when I had a large part of my intestine removed which included the section that deals with...

Hi, new here but not new to PA. I've had PA since I was 15 (now 36) when I had a...

ItsJustMee

•5 years ago

8 Replies

Advise b12

Hi guys so advise going to see a haematologist tomorrow with my daughter we r in Uk, my daughter has been having injections for the last two years every 6...

Hi guys so advise going to see a haematologist tomorrow with my daughter we r in...

sonnyjoe1

•5 years ago

18 Replies

B Complex

I have PA and B12 deficient. I have injections at the docs monthly. I am still constantly tired, hair falling out and now my finger nails are separating...

I have PA and B12 deficient. I have injections at the docs monthly. I am sti...

laineyeo1

•5 years ago

3 Replies

Recurring B12 symptoms

About three weeks ago my doctor decided to switch from my weekly injection to monthly. I made it about 10 days before I could start to feel the symptoms...

About three weeks ago my doctor decided to switch from my weekly injection to mo...

HBerry

•5 years ago

6 Replies

At my wits end

I really need to get this off my chest after years of suffering in silence. It has got to the point where I can't cope with my illness anymore. I'm terrified...

I really need to get this off my chest after years of suffering in silence. It h...

dunc01977

•5 years ago

22 Replies

Inquiry Clear Sky Pharmacy and Nurokind Methylcobalamin

Hello, Kind of new to the world of PA/B12d (just diagnosed recently with PA). Am in the US and currently on compounded methylcobalamin for IM injection which...

Hello, Kind of new to the world of PA/B12d (just diagnosed recently with PA). A...

AmbersMom

•5 years ago

5 Replies

Anyone injecting B12 EOD or even ED? Any feedback?

Anyone injecting B12 EOD or even ED? Any feedback? Hi everyone, I posted awhile ago and was told by my doctor to inject once every month but that did not work...

Anyone injecting B12 EOD or even ED? Any feedback? Hi everyone, I posted awhile ...

bulgariansmurf

•5 years ago

17 Replies

Versandapo.de current expiry date of B12?

has any one ordered B12 from Vesandapo.de recently - what expiry date?

surv55

•5 years ago

5 Replies

3 in the household with Pernicious Anaemia looking to try Methylcobalamin - assistance please

We all have Pernicious Anaemia (amongst many autoimmune conditions & specialist has recommended trying Methylocbalamin . Does anyone have any advice on where...

We all have Pernicious Anaemia (amongst many autoimmune conditions & specialist ...

Swanagegirl

•5 years ago

13 Replies

What is an active blood test.

Belsfield

•5 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2019

Swollen lymph node behind my ear since I found out I’ve pernicious anaemia ?

Suitable medication for diabetes

Decreasing b12

Daily b12 injections

B9 Folic acid

Struggling with air bubbles in syringe - self injecting

Tremors and b12

Symptoms come and go

Need help getting Cyanocobalamin Injections outside of the USA

3 Month Update. Input Requested

What next/ question for those with AIAG/ PA

Why symptoms recur

Autoimmune atrophic gastritis vitamin deficiencies

Sticky Hughes and PA?

B12 and teeth/gum issues?

Gabapentin for nerve pain

B12 working

Vitamin D

Is it reversible?

2ml Articlox hurts

Hyperventilating, anxiety and panic attacks?

Advise b12

B Complex

Recurring B12 symptoms

At my wits end

Inquiry Clear Sky Pharmacy and Nurokind Methylcobalamin

Anyone injecting B12 EOD or even ED? Any feedback?

Versandapo.de current expiry date of B12?

3 in the household with Pernicious Anaemia looking to try Methylcobalamin - assistance please

What is an active blood test.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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