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Pernicious Anaemia Society

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All posts for September 2021

What type of injection in NICE guideline is defined for PA or b12 deficiency SC or IM?

After couple if months injection I feel my body is more tolerable to injection and I feel no burning feet and severe dizziness like before. But I have panic...

After couple if months injection I feel my body is more tolerable to injection a...

Hamayeshguy

•3 years ago

2 Replies

Folate deficiency - inherited ?

I have folate deficiency anaemia, all the time unless I take folate. Fatigue/exhaustion. My grandad had pernicious anaemia and thyroid bless him. I wonder if...

I have folate deficiency anaemia, all the time unless I take folate. Fatigue/exh...

Catlover46

•3 years ago

1 Reply

Extra B12 needed post vaccination?

Last weekend I received my 3rd COVID and Flu vaccines. I had no after affects, however am experiencing symptoms that I need my B12 now. I usually SI every...

Last weekend I received my 3rd COVID and Flu vaccines. I had no after affects, h...

Baggy8

•3 years ago

12 Replies

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I must be going mad!

Hi, a quick recap as I've posted on here about this before, I was told I had PA by a doctor at my local surgery, I went onto have B12 injections for over two...

Hi, a quick recap as I've posted on here about this before, I was told I had PA...

Mewsmom

•3 years ago

27 Replies

News article

Daily mail today... you really can age overnight... from a lack of b12.

Hidden

•3 years ago

2 Replies

Help please

Hi. I recently had B12 result of 189 (180-700 range). I have tingly feet and hands, Tiredness, visual disturbance and muscle aches. My father and brother...

Hi. I recently had B12 result of 189 (180-700 range). I have tingly feet and ha...

Lunadoo

•3 years ago

2 Replies

Suggestions for B12 regime

Recent blood test shows >1500 b12 (from 11 in Feb) folate 12.4 (6 in Feb) all symtoms have gone. Currently SI once a week with 12 weekly at Drs. Dropped from...

Recent blood test shows >1500 b12 (from 11 in Feb) folate 12.4 (6 in Feb) all sy...

LJH50

•3 years ago

5 Replies

No loading doses in Australia?

Hi everyone, I live in Australia, I was diagnosed with PA in late 2019 and I've never received loading doses. For the first half of this year I was getting...

Hi everyone, I live in Australia, I was diagnosed with PA in late 2019 and I've...

greenscarf

•3 years ago

20 Replies

Iron deficiency anemia yes or no??

Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been...

Hi there, I’ve just been reading some of the above posts and wondered if you co...

Onedge

•3 years ago

28 Replies

Results

Hi I have had results come through for a series of tests I had done recently, see below. Can you let me know what this group thinks of them? I will post the...

Hi I have had results come through for a series of tests I had done recently, se...

Pixelchic

•3 years ago

3 Replies

Feel dreadful and fearful

I'm due to have my 6th loading dose of B12 tomorrow. Yesterday I really thought things were improving and I had a good active and e energised day. Today I feel...

I'm due to have my 6th loading dose of B12 tomorrow. Yesterday I really thought ...

Lenny17

•3 years ago

43 Replies

Feeling deflated.

I have been trying to loose weight and feel like I'm getting no where. I was wondering if anyone else with pernicious anaemia struggles to loose weight? I...

I have been trying to loose weight and feel like I'm getting no where. I was won...

Lj1115

•3 years ago

2 Replies

Hyperreflexia

I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level...

I would love to hear others' experience with hyperreflexia as result of PA. I ha...

Bellmore2089

•3 years ago

4 Replies

Active B12 results & pregnancy

Hi all, I’ve been receiving b12 injections every 8 weeks for the last 6 years and throughout my pregnancy (currently 35wks). I’m under obstetrician care but...

Hi all, I’ve been receiving b12 injections every 8 weeks for the last 6 years an...

Gaia_

•3 years ago

12 Replies

Anyone else had good results with Tulsi holy basil for calming nerves

Just wanted to share with the PA family because I recently experienced good results with the Tulsi Holy basil . The anxiety attacks and irrabilty issues have...

Just wanted to share with the PA family because I recently experienced good res...

Hidden

•3 years ago

5 Replies

Side effects

I have had 4 weekly B12 injections and for past week or so my pins and needles have been almost completely gone. Now all of a sudden its started. We moved to...

I have had 4 weekly B12 injections and for past week or so my pins and needles h...

Greenkids

•3 years ago

4 Replies

Intrinsic factor test

Hello all. I have found a very reasonably priced intrinsic factor private lab test. Do I have to stop B12 injections before taking this test? I SI EOD which...

Hello all. I have found a very reasonably priced intrinsic factor private lab te...

WorkingProgress

•3 years ago

4 Replies

How to know B12 injection is absorbed completely in order to go for next injection?

I think urine discoloration is a good biomarker of B12 injection absorption. If you have any other experience please share with me

I think urine discoloration is a good biomarker of B12 injection absorption. If ...

Hamayeshguy

•3 years ago

21 Replies

Steroid injections?

Hi everyone, I’m due to get a steroid injection soon and just wondered as to wether these are ok to have with b12 deficiency? I was diagnosed the end of may so...

Hi everyone, I’m due to get a steroid injection soon and just wondered as to wet...

Vonnie-72

•3 years ago

4 Replies

Intrinsic factor and parietal cell antibody positive but MMA normal is it PA?

I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12...

I have intrinsic factor abs and anti parietal cells but methylmalonic acid level...

Aumshantii

•3 years ago

16 Replies

B12: 250... BUT MMA is ok.

Hello all, I recently posted in the Thyroid forum about neurological symptoms and the probably related B12 defficiency. Just received my new blood tests, and...

Hello all, I recently posted in the Thyroid forum about neurological symptoms a...

Alejandrita17

•3 years ago

8 Replies

Dry ears, eyes etc and Buckthorn Oil Capsules

I came across an article recently for dry eyes, ears etc. Has anyone taken Buckthorn Oil capsules for this? I have just purchased Omega7 which contains...

I came across an article recently for dry eyes, ears etc. Has anyone taken Buc...

Moggy1234

•3 years ago

23 Replies

Low active B12

Hi, JustReceived my results back from Thriva. My active B12 has dropped from 63 (May) to 45. Unfortunately because they have not recommended I check MMA, I am...

Hi, JustReceived my results back from Thriva. My active B12 has dropped from 63 ...

Pomart

•3 years ago

4 Replies

Dry eyes & Vitamin B12

Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: Vitamin B12 is a water-soluble...

Hi, I have just come across an article online which I thought may be of interest...

Moggy1234

•3 years ago

38 Replies

Self injecting Hydroxocobalamin subcutaneously

I originally planned to self inject Methylcobalamin subcutaneously, but I've been informed that the method/supply I was planning on using is not ideal. So -...

I originally planned to self inject Methylcobalamin subcutaneously, but I've bee...

fireflymairi

•3 years ago

13 Replies

Physio

Applied for physio four months ago on my shoulder and managed to get telephone conversation today. Very nice lady Went through history etc then last lot of...

Applied for physio four months ago on my shoulder and managed to get telephone c...

Hidden

•3 years ago

7 Replies

Last time I SI was 12 months ago

Long story short, was unwell around 2 years ago B12 serum 184 (not low GP said) started SI, got better, during this time saw neurologist diagnosed with...

Long story short, was unwell around 2 years ago B12 serum 184 (not low GP said) ...

Zc66

•3 years ago

7 Replies

Skin lesions/ infections

By mentioning my recent skin problems it appears to be more common than I thought. I didnt get problems apart from initial nasty spots with loading until...

By mentioning my recent skin problems it appears to be more common than I though...

Nackapan

•3 years ago

40 Replies

Anxiety and PA

Hi, I’m now at a loss with this condition because my original neurological signs have calmed down (twitching and tingling in legs/feet) but my anxiety levels...

Hi, I’m now at a loss with this condition because my original neurological sign...

User2020-1

•3 years ago

19 Replies

Help ordering

Hi, can anyone guide me through buying online from Germany from the uk?

123Murphy

•3 years ago

6 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2021

What type of injection in NICE guideline is defined for PA or b12 deficiency SC or IM?

Folate deficiency - inherited ?

Extra B12 needed post vaccination?

I must be going mad!

News article

Help please

Suggestions for B12 regime

No loading doses in Australia?

Iron deficiency anemia yes or no??

Results

Feel dreadful and fearful

Feeling deflated.

Hyperreflexia

Active B12 results & pregnancy

Anyone else had good results with Tulsi holy basil for calming nerves

Side effects

Intrinsic factor test

How to know B12 injection is absorbed completely in order to go for next injection?

Steroid injections?

Intrinsic factor and parietal cell antibody positive but MMA normal is it PA?

B12: 250... BUT MMA is ok.

Dry ears, eyes etc and Buckthorn Oil Capsules

Low active B12

Dry eyes & Vitamin B12

Self injecting Hydroxocobalamin subcutaneously

Physio

Last time I SI was 12 months ago

Skin lesions/ infections

Anxiety and PA

Help ordering

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive