Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for September 2019

Thyroid question

My TSH recently was 2.4... I've read some places that that can be classed as hypo? Maybe that could be linked with b12 / folate issues

My TSH recently was 2.4... I've read some places that that can be classed as hyp...

ktan49

•5 years ago

4 Replies

Supplements and exercise

Hi and thanks to all who responded to my first ever anywhere post yesterday. One recurring theme in your replies seems to be that I need to think about...

Hi and thanks to all who responded to my first ever anywhere post yesterday. One...

Embra-girl

•5 years ago

25 Replies

Prescribed Lansoprazole for stomach pain...wondering if I should take it?

Finally made an appointment to investigate long term stomach pain and diarrhoea, very thorough nurse practitioner prescribed Lansoprazole. Not realising its a...

Finally made an appointment to investigate long term stomach pain and diarrhoea,...

Wagonwheel

•5 years ago

21 Replies

Want to take advantage of all our features? Just log in!

one thing after another...

does anyone else with PA seem to have constant small health problems? I seem to lurch from one bug to another, it takes me ages to shake off a cold and as soon...

does anyone else with PA seem to have constant small health problems? I seem to ...

LadyBothwell

•5 years ago

15 Replies

Diet during treatment

I'm in the middle of my b12 injection treatment, having completed 7 daily injections and two injections once a week. I'm positive for intrinsic factor blocking...

I'm in the middle of my b12 injection treatment, having completed 7 daily inject...

CocoSimon

•5 years ago

3 Replies

How much vitamin K2 to take with 10 000iu D3 ?

I read on here a recommendation that if you’re taking 10,000iu of Vitamin D you should take 100mg of Vitamin K2. Is this the correct dosage of K2 or is it a...

I read on here a recommendation that if you’re taking 10,000iu of Vitamin D you ...

Ryaan

•5 years ago

5 Replies

Autoinjector devices

Can anyone recommend a device to help those who are needle phobic to self inject? Any suggestions about types and where to get them would be helpful.

Can anyone recommend a device to help those who are needle phobic to self inject...

Gillsie54

•5 years ago

5 Replies

B12 deficiency - struggling and confused

Hi, I've never posted on a forum in my life, so here goes. I'm 54 and live in the UK. I developed symptoms of weakness in my legs at the end of July 2019 at...

Hi, I've never posted on a forum in my life, so here goes. I'm 54 and live in th...

Embra-girl

•5 years ago

42 Replies

Burning mouth and psoriasis

Does anyone else have problems with burning mouth, peeling skin inside of mouth and lips? Also psoriasis which Doctor thinks could be caused by stress of...

Does anyone else have problems with burning mouth, peeling skin inside of mouth ...

Margaret-S

•5 years ago

6 Replies

Ordering B12 from Germany

I wonder if anyone can help me. I ordered the b12 ampoules about 3 months ago from versandapo.de and was able to get delivery to UK. I have been self...

I wonder if anyone can help me. I ordered the b12 ampoules about 3 months ago fr...

hjcohen

•5 years ago

8 Replies

New here, from the USA

Hello, I live in Arizona in the US. I have what seems like a rapidly growing number of diseases. Once they find one, they seem to stay. I was diagnosed with...

Hello, I live in Arizona in the US. I have what seems like a rapidly growing num...

AZnana

•5 years ago

10 Replies

Sainsbury’s mushrooms with Vit b12!!

Have you seen this? I thought only meat and a type of seaweed contained this vitamin.

Have you seen this? I thought only meat and a type of seaweed contained this vit...

Kazania

•5 years ago

16 Replies

B12 / folate

Hi all Apologies for the long post but here it goes Symptoms began roughly 13 months ago, initially some visual changes with short term memory but nothing...

Hi all Apologies for the long post but here it goes Symptoms began roughly 13 ...

ktan49

•5 years ago

24 Replies

PA and pregnancy

Hi all, I’m seeking advice on the likelihood of becoming pregnant with this condition. I’m still pretty young in my early 30s. My boyfriend and I are wanting...

Hi all, I’m seeking advice on the likelihood of becoming pregnant with this con...

yogamom1

•5 years ago

12 Replies

Low Haemoglobin

I have recently had FBC done and hb was 107 (lab. range 115.65-165) I have to have following tests done :- B12& Folate, Folate and Ferritin Does anyone know...

I have recently had FBC done and hb was 107 (lab. range 115.65-165) I have to h...

foxglove

•5 years ago

7 Replies

Blood results- tips to boost levels

I’m really sorry the vague blood test readings. I recently went to the GP who asked me to go for blood tests after I explained I’d been having some...

I’m really sorry the vague blood test readings. I recently went to the GP who as...

Mm109

•5 years ago

3 Replies

Requesting help with Folate questions.

Hi all I tried to post a long essay yesterday, but it didn't work. I have a history of stomach surgeries and anemia. The anemia got much worse after 2012...

Hi all I tried to post a long essay yesterday, but it didn't work. I have a his...

Sita505USA

•5 years ago

16 Replies

Pernicious Anaemia and Travel Insurance

Hi I was diagnosed in August and was wondering where the best place is to get travel insurance. I’ve contacted my current insurer , my bank Nationwide, and the...

Hi I was diagnosed in August and was wondering where the best place is to get tr...

Taffytyke

•5 years ago

13 Replies

I wouldn't walk 500 or more (lol,not)

Now I had a brief conversation with my doctor and I asked what was my b12 was sitting at and he said it was 500,which he said this is mid range,he said...

Now I had a brief conversation with my doctor and I asked what was my b12 was si...

Cb1963

•5 years ago

15 Replies

PA in children

Good morning! Just a curiosity really, I am diagnosed with PA and curently on a monthly injection with my GP (although i have to self inject after 2 weeks...

Good morning! Just a curiosity really, I am diagnosed with PA and curently on a ...

Gumball77

•5 years ago

7 Replies

Can GP stop injections when diagnosed with PA?

Diagnosed with PA, IF antibody. High B12 levels on blood tests mean GP is not allowing injections. I’m exhausted have been without since May. Have been...

Diagnosed with PA, IF antibody. High B12 levels on blood tests mean GP is not a...

Jc78

•5 years ago

7 Replies

Are there any medical guidelines specifically relating to treatment for functional B12 deficiency?

It seems that my NHS injections (1 every 2 months) are primarily being stopped because I am self-injecting every other day -and so once knowing this, they...

It seems that my NHS injections (1 every 2 months) are primarily being stopped b...

Cherylclaire

Forum Support•5 years ago

24 Replies

How long after stopping injections do symptoms return?

Sorry I've been such a pest lately, but I'm sort of at a precipice here. Per my other recent posts, I have temporarily stopped injections in attempting to...

Sorry I've been such a pest lately, but I'm sort of at a precipice here. Per my ...

AirAl

•5 years ago

10 Replies

Best Price for B12

Hi there, Was wondering if anyone know's who is doing the best deal on B12 Ampules at the moment? I do buy in bulk and am running low so need to stock up and...

Hi there, Was wondering if anyone know's who is doing the best deal on B12 Ampul...

Catsgalour

•5 years ago

7 Replies

Snapping top of vial

I have arthritis in my hands and have trouble snapping top of vial any tips would be felpful

I have arthritis in my hands and have trouble snapping top of vial any tips woul...

wagthedog

•5 years ago

4 Replies

dry eyes

DRY eyes,I have been using Systane gel drops to get my eyes to stop watering,how long before they get better,i have used them for 3 days,and they seem better.

DRY eyes,I have been using Systane gel drops to get my eyes to stop watering,how...

davidleigh

•5 years ago

3 Replies

Talk about confused 😕

Sory, I seem to have set up two accounts in error and actually replied to myself!

Sory, I seem to have set up two accounts in error and actually replied to myself...

Awakeshattered

•5 years ago

6 Replies

Tired after injection

I was just diagnosed with Pernicious Anemia in March of this year. I am on a once a week b12 injection. But I am usually so tired the day after each shot that...

I was just diagnosed with Pernicious Anemia in March of this year. I am on a onc...

Themaid

•5 years ago

4 Replies

Advice required please re Active B12 level

Hi I have popped over from the Thyroid Forum. I have had my thyroid levels checked recently through Medichecks along with my Active B12 Vitamin B12 - Active...

Hi I have popped over from the Thyroid Forum. I have had my thyroid levels check...

lucylocks

•5 years ago

6 Replies

Question about Potassium

Hi, can someone give me the low down on potassium, I have researched to the n'th degree but am getting so many conflicting results. I self inject B12 every...

Hi, can someone give me the low down on potassium, I have researched to the n'th...

miravet

•5 years ago

17 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2019

Thyroid question

Supplements and exercise

Prescribed Lansoprazole for stomach pain...wondering if I should take it?

one thing after another...

Diet during treatment

How much vitamin K2 to take with 10 000iu D3 ?

Autoinjector devices

B12 deficiency - struggling and confused

Burning mouth and psoriasis

Ordering B12 from Germany

New here, from the USA

Sainsbury’s mushrooms with Vit b12!!

B12 / folate

PA and pregnancy

Low Haemoglobin

Blood results- tips to boost levels

Requesting help with Folate questions.

Pernicious Anaemia and Travel Insurance

I wouldn't walk 500 or more (lol,not)

PA in children

Can GP stop injections when diagnosed with PA?

Are there any medical guidelines specifically relating to treatment for functional B12 deficiency?

How long after stopping injections do symptoms return?

Best Price for B12

Snapping top of vial

dry eyes

Talk about confused 😕

Tired after injection

Advice required please re Active B12 level

Question about Potassium

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive