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Pernicious Anaemia Society

33,312 members•24,544 posts

All posts for April 2015

Intrinsic Factor and Parietel cells been refused b12

My results came back negative (although they wouldn't let me have the ref ranges again) and so the GP surgery won't let me have b12 injections despite having...

My results came back negative (although they wouldn't let me have the ref ranges...

Carlygeorge

•10 years ago

8 Replies

Dementia Prevention - B Vitamins and Omega 3

http://www.express.co.uk/life-style/health/385884/Supplements-halt-Alzheimer-s-groundbreaking-dementia-prevention-treatment "The groundbreaking two-year...

http://www.express.co.uk/life-style/health/385884/Supplements-halt-Alzheimer-s-g...

Polaris

•10 years ago

10 Replies

I Choose Hydroxycobalamin Not Cyanocobalamin Delighted To Be Feeling Well Again.

Hi all, I just wanted to share with you my dramatic improvement returning to Hydroxycobalamin. I was diagnosed with Pernicious Anaemia 10 years ago and...

Hi all, I just wanted to share with you my dramatic improvement returning to H...

AutoimmuneAnnie

•10 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Symptoms?

Hi, does anyone suffer from pitting edema? I have it in my swollen feet, ankles and upto my knees. I think the sides of my neck, under the jawbone is also...

Hi, does anyone suffer from pitting edema? I have it in my swollen feet, ankles ...

Bluedragon

•10 years ago

9 Replies

Anemia

Hi new to this site, but not to HU Went to gp yesterday, with symptoms of very severe breathing problems, which I have had for ages in past it was put down to...

Hi new to this site, but not to HU Went to gp yesterday, with symptoms of very s...

angse

•10 years ago

14 Replies

Methylcobalamin Injection

Does anybody know where I can get private methylcobalamin injections in the UK. I live West Midlands/Warwickshire border. Alternatively a reliable source of...

Does anybody know where I can get private methylcobalamin injections in the UK. ...

maycov

•10 years ago

7 Replies

Does "Better You B12 Boost" oral spray work well?

Has anyone else had good experiences with it? Thanks

Ctb567

•10 years ago

12 Replies

Any advice welcome

Have been member of pas since I was first diagnosed in 2012 and have found it incredibly informative and very helpful. Have never had too many probs with...

Have been member of pas since I was first diagnosed in 2012 and have found it in...

Moppet

•10 years ago

7 Replies

Advice please

I am new to this forum. I also have ME/CFS, Hashimoto's thyroiditis (started treatment Feb - Nature Throid) and just started HRT. I have had B12 injections...

I am new to this forum. I also have ME/CFS, Hashimoto's thyroiditis (started tr...

maycov

•10 years ago

5 Replies

fingers crossed

Hi everyone, I had an appointment with my Gp just this past Tuesday, following my session with the rudest, uncaring, unhelpful haematologist. She actually used...

Hi everyone, I had an appointment with my Gp just this past Tuesday, following m...

shevie

•10 years ago

19 Replies

folinic acid

I decided after trying folic acid and methylfolate to now try folinic acid, my anxiety and depression has been with me for almost 20 years, I am currently on...

I decided after trying folic acid and methylfolate to now try folinic acid, my a...

nichola79

•10 years ago

6 Replies

What is a good range for the b12 blood tests?

I'm not sure what I should be looking out for as the docter tells me anything don't trust him at all.

I'm not sure what I should be looking out for as the docter tells me anything do...

Amber12345

•10 years ago

9 Replies

"£21m for dementia check?"

This was a 'Pulse' headline. Unfortunately, I can't access what it's about or what DES means: " £21m for a dementia check? I'll take this one for the team "...

This was a 'Pulse' headline. Unfortunately, I can't access what it's about or w...

Polaris

•10 years ago

3 Replies

Folate Deficiency

I've been found to be Folate deficient on 2 or 3 occasions & done nothing about it. GP prescribed me Folate, i have a drawer full of tablets, why have a never...

I've been found to be Folate deficient on 2 or 3 occasions & done nothing about ...

knackersyard

•10 years ago

4 Replies

Could I be deficient?

Hi everyone I have come across to you from Thyroid UK. I have Hashimotos and am struggling to get well as I still have lots of symptoms despite my thyroid...

Hi everyone I have come across to you from Thyroid UK. I have Hashimotos and am...

Kel8

•10 years ago

13 Replies

Is it good to self inject

I am suffering between doctors injection every 3 months for the last 4 yrs and want to inject myself. Any advice would be great:)

I am suffering between doctors injection every 3 months for the last 4 yrs and ...

Amber12345

•10 years ago

5 Replies

Gastroenterologist

Hi just come back from another visit to the GP - still no IFAB results however - good news he said he would start me on injections if I wanted - was concerned...

Hi just come back from another visit to the GP - still no IFAB results however -...

Carlygeorge

•10 years ago

16 Replies

Help! My Drs dont seem to understand

I had blood tests 2 weeks ago my b12 level was 148, i have a family history of PA so was referred for an intrinsic test. Getting the results from the nurse...

I had blood tests 2 weeks ago my b12 level was 148, i have a family history of P...

saz5856

•10 years ago

9 Replies

Local paper would like to do a feature on me about Pernicious Anaemia - what would you do?

The thing is, I don't 'officially' have PA. I have self-diagnosed and am self-treating with injections. My B12 level is 215. I managed to bring it up to...

The thing is, I don't 'officially' have PA. I have self-diagnosed and am self-tr...

Clarity1971

•10 years ago

6 Replies

Active B12 Test results -- Help?

I have just had the active B12 Test done with Horizon Medical. Could anybody please help me understand the results? Active B12 68 pmol/L 25.1 - 165.0 Thanks

I have just had the active B12 Test done with Horizon Medical. Could anybody ple...

sh2015

•10 years ago

14 Replies

jalbey

I am ecstatic! I have just had GP agreeing to me having more frequent injections!! I have been really struggling for about 3 weeks and my next jab not due for...

I am ecstatic! I have just had GP agreeing to me having more frequent injections...

jalbey

•10 years ago

4 Replies

What to say to Dr??

Hi, I have tested positive for intrinsic factor, have a family history of PA, my mum, sister and daughter all have injections but I am not allowed! My level is...

Hi, I have tested positive for intrinsic factor, have a family history of PA, my...

emmaline66

•10 years ago

3 Replies

Normal B12 levels but low ferritin.

My health has really deteriorated over the last 2 years and I've seen many GP's and consultants and been through a range of possible diagnoses such as...

My health has really deteriorated over the last 2 years and I've seen many GP'...

amy15995

•10 years ago

4 Replies

oral contraceptive use and B12 deficiency

I was put on the pill (microlite ,oral contraceptive) 7 months ago help with my periods and try to regulate my hormones.This was 5 months before I was told I...

I was put on the pill (microlite ,oral contraceptive) 7 months ago help with my ...

patmackfin

•10 years ago

8 Replies

Out of desperation!!

Good morning all, out of desperation I self injected Methycobalamin this morning. I am disappointed with myself because my GP wanted me to go for some tests...

Good morning all, out of desperation I self injected Methycobalamin this mornin...

AutoimmuneAnnie

•10 years ago

6 Replies

Mouth ulcers

I have PA and I get very frequent mouth ulcers. Is this related to B12 deficiency does anyone know? Am going to start self injecteting soon to supplement GP...

I have PA and I get very frequent mouth ulcers. Is this related to B12 deficienc...

Songbird63

•10 years ago

6 Replies

First week of loading with B12 is over...

Hi every one, well my first week of B12 injections is over, the second week starts tomorrow. I'm a bit disappointed as all my symtoms seemed to have got...

Hi every one, well my first week of B12 injections is over, the second week sta...

LolalalalalaLola

•10 years ago

9 Replies

Nausea after Vit B12 spray

Hi I have B12 injections every 12 weeks but find I have to top up with the spray for about 3wks before it is due as all my symptoms return. This time I have...

Hi I have B12 injections every 12 weeks but find I have to top up with the spray...

Chocolate41

•10 years ago

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Expensive but hopefully worth it!

As I've posted before - my dr sought advice from a haematologist because my symptoms had returned before the 3 months - in fact before end first month. The...

As I've posted before - my dr sought advice from a haematologist because my symp...

Bluedragon

•10 years ago

6 Replies

How long do the injections last?

Hi I'm Claire-louise I had my injection in the beginning of March 2015. I'm understood they would last 3 months . I had 6 injections over 2 weeks . But the...

Hi I'm Claire-louise I had my injection in the beginning of March 2015. I'm und...

claire-lou

•10 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2015

Intrinsic Factor and Parietel cells been refused b12

Dementia Prevention - B Vitamins and Omega 3

I Choose Hydroxycobalamin Not Cyanocobalamin Delighted To Be Feeling Well Again.

Symptoms?

Anemia

Methylcobalamin Injection

Does "Better You B12 Boost" oral spray work well?

Any advice welcome

Advice please

fingers crossed

folinic acid

What is a good range for the b12 blood tests?

"£21m for dementia check?"

Folate Deficiency

Could I be deficient?

Is it good to self inject

Gastroenterologist

Help! My Drs dont seem to understand

Local paper would like to do a feature on me about Pernicious Anaemia - what would you do?

Active B12 Test results -- Help?

jalbey

What to say to Dr??

Normal B12 levels but low ferritin.

oral contraceptive use and B12 deficiency

Out of desperation!!

Mouth ulcers

First week of loading with B12 is over...

Nausea after Vit B12 spray

Expensive but hopefully worth it!

How long do the injections last?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive