Just wanted to thank all the forum members who replied to my plea for help yesterday. Thanks for allaying my fears a bit, and giving me some hope that I might get through this, and not do something silly.
I'm still in a pretty dark place (thanks to B12 deficiency), but as a result of reading your replies I'm one step further away from the precipice.
A special thank you to forum user Gobbozoid, who's had his own hill to climb over the last few months, but still selflessly offered me words of calm reassurance via the chat on here, and then via Facebook Messenger phone call for the best part of an hour. Hope he hasn't broken any forum rules by doing that as I was glad to talk to someone.
It's heartwarming to know that so many people will respond to another person's cry for help.
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Laverdista
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So glad that you have been encouraged by the responses Laverdista . That was marvellous that you could get that help from someone who had been to the dark place and come through to the other side . There will always be someone on this marvellous forum to give you a helping hand .
I had really bad mental problems. I was so paranoid I suspected my loving partner, who has been incredibly supportive, of plotting against me.
I was also so depressed that most days I didn't get dressed - or even comb my hair.
But with B12 I slowly recovered.
Things will get better.
But I found that meditation and exercise also helped - especially walking. Apparently exercise releases endorphins which improves mood and well-being. It works for me.
Please don't go into hospital. They won't give you B12 and you will get even worse very quickly. My GP told me that I had dangerous levels of B12 so I stopped taking it. Within a month my paranoia had returned.
It’s just incredible and depressing that some doctors really believe , in 2024 , that you can have “dangerous levels “of B12,! In 2014 my GP told me that injections more often than one in 3 months would be toxic ! Think of the damage that can be caused by these assumptions!
thanks really isn’t necessary. As I say we can talk any time you need to. Hopefully I didn’t break any rules… however I think you benefited from a proper chat so I don’t regret doing it.
How can you break rules when someone receives much needed help. Sadly some groups (not this one) have become rather authoritarian and seem to have lost the caring gene. So glad you’ve received what you needed. 🙂👍
Oh my gosh, it’s so hard isn’t it. I’m sure some people would consider me obsessive, but I read the posts and past stories every day, it’s keeps me going, and I’m not suffering the anxiety and depression now like you, but I have been there and it’s indescribable how lost and alone you feel at the time. But you have to keep remembering that you can get through each episode, and the sun will shine again.
I had a couple of bad days, then a couple of good ones, so it’s some sort of progress.
Yes, my symptoms are more pain, fatigue, dizziness and just generally feeling rotten. I think possibly once I started taking higher vitamin D as well, my anxiety got better. I still have low moments, but they are nothing like I had previously. The trouble is anxiety breeds anxiety, so the more you worry you’re not going to get through it, the worse it gets. It’s not an easy cycle to get out of. But I found that doing things when I felt a bit better helped, although I often didn’t feel like it. Deep breathing, and relaxation techniques helped.
Just keep posting when you feel bad and the positive messages will help too. x
I'm glad people were here for you and they helped get you out of a dark place so you could see a little light. It will get brighter. Hang in there and reach out like you did. People will be here. Some of the members here are tirelessly helpful. I don't know where they get the energy but they are selflessly here all the time like a beacon of light. People like Wedgewood, sleepybunny, technoid, jillymo, and many more...I believe they save lives in their own way. The mental help they offer can be life saving sometimes. Good luck.
That's very true. I hope that in due course I will be one of those offering help to others. However, one other thing that this experience has made me, is angry! Angry with Doctors who gaslight you, angry at the inconsistencies of treatment, angry at the sheer bloody-minded refusal to look at B12D as a cause of so many issues, angry at the refusal to routinely test B12 and folate levels. If I get out of this relatively unscathed, I'm going to become the world's most vociferous B12 deficiency and PA advocate!
YES! We are all angry about that! I want to fight too. When I first got this I was so angry and I wanted to scream from the rooftops how dare you lied to us like this and ruin our lives. And I talked to doctors and I handed out flyers and I did whatever I could in my little Community to try to spread the word. Nobody was listening. But one day when this happens to them they will remember. And hopefully it will help them. I don't know how to continue. I feel we need to picket at the hospitals and the medical boards and do whatever we can. what really makes me angry is that people to lose weight can get injectable ozympic and everything they need to lose weight and take it home and inject it but we can inject our B12 to save our lives. and the gas lighting to try to make us feel like there's nothing wrong with this. Believe me some of us have had extremely long Journeys. Mine has been over 40-year Journey. I'm angry that my life is almost gone and I didn't even get to live because of this and now I'm desperately trying to live in this condition. And I won't give up. It's okay to be angry. I think anger is what invokes change. If we all get angry enough maybe we can make a difference
Go, Laverdista! I tell all medics about my B12 and cannabis oil (legally prescribed) use and how they have helped me many times more than the side-effect ridden allopathic drugs that the profession peddle. My old MS nurse (before we moved) was very interested and passed the info onto others who may benefit. Sadly, not everyone is so open-minded. Do they hand out blinkers at medical school do you think?!
I'm not a forum moderator but I'm all for personal contact and calls. This hill is too hard to climb alone and the best support comes from those who have been through this journey and understand it best. Thanks for the appreciation and thanks for having faith in this forum. It has been a treasure to me in my life.
The struggles are real and so is our love, support and hope for you!
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Thank you PAS
Thank you!
Thank you to kind gentleman who phoned
Christmas and Thank You all
THANK YOU PAS!!! 
