Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

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All posts for March 2019

Confused

Now I'm on a 3 monthly cycle to get vitamin B12 injections, however I honestly don't feel these are lasting long enough, so I had to have an operation and the...

Now I'm on a 3 monthly cycle to get vitamin B12 injections, however I honestly d...

Cb1963

•6 years ago

7 Replies

Joint problems

Does anyone get joint problems due to b12 deficiency ie inflammation

Edna11

•6 years ago

5 Replies

Feeling like sunburn

Hi For the past 6 months my b12 injections have been increased to two monthly instead of 3 monthly. However im finding that my left arm and top of my back...

Hi For the past 6 months my b12 injections have been increased to two monthly i...

Sandra_Holmes_R

•6 years ago

1 Reply

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Myelin sheath

Hi All I was diagnosed over three years ago and read this site daily. I do not have the most commonly mentioned features of PA hence I assume I do not have it...

Hi All I was diagnosed over three years ago and read this site daily. I do not h...

Alfabeta

•6 years ago

4 Replies

Acnes and gaining weight from b12 shots

I’m taking bi weekly loading shots (hydroxocobalamin) for 1 year and sublingual daily... I intitally had terrible acnes and gained weight like anything.. I...

I’m taking bi weekly loading shots (hydroxocobalamin) for 1 year and sublingual ...

Gunj_red

•6 years ago

6 Replies

low iron

hello all, my 13th year old daughter as low iron deficiency, doctors been doing tests on her for about a year now and every single test they do is coming...

hello all, my 13th year old daughter as low iron deficiency, doctors been doing...

jamaican1980

•6 years ago

3 Replies

Tecta

Can you take Tecta if you have PA

Rykev

•6 years ago

2 Replies

Struggling to buy B12 injections

Hi everyone I am new to the site. I have been advised by a private doctor that I need B12 every month but my NHS doctor will only give it to me every month...

Hi everyone I am new to the site. I have been advised by a private doctor that ...

Bmwx

•6 years ago

7 Replies

Has anyone had success with using Colostrum?

I have had three stomach surgeries and taken Prilosec, have had to have iron infusions due to absorption problems. Upper endoscopes have shown my stomach to...

I have had three stomach surgeries and taken Prilosec, have had to have iron inf...

Sita505USA

•6 years ago

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Intrinsic factor

I’m confused. Does negative IF mean you have the enzyme or not? Or you have the antibodies? Or not? Pleased to say my B12 count at 8 weeks was excellent -...

I’m confused. Does negative IF mean you have the enzyme or not? Or you have the ...

Dragonwalker

•6 years ago

15 Replies

Symptoms

I have really painful wrists it started as pins and needles. Anybody had this

Mx143

•6 years ago

5 Replies

B12 level in normal range but still exhausted

Recently diagnosed with PA (with positive IFA). Completed loading dose injections 8 weeks ago. Prior to loading dose my b12 was 192 (180-2000) and folate 4.7...

Recently diagnosed with PA (with positive IFA). Completed loading dose injectio...

ickyrocket

•6 years ago

8 Replies

Expensive hydroxocobalamin injections

I am trying to get hydroxocobalamin from my usual supplier which is mycare.de. the price is about €8 FOR 10 and you can't buy it in packs of 100 so you end up...

I am trying to get hydroxocobalamin from my usual supplier which is mycare.de. ...

toph

•6 years ago

5 Replies

GP stopping my B12 injections despite a positive intrinsic factor antibody result

I was diagnosed with rheumatoid arthritis in 2007. In 2010 I suffered a numb tongue and extreme fatigue - my b12 level was 117. I tested positive for intrinsic...

I was diagnosed with rheumatoid arthritis in 2007. In 2010 I suffered a numb ton...

Hidden

•6 years ago

11 Replies

Pernicious anaemia hangovers/numbness/racing heart

Hi I have PA and have always noticed hangovers to last quite sometime. However last Sunday when I woke up from a night of partying I couldn’t move my legs or...

Hi I have PA and have always noticed hangovers to last quite sometime. However ...

Shopping44

•6 years ago

4 Replies

No luck

Been to docs told him all symptoms, he wanted to know if I was depressed huh! He said forget your b12 it's not that and wants me to have physio for the pins...

Been to docs told him all symptoms, he wanted to know if I was depressed huh! He...

Mx143

•6 years ago

8 Replies

How to start B12 injections and where to buy ?

Hi there, As I’m new to this ...I would like to ask you guys for ur help. Me n my nutritionist decided that I should go for B12 injections as loaznges are not...

Hi there, As I’m new to this ...I would like to ask you guys for ur help. Me n m...

Ari3

•6 years ago

4 Replies

Long time since I've sourced B12 - from Germany I believe

Can anyone suggest a reliable source please? thanks

auldreekie

•6 years ago

6 Replies

Urine test infection detected advice

Just went back to doct with heart palpitations and heavy legs that continue along with hot flushes now, did a urine test that came up positive to infection i...

Just went back to doct with heart palpitations and heavy legs that continue alon...

sbadd

•6 years ago

4 Replies

Slightly low folate?

Hi all, don't know if I'm in the right place but I had bloods done yesterday and today received a phone call from the doctors to be told I have slightly low...

Hi all, don't know if I'm in the right place but I had bloods done yesterday and...

Lee198888

•6 years ago

10 Replies

How to self inject safely.

I am guessing that it's slow & steady on the plunger but how deep do you insert the needles in both IT & SC injections? Thank you.

I am guessing that it's slow & steady on the plunger but how deep do you insert ...

StaffsLass

•6 years ago

3 Replies

Hydroxycobalamin

Hello..im new to tue world of PA..I had my fiest lot of loading injections in January and am due my next one in April. I went to pick up a prescriotion the...

Hello..im new to tue world of PA..I had my fiest lot of loading injections in Ja...

leasparkles

•6 years ago

1 Reply

Unsure if this is linked, b 12 deficency and anxiety.

Hi, I am new to this and wondered if anyone could shed some light on my situation. I am a 35 year old woman who for the last 4 years has been suffering with...

Hi, I am new to this and wondered if anyone could shed some light on my situati...

Louloubalou

•6 years ago

16 Replies

spare B12

Anybody in need of some B12 ampules please pm me - no cost involved. Thank you.

busterboy

•6 years ago

18 Replies

Needle sizes for sub cutaneous injecting.

Hi all, I apologise in advance, as this has probably been asked many times before. Can anyone recommend the best needle size for sub cutaneous injecting? And...

Hi all, I apologise in advance, as this has probably been asked many times befor...

StaffsLass

•6 years ago

5 Replies

Needles and pins yeah that’s where it begins yeah!

Hi All I’ve been receiving treatment for over three years now and had lots of symptoms some quite rare (I haven’t read of anyone else having them!) but over...

Hi All I’ve been receiving treatment for over three years now and had lots of sy...

Alfabeta

•6 years ago

7 Replies

B12 injection strength Vs B12 tablets ?

How much is 1ml off B12 injection equipment to Vs B12 tablets ? I’m talking about the standard 1ml injection. I think the highest strength of tablets I’ve...

How much is 1ml off B12 injection equipment to Vs B12 tablets ? I’m talking abou...

Ryaan

•6 years ago

2 Replies

Sub cut - size needles

Hi I ran out of needles and syringe I was using fine... Couldn’t get same ones advised on size of needle as threw out the box but I think maybe to short as...

Hi I ran out of needles and syringe I was using fine... Couldn’t get same ones...

Mandlou

•6 years ago

19 Replies

Methylation

Hi I haven’t been on here for a while because working with a private nutritionist/ practitioner.I have just had results back on a test from Genova on a full...

Hi I haven’t been on here for a while because working with a private nutritionis...

Hidden

•6 years ago

1 Reply

B12 and health anxiety

Hi all, Has anyone ever experienced health anxiety since having b12 deficiency/PA? I feel like since I knew I was deficient, every little ache or pain it...

Hi all, Has anyone ever experienced health anxiety since having b12 deficiency/P...

Jessie8

•6 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2019

Confused

Joint problems

Feeling like sunburn

Myelin sheath

Acnes and gaining weight from b12 shots

low iron

Tecta

Struggling to buy B12 injections

Has anyone had success with using Colostrum?

Intrinsic factor

Symptoms

B12 level in normal range but still exhausted

Expensive hydroxocobalamin injections

GP stopping my B12 injections despite a positive intrinsic factor antibody result

Pernicious anaemia hangovers/numbness/racing heart

No luck

How to start B12 injections and where to buy ?

Long time since I've sourced B12 - from Germany I believe

Urine test infection detected advice

Slightly low folate?

How to self inject safely.

Hydroxycobalamin

Unsure if this is linked, b 12 deficency and anxiety.

spare B12

Needle sizes for sub cutaneous injecting.

Needles and pins yeah that’s where it begins yeah!

B12 injection strength Vs B12 tablets ?

Sub cut - size needles

Methylation

B12 and health anxiety

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