Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,669 members•24,064 posts

All posts for July 2016

2 X 3000 ENOUGH OF B12 LOZENGES BETWEEN B12 INJECTIONS WHEN VERY, VERY FATIGUED??

Managed to get hold of Dr. Chandy from B12d website and he suggested 2 x 3000 B12 lozonges. Do you guys think that would be high enough dose to get my fatigue...

Managed to get hold of Dr. Chandy from B12d website and he suggested 2 x 3000 B...

sandramcgregor

•8 years ago

5 Replies

newly diagnosed and confused

Hello - I wonder if anyone can help me - I am confused about all of this. I'm in the UK - I went to my GP recently, saying I'd been feeling stressed at work,...

Hello - I wonder if anyone can help me - I am confused about all of this. I'm i...

NHHO72

•8 years ago

6 Replies

Consultant Haematologist tomorrow.

Hi everyone, going to see the Consultant Haematologist tomorrow after waiting since Christmas. Hopefully now I'll find out why my blood isn't clotting. I...

Hi everyone, going to see the Consultant Haematologist tomorrow after waiting si...

Bentleyboo

•8 years ago

7 Replies

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How much time? Please tell

My b12 level is 147....after struggling for a long time and not being diagnosed by anything. finally this b12 issue has come across...can somebody tell me...

My b12 level is 147....after struggling for a long time and not being diagnosed ...

Ashishk

•8 years ago

38 Replies

Reaction to injections and tablets

Hi, I'm really not sure what to do. I've had blood test which shows my b12 is really low, dr called me in for injections. On the day after first injection felt...

Hi, I'm really not sure what to do. I've had blood test which shows my b12 is re...

KathyN

•8 years ago

34 Replies

Life insurance

51, and just lost my job because of the company I work for getting bought out by a bigger company. Looking for life insurance. Suggestions?

51, and just lost my job because of the company I work for getting bought out by...

bridgetgee

•8 years ago

3 Replies

Amoxicillin and B12

I just finished s course of these antibiotics 3 days before my 3 monthly b12 shot. I have felt horrid since with all my symptoms coming back. Next shot not due...

I just finished s course of these antibiotics 3 days before my 3 monthly b12 sho...

sandramcgregor

•8 years ago

18 Replies

Kilmarnock Thyroid/B12d Support Group: next meeting Monday 1 August 2016

We are a small, friendly and informal group that meets every first Monday of the month at The Canny Man, 1 Beith Rd, Lugton, Kilmarnock, Ayrshire KA3 4ED from...

We are a small, friendly and informal group that meets every first Monday of the...

SailingBy

•8 years ago

1 Reply

Pregnant and b12 88

Hi everyone, So to give you a background on my situation.... I'm 33 weeks pregnant. I have been vegan for over a year and have always supplemented b12 through...

Hi everyone, So to give you a background on my situation.... I'm 33 weeks pregn...

Hannahroobs

•8 years ago

9 Replies

Should my dad (79 years) supplement 3 monthly injections and with what?

My father has been diagnosed with PA (level was around 200). GP put him on 3 monthly injections. He had been ok but after flu and a chest infection (treated...

My father has been diagnosed with PA (level was around 200). GP put him on 3 mo...

sandramcgregor

•8 years ago

5 Replies

Decent haemotologist in the NW

Hi there, I am new to this forum. Having been messed about by NHS doctors for years in relation to my Hashi's, and having scored 25 on the PA website, due to...

Hi there, I am new to this forum. Having been messed about by NHS doctors for ye...

Scazzoh

•8 years ago

Be the first to reply

Battle for iron infusion

Hey guys and gals, I am new here and I am hoping for some advice. I have had a low blood count and low iron levels for 3 years now and I am unable to take...

Hey guys and gals, I am new here and I am hoping for some advice. I have had a ...

Bex8216

•8 years ago

14 Replies

Phantom drops of water on shin, arm. Symptom?

I haven't been diagnosed w PA, but tests showed as soon as I stopped supplementing b12 my levels were falling like a stone and I had symptoms (numbness, foot...

I haven't been diagnosed w PA, but tests showed as soon as I stopped supplementi...

puncturedbicycle

•8 years ago

19 Replies

POSITIVE Gastric Parietal Cell AB/ Low Methylmalonic acid and Homocysteine.

My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at...

My rheumatologist looked at my b12 levels last year along with some other tests ...

Tigerlilly81

•8 years ago

5 Replies

Help with obtaining a private PA diagnosis in London ?? ☆♡☆

Hello all again . I'm having no joy from my GP at the moment ! :/ . I am currently being treated for anemia under the UCLH with iron infusions . They are...

Hello all again . I'm having no joy from my GP at the moment ! :/ . I am curren...

Kittycaite

•8 years ago

14 Replies

Rumours of impending doom

Had my last loading jab this morning and continuing to feel much brighter, though still easily tired. Interesting conversation with my doctor who summed up...

Had my last loading jab this morning and continuing to feel much brighter, thoug...

janetmenzies

•8 years ago

15 Replies

Pernicious anemia at twenty two!!!!!

Just diagnosed with serum vitamin B12 level of 103...can it be pernicious anemia??? Scared that this condition predispose to gastric carcinoma!!!!! Plz help

Just diagnosed with serum vitamin B12 level of 103...can it be pernicious anemia...

Hidden

•8 years ago

13 Replies

Methyl allergy but not cyano?

I could just be wigging out. Is it possible to have an allergic reaction to methyl (tightness in chest) and take cyano just fine? I might only be able to have...

I could just be wigging out. Is it possible to have an allergic reaction to meth...

Ladyawkward

•8 years ago

6 Replies

Restless Legs Whilst Sleeping

Hi everyone I am probably one of the lucky ones and haven't needed to be on here for some time as my condition is manageable, but I always tend to come back...

Hi everyone I am probably one of the lucky ones and haven't needed to be on here...

Mark123

•8 years ago

13 Replies

Magnesium, iron help

Hi does anyone know if you can take ferrous sulfate and magnesium together, or would it be best to space them out? x

Hi does anyone know if you can take ferrous sulfate and magnesium together, or w...

nickyinnotts

•8 years ago

3 Replies

4 year battle to get injections reinstated

I have just started loading doses and hopefully will start to feel better soon. My daughter put in a complaint to nhs England after I had injections stopped...

I have just started loading doses and hopefully will start to feel better soon. ...

sallyloade

•8 years ago

6 Replies

Moving abroad with PA

Hi, Ive recently been diagnoses with Pernicious Anaemia and I m due to move to Portugal very soon. I am now into week 2 of my injections and after the 3rd this...

Hi, Ive recently been diagnoses with Pernicious Anaemia and I m due to move to P...

lifegems

•8 years ago

5 Replies

Annoyed at my doctor with medication and xray results

Update, I had a nuclear bone scan that showed abnormalities around my hips and shoulders, so I was sent for follow up xrays, I seen my Gp yesterday as I feel...

Update, I had a nuclear bone scan that showed abnormalities around my hips and s...

Jacqueline_J

•8 years ago

4 Replies

low on B12

Hi I'm suffering from low B12 and Vitamin D......it took them months to find out.......... major issues are the dizziness and and tingling in my feet and...

Hi I'm suffering from low B12 and Vitamin D......it took them months to find out...

putput

•8 years ago

7 Replies

I've heard that B12 is good for....

Found this information from the Mayo Clinic on what B12 may, and may not, be good for -...

Found this information from the Mayo Clinic on what B12 may, and may not, be goo...

fbirder

•8 years ago

1 Reply

Beginning to surface

Hi everybody. I'm nearing the end of my loading dose of B12 now and I am beginning to notice a slight improvement. I am less desperately exhausted, although I...

Hi everybody. I'm nearing the end of my loading dose of B12 now and I am beginn...

janetmenzies

•8 years ago

36 Replies

My test results help please

How do these look please x Mean cell volume 93.6 fL [80 - 100] Mean cell haemoglobin level 31.1 pg [27 - 32] Red blood cell count 4.7 10^12/L [3.8 - 4.8]...

How do these look please x Mean cell volume 93.6 fL [80 - 100] Mean cell haemog...

Ldhall

•8 years ago

10 Replies

Fatigue and labs

Okay guys I got my test back. Folate was 20. Potassium was 4.6 , sodium,magnesium and thyroid panels all look great. My palpations have faded with no exercise....

Okay guys I got my test back. Folate was 20. Potassium was 4.6 , sodium,magnesiu...

Ithinkimdying

•8 years ago

3 Replies

Heartburn

I had an endoscopy 2 weeks ago to check for coeliac disease. The procedure went well and I suffered no immediate effects. However, I am experiencing heartburn...

I had an endoscopy 2 weeks ago to check for coeliac disease. The procedure went ...

soos

•8 years ago

5 Replies

UPDATE ON 'FROSTY' ENDOCRINOLOGIST & GP

Following on from post a few weeks ago if anyone can remember? My frosty endocrinologist who I did a post about some weeks ago, actually wrote quite a good...

Following on from post a few weeks ago if anyone can remember? My frosty endocri...

Sallybones

•8 years ago

16 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2016

2 X 3000 ENOUGH OF B12 LOZENGES BETWEEN B12 INJECTIONS WHEN VERY, VERY FATIGUED??

newly diagnosed and confused

Consultant Haematologist tomorrow.

How much time? Please tell

Reaction to injections and tablets

Life insurance

Amoxicillin and B12

Kilmarnock Thyroid/B12d Support Group: next meeting Monday 1 August 2016

Pregnant and b12 88

Should my dad (79 years) supplement 3 monthly injections and with what?

Decent haemotologist in the NW

Battle for iron infusion

Phantom drops of water on shin, arm. Symptom?

POSITIVE Gastric Parietal Cell AB/ Low Methylmalonic acid and Homocysteine.

Help with obtaining a private PA diagnosis in London ?? ☆♡☆

Rumours of impending doom

Pernicious anemia at twenty two!!!!!

Methyl allergy but not cyano?

Restless Legs Whilst Sleeping

Magnesium, iron help

4 year battle to get injections reinstated

Moving abroad with PA

Annoyed at my doctor with medication and xray results

low on B12

I've heard that B12 is good for....

Beginning to surface

My test results help please

Fatigue and labs

Heartburn

UPDATE ON 'FROSTY' ENDOCRINOLOGIST & GP

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