Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,933 members • 23,073 posts

All posts for February 2023

B12 Deficiency

Hi everyone.hope you are all well.Just wanted some help.I have just been diagnosed with b1w deficiency.My results were 54.4.Havent seen the gp yet appointment...

Hi everyone.hope you are all well.Just wanted some help.I have just been diagnos...

Rachel20

•1 year ago

5 Replies

Is there a shortage of Panpharma depot?

Hi, I have been using Rotexmedica/Panpharma depot B12 for 6 years, and I have never had an issues sourcing it. However, I cannot find it anywhere online at the...

Hi, I have been using Rotexmedica/Panpharma depot B12 for 6 years, and I have ne...

BeachArt

•1 year ago

16 Replies

A News item

Some Maternity wards have suspended 'Gas and air' Entinox nitrous oxide. A risk to staff And users. Annoyingly don't say why a health risk. Depetes B12

Some Maternity wards have suspended 'Gas and air' Entinox nitrous oxide. A risk ...

Nackapan

•1 year ago

32 Replies

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My experiences with B6

I posted about my experiences with B6 and could not find the post, I got many helpful replies and wanted to give an update. B6 for me was a breakthrough. 4...

I posted about my experiences with B6 and could not find the post, I got many he...

WIZARD6787

•1 year ago

38 Replies

Switching from EOD to daily injections

Hello peeps! I'll try to be less vague today. So, I'm in week 6 of EOD and struggling mainly with neuropathic pain/burning (as I think I mentioned in my...

Hello peeps! I'll try to be less vague today. So, I'm in week 6 of EOD and strug...

Mixteca

•1 year ago

6 Replies

Bloods tests results

I've had some private tests done. These are the results Gastrin 12.6 ng/l (13-115) Gastric Parietal cell abs negative Intrinsic factor abs <1 <6 normal...

I've had some private tests done. These are the results Gastrin 12.6 ng/l (13...

diamondgirl9022

•1 year ago

2 Replies

potassium level

I recently had bloodwork done. My sodium is at very bottom of range.( 135) it always has been. My potassium is 3.7 with a range of 3.5-5.5. I have tended to be...

I recently had bloodwork done. My sodium is at very bottom of range.( 135) it al...

EiCa

•1 year ago

14 Replies

Information on clinical trial of large doses of B12?

Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report...

Someone wrote on this site about a clinical trial of B12 being given in large do...

WIZARD6787

•1 year ago

10 Replies

Fatigue and me.

After a year of proper supplementation I became all but pain free and and only had slight numbness in my toes. I turned my focus to fatigue. This is the...

After a year of proper supplementation I became all but pain free and and only...

WIZARD6787

•1 year ago

7 Replies

Topping Up B12 Supplements.

When I first started this journey/odyssey/quest it was my understanding that all I had to do was take loading doses then find my maintenance dose. Then again...

When I first started this journey/odyssey/quest it was my understanding that all...

WIZARD6787

•1 year ago

11 Replies

Jab #2 didn't go so well!!!

I was noticing the effects wearing off yesterday (Friday), I did think about giving myself a jab then, but since I'd scheduled myself for Saturday, I left it...

I was noticing the effects wearing off yesterday (Friday), I did think about giv...

Saoirse2016

•1 year ago

43 Replies

Sleep Remedies?

Hello all The subject of sleep comes up regularly on this forum and, as yet, I'm not sure if I've heard of an effective remedy. I'm curently waking up between...

Hello all The subject of sleep comes up regularly on this forum and, as yet, I'm...

Pickle500

•1 year ago

44 Replies

Struggling with polyneuropathy - knowledgeable member expertise needed

Hello lovely peeps! I'm new to this forum and PA and my learning curve is akin to a mountaineous climb atm. In need of reassurance/patient 'expert'...

Hello lovely peeps! I'm new to this forum and PA and my learning curve is akin t...

Mixteca

•1 year ago

32 Replies

BD Microlance 3 withdrawing needles

I bought 100 of these last year, expiry date January 2027. I think I only used one before I reverted to the way I was taught to SI subcut by a nurse at a...

I bought 100 of these last year, expiry date January 2027. I think I only used ...

rogergee

•1 year ago

3 Replies

Saline Solution Drip

I know it is unlikely. Can I get a saline solution transfusion in the UK with out a prescription? I can get one in some states in the USA. In Ecuador you can...

I know it is unlikely. Can I get a saline solution transfusion in the UK with ou...

WIZARD6787

•1 year ago

10 Replies

Large Red Blood Cells Detected.

Someone who I love very much just told me that they had a blood test and it showed enlarged red blood cells. They were told it was not a problem. Fact is it is...

Someone who I love very much just told me that they had a blood test and it show...

WIZARD6787

•1 year ago

6 Replies

srtoke

I recently had a small stroke should i tell the nurse before the B12 injection any suggestions please ?

I recently had a small stroke should i tell the nurse before the B12 injection a...

Spick

•1 year ago

8 Replies

New to this

I have joined this organisation because my daughter was diagnosed with Pernicious Anemea 11 years ago but her doctor is now refusing to give her injections...

I have joined this organisation because my daughter was diagnosed with Perniciou...

PartyPoodle

•1 year ago

5 Replies

Breakdown of the B vitamins and what their functions are.

Hello everyone, I find myself confused about all the different functions of the b vitamins and what each one does. I found this page that I thought had some...

Hello everyone, I find myself confused about all the different functions of the ...

EllaNore

•1 year ago

16 Replies

Self-injecting B12

One of the repeat topics here is that of NOT being allowed by GP surgeries to self-inject B12. To people like me, who doesn't need injections, this seems...

One of the repeat topics here is that of NOT being allowed by GP surgeries to se...

helvella

•1 year ago

14 Replies

Foods fortified with folic acid

I’m just wondering - i often read on this wonderful forum re making sure we don’t take too much folic acid. What about all of the food fortified with it ,...

I’m just wondering - i often read on this wonderful forum re making sure we don’...

besotted2

•1 year ago

9 Replies

”Nitrous oxide: Laughing gas users risk spine damage, say doctors”…..

Its odd healthcare workers recognise B12 issues from drug abuse but not PA patients….. https://www.bbc.co.uk/news/health-64718233 Feel like printing this one...

Its odd healthcare workers recognise B12 issues from drug abuse but not PA patie...

RoseFlowerDew

•1 year ago

26 Replies

high b12

Hey guys, back end of my last post my bloods have come back with liver levels not a concern. However my b12 is pretty high, I haven’t got numbers but reviewing...

Hey guys, back end of my last post my bloods have come back with liver levels no...

Kahil

•1 year ago

1 Reply

Low folate struggling to walk

Good evening my folate vit d is low I am struggling to walk 😪 I have horrific joint muscles pain shake weakness I have pin needle type pain in my legs all...

Good evening my folate vit d is low I am struggling to walk 😪 I have horrific j...

Merkat90

•1 year ago

11 Replies

Folic Acid

https://health.ucdavis.edu/news/headlines/high-folic-acid-associated-with-higher-rates-of-covid-19-infections-and-mortality/2022/08 Found this article very...

https://health.ucdavis.edu/news/headlines/high-folic-acid-associated-with-higher...

Miss-guineapig

•1 year ago

12 Replies

B12 Complex

Has anyone done research to evaluate which B12 complex to use? I am just being lazy with this. If ya'll keep answering my questions I will keep asking. 😀

Has anyone done research to evaluate which B12 complex to use? I am just being ...

WIZARD6787

•1 year ago

5 Replies

Subcutaneous Hydroxocabalamin Prescription.

Are subcutaneous B12 prescriptions even a possibility?

WIZARD6787

•1 year ago

5 Replies

B12 deficiency

Does anyone have this bone pain down the legs as I do now. just finished my 7 days daily shots

Does anyone have this bone pain down the legs as I do now. just finished my 7 da...

mbhembe

•1 year ago

10 Replies

Theory suggests diet leads to Alzheimer's Disease

https://www.technologynetworks.com/neuroscience/news/fructose-and-foraging-drive-alzheimers-disease-suggests-new-theory-370185 Thought this was......

https://www.technologynetworks.com/neuroscience/news/fructose-and-foraging-drive...

Pickle500

•1 year ago

15 Replies

It's working!! It's working!!!

I think I may have unintentionally injected sub cut instead of IM, but whatever I did, I'm feeling much better already! I was taking B12 via an oral spray...

I think I may have unintentionally injected sub cut instead of IM, but whatever...

Saoirse2016

•1 year ago

39 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2023

B12 Deficiency

Is there a shortage of Panpharma depot?

A News item

My experiences with B6

Switching from EOD to daily injections

Bloods tests results

potassium level

Information on clinical trial of large doses of B12?

Fatigue and me.

Topping Up B12 Supplements.

Jab #2 didn't go so well!!!

Sleep Remedies?

Struggling with polyneuropathy - knowledgeable member expertise needed

BD Microlance 3 withdrawing needles

Saline Solution Drip

Large Red Blood Cells Detected.

srtoke

New to this

Breakdown of the B vitamins and what their functions are.

Self-injecting B12

Foods fortified with folic acid

”Nitrous oxide: Laughing gas users risk spine damage, say doctors”…..

high b12

Low folate struggling to walk

Folic Acid

B12 Complex

Subcutaneous Hydroxocabalamin Prescription.

B12 deficiency

Theory suggests diet leads to Alzheimer's Disease

It's working!! It's working!!!

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive