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Pernicious Anaemia Society

31,918 members • 23,048 posts

All posts for March 2020

B12 jab refused

i have pernicious anaemia and have 8 weekly injections. My surgery has told me that i am unable to have them until further notice. They have offered my...

i have pernicious anaemia and have 8 weekly injections. My surgery has told me t...

Laura1961

•4 years ago

24 Replies

B12 injections

Where in the UK can you buy ampules Thanks

lilly60

•4 years ago

14 Replies

Methylcobalamin drops

I'm new to the site and only just aware of my B12 deficiency in last couple of weeks, though had undiagnosed symptoms for months previously. I've got 1 loading...

I'm new to the site and only just aware of my B12 deficiency in last couple of w...

Ny7C

•4 years ago

6 Replies

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No b12 available

I get my b12 jab every 10 wks. I spoke to the nurse last friday and the drs have decided not to do these for the nxt few months. They say the body can store...

I get my b12 jab every 10 wks. I spoke to the nurse last friday and the drs hav...

Claire1966

•4 years ago

13 Replies

Got it sorted.

I spoke to the nurse regarding my husband's b12. I told her I had taken advice from the society.after a lengthy conversation she is now going to give it.when...

I spoke to the nurse regarding my husband's b12. I told her I had taken advice f...

Bathtime

•4 years ago

4 Replies

My scheduled injection went ahead this morning

Despite my fears and worries this morning went better than expected. My wife Gill 'phoned the surgery first thing to be told that the appointment would go...

Despite my fears and worries this morning went better than expected. My wife G...

clivealive

Forum Support•4 years ago

12 Replies

Purchasing from Germany

Is there anyone who lives in the USA that has purchased hydroxycobalomin from Germany? And if so how is it done?

Is there anyone who lives in the USA that has purchased hydroxycobalomin from Ge...

Bummed

•4 years ago

5 Replies

Appointment confusion

Hi everyone, just wondered if anyone has had the same problem as i had this morning. I phoned the GP surgery to make an appointment for my B12 jab and was told...

Hi everyone, just wondered if anyone has had the same problem as i had this morn...

Nancy38

•4 years ago

5 Replies

B 12 question

I need to bue Metilkobalamin b12 concentrated for lot of injections. Where, please? I/m from Russia and here isn't at all! please, help!

I need to bue Metilkobalamin b12 concentrated for lot of injections. Where, plea...

AndreiSys

•4 years ago

8 Replies

Needles

Hi all, I was lucky enough to buy some b12 from Germany before they stopped shipping... but i didn't buy needles or other bits. I'm due my injection in about...

Hi all, I was lucky enough to buy some b12 from Germany before they stopped shi...

lfc4eva

•4 years ago

10 Replies

Incontinence and B12 deficiency

Hi All, A new post on B12 Deficiency Info blog https://www.b12deficiency.info/blog/2020/03/28/incontinence-in-women-men-children/

Hi All, A new post on B12 Deficiency Info blog https://www.b12deficiency.info/bl...

Sleepybunny

•4 years ago

2 Replies

OCD and B12 deficiency

I wondered if anyone on the forum has ever experienced OCD type symptoms linked to B12 deficiency and whether they improved with B12 treatment. Found this...

I wondered if anyone on the forum has ever experienced OCD type symptoms linked ...

Sleepybunny

•4 years ago

7 Replies

PA and Severe Back pain

Hello, I have had most of my symptoms resolved with b12 injections, however, I seem to still have pretty bad back pain when I sit for too long. For example,...

Hello, I have had most of my symptoms resolved with b12 injections, however, I s...

Dakota17777

•4 years ago

8 Replies

Parkinsons Disease and B12 deficiency

Hi All, Saw this link on a recent thread and thought I'd draw attention to it....

Hi All, Saw this link on a recent thread and thought I'd draw attention to it......

Sleepybunny

•4 years ago

4 Replies

Are we high risk to infections

Morning, hope your all looking after yourselfs... I have recently been told I am b12 deficient I have only had one loading injection I have now gone three...

Morning, hope your all looking after yourselfs... I have recently been told I am...

Pippa76

•4 years ago

1 Reply

B12 Injection

How will I get my B12 injection during isolation.

Annette75

•4 years ago

4 Replies

Can I Give it

My husband has just had a phone call from his GP saying they can't give him his B12 on Monday as it's not safe.would I be able to give it him,is that...

My husband has just had a phone call from his GP saying they can't give him his...

Bathtime

•4 years ago

49 Replies

Where can I get my b12 injection

My g.p or his nurse are withholding b12 injections due to the corona virus.I must say I am a bit worried saying that I have been having these every 3...

My g.p or his nurse are withholding b12 injections due to the corona virus.I mus...

Hidden

•4 years ago

19 Replies

Donate to PAS , when purchasing from AMAZON .No cost to you .

Just use www.smile.amazon.co.uk . It’s only 0.5% but every little helps ! PLEASE DO THIS !

Just use www.smile.amazon.co.uk . It’s only 0.5% but every little helps ! PLEAS...

wedgewood

•4 years ago

8 Replies

B12 Deficiency Info - plea for comments

Person who runs B12 deficiency Info website is pleading for people to leave comments under various blog posts https://www.b12deficiency.info/blog/ Blog post...

Person who runs B12 deficiency Info website is pleading for people to leave comm...

Sleepybunny

•4 years ago

1 Reply

Mycare.de. No longer posting outside DE

Just tried to order My b12 shots online but Mycare.de no longer posting outside de ... Has anyone got a link to where will still sell to the UK ? please

Just tried to order My b12 shots online but Mycare.de no longer posting outside ...

Pascha1

•4 years ago

11 Replies

Vitamin D2

I start taking vitamin d2 my doctor prescribed it because my vitamin d levels was so low so but I did not no u can’t stand in direct sunlight....I got over...

I start taking vitamin d2 my doctor prescribed it because my vitamin d levels wa...

Honey1978

•4 years ago

20 Replies

Difficulty walking

Hello, I have mentioned this before... I was diagnosed with PA 6 months ago b12 50. I have very severe problems with walking & have been self injecting every...

Hello, I have mentioned this before... I was diagnosed with PA 6 months ago b12 ...

Bobbidon

•4 years ago

50 Replies

Doctor refuses to give me VItamin B12 injections

I’ve had crohns for a long time and in 1996 I had and ileostomy and then a further two small bowel resections For the last 17 years I’ve had B12 injections...

I’ve had crohns for a long time and in 1996 I had and ileostomy and then a furth...

Twinkle_Little_Star

•4 years ago

14 Replies

Another letter

Changed my mind and wrote to the neurologist i Iast saw . He is b12 deficient himself but caught early and although admitted some if his patients do well on...

Changed my mind and wrote to the neurologist i Iast saw . He is b12 deficient hi...

Nackapan

•4 years ago

3 Replies

PA and COVID-19

If you have pernicious anemia does it mean that you are in the risk group for the coronavirus? Will someone with pernicious anemia be able to fight off...

If you have pernicious anemia does it mean that you are in the risk group for th...

Dakota17777

•4 years ago

1 Reply

PA and palms of hands

This is probably going to be one of the stranger questions asked on this forum, however, seeing as I've read on this site about sensations and symptoms I...

This is probably going to be one of the stranger questions asked on this forum, ...

RLG99

•4 years ago

6 Replies

First SI

Just done my first sc b12 injection. I had alot of trouble snapping the ampule.??Had bought an opener but it came with no instructions and seemed too big?so I...

Just done my first sc b12 injection. I had alot of trouble snapping the ampule.?...

Nackapan

•4 years ago

21 Replies

self injecting - good news from GP surgery

Just had a call from the nurse to tell me that I will have a training session at my next injection appointment to teach me how to self inject. It's rare, I...

Just had a call from the nurse to tell me that I will have a training session at...

bambuko

•4 years ago

13 Replies

First time order for B12

Hi, After a nerve conduction study last week (following a clear MRI) the doctor said my neuro symptoms couldn't be B12 related as I don't have any nerve...

Hi, After a nerve conduction study last week (following a clear MRI) the doctor...

Hidden

•4 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

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How Often do you feel you actually need your B12 injection?

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2020

B12 jab refused

B12 injections

Methylcobalamin drops

No b12 available

Got it sorted.

My scheduled injection went ahead this morning

Purchasing from Germany

Appointment confusion

B 12 question

Needles

Incontinence and B12 deficiency

OCD and B12 deficiency

PA and Severe Back pain

Parkinsons Disease and B12 deficiency

Are we high risk to infections

B12 Injection

Can I Give it

Where can I get my b12 injection

Donate to PAS , when purchasing from AMAZON .No cost to you .

B12 Deficiency Info - plea for comments

Mycare.de. No longer posting outside DE

Vitamin D2

Difficulty walking

Doctor refuses to give me VItamin B12 injections

Another letter

PA and COVID-19

PA and palms of hands

First SI

self injecting - good news from GP surgery

First time order for B12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive