Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for July 2020

Thick blood question please

When I went to hospital yesterday to have the sst test done The nurse kept saying she was struggling to get the blood samples as my blood was so thick.She was...

When I went to hospital yesterday to have the sst test done The nurse kept sayin...

Hidden

•4 years ago

14 Replies

I'm so frustrated, I just want to scream!

Hi Everyone I've been a member here for a number of years but it's been a while since I last logged in. I want to scream in frustration, really! I was 22 when...

Hi Everyone I've been a member here for a number of years but it's been a while ...

auntieb

•4 years ago

44 Replies

B12/PA and lemon juice

Hello I’m looking for some info on drinking lemon juice, I read somewhere on here about it but seem to have lost the saved post. If someone could help that...

Hello I’m looking for some info on drinking lemon juice, I read somewhere on her...

FlorencePocket-Owl

•4 years ago

15 Replies

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Not anemic

Hi! Not sure if I’ve asked this before but I’m so new to this. I went to doctors 7 weeks ago for lightheadedness and leg weakness. After about 3 weeks they...

Hi! Not sure if I’ve asked this before but I’m so new to this. I went to doctor...

CDALY474

•4 years ago

7 Replies

Filter needles

Hi, just wondering how many on here use a filter needle when drawing up from ampules, also , do you use glass or disposable syringes. My daughter intends to do...

Hi, just wondering how many on here use a filter needle when drawing up from amp...

weaverdee

•4 years ago

12 Replies

Does anyone get head pressure after injecting Cytamen daily as a loading dose

Hi there I’ve just joined the PA society. I’ve had the same issues as many on here of symptoms not being taken seriously just because my B12 is not low enough...

Hi there I’ve just joined the PA society. I’ve had the same issues as many on h...

Serenity182

•4 years ago

6 Replies

Symptoms Reoccurring

Im 7 weeks into self administered weekly injections and was doing really well but the last 3 days i seem to be getting some of the pins and needles feeling...

Im 7 weeks into self administered weekly injections and was doing really well b...

texans2002

•4 years ago

3 Replies

Pins and needles/odd sensation in soles of feet - B12?

Apologies for the long post! I was diagnosed with B12 deficiency about a year ago as a result of wide ranging blood tests for something else. At the time I...

Apologies for the long post! I was diagnosed with B12 deficiency about a year ag...

Yogijo

•4 years ago

8 Replies

Weary cyclist.

Hi all, I've been on Hydroxocobalamin injections for 5 years, I'm a very keen cyclist and ride almost every day, sometimes up to about 80 miles, averaging at...

Hi all, I've been on Hydroxocobalamin injections for 5 years, I'm a very keen cy...

CyclingPete

•4 years ago

28 Replies

Injection/oral

Hey guys! My doctor found Hydroxocobalamin injections for me! But I took 2,000 mcgs under the tongue this morning unaware the injection he ordered would be in...

Hey guys! My doctor found Hydroxocobalamin injections for me! But I took 2,000 ...

CDALY474

•4 years ago

2 Replies

Tablets

Hi My friend has some spare B12 Methylcobalamin tablets, 1500mcg that she's offered me - is this a recommended dose? I've been having the injections (10...

Hi My friend has some spare B12 Methylcobalamin tablets, 1500mcg that she's offe...

Roses46

•4 years ago

18 Replies

3yrs later and Active B12 Results

After 3 years of treatment with injections and daily sublingual, I thought I would see where my levels are for the first time since before being diagnosed. I...

After 3 years of treatment with injections and daily sublingual, I thought I wou...

GGourmet

•4 years ago

5 Replies

Feeling jittery after first self injection

Hi guys, So I did my first self-injection yesterday; got the VITAMIN B12 Depot Rotexmedica ampoules from Amazon.de and Union Medico auto injector. Initial...

Hi guys, So I did my first self-injection yesterday; got the VITAMIN B12 Depot ...

DaveT81

•4 years ago

3 Replies

Covid and GP difficulties

Hi, not sure what to do. I have had problems getting my B12 due to Covid-19 and, like others on this forum, have had to fight for it. I got my local health...

Hi, not sure what to do. I have had problems getting my B12 due to Covid-19 and,...

Wellington1

•4 years ago

6 Replies

First time posting here...can anyone here discuss getting a diagnosis?

Hi, I already have hashimotos thyroiditis, but am seeking to find out whether I also have perncious anemia. The reason I am investigating this is because I...

Hi, I already have hashimotos thyroiditis, but am seeking to find out whether I ...

Auntbessy

•4 years ago

13 Replies

Rheumatoid Arthritis Diagnosis

Has anyone with PA ever been diagnosed with RA? It looks like I might have it - just had the xray's today, and blood tests tomorrow. If it is confirmed,...

Has anyone with PA ever been diagnosed with RA? It looks like I might have it - ...

JOLLYDOLLY

•4 years ago

10 Replies

Buying ampoules

Hi guys, my thanks to everyone who gave me help and advice on where to buy Hydroxocobalamin. Once I knew what to look for, the process of buying was so easy...

Hi guys, my thanks to everyone who gave me help and advice on where to buy Hydro...

olivia07

•4 years ago

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Methyl cobalamin side effects.

Any experience with methyl cobalamin side effects? I start to notice I'm starting to get restless, minor anxious and agitation after an injection of methyl...

Any experience with methyl cobalamin side effects? I start to notice I'm startin...

Geckowacko

•4 years ago

3 Replies

Not sure what to do

Hello everyone. Yesterday I had a phone call from my surgery to say they were re-starting B12 injections and (am I still interested???) Strange question. I...

Hello everyone. Yesterday I had a phone call from my surgery to say they were re...

briarhillcat

•4 years ago

9 Replies

Vitamin D2 results what does sufficient 39.3 what that means

What does that means sufficient vitamind2 results 39.3

Honey1978

•4 years ago

2 Replies

What were your Anti Parietal Cell Numbers?

What were your Anti Parietal Cell Numbers? Mine is right on the borderline of positive. Trying to figure out I have b12 of 422 and a slightly elevated MMA. I...

What were your Anti Parietal Cell Numbers? Mine is right on the borderline of p...

Max1777

•4 years ago

2 Replies

Tinnitus

My tinnitus is very bad and I read that low B12 can make it worse, what should my level be.

My tinnitus is very bad and I read that low B12 can make it worse, what should m...

alderney

•4 years ago

5 Replies

Iron levels

Should I take iron supplement ? My level was 49 if so what dose daily weekly ? Unsure My b12 went to 124 had injections 5 weeks worth plus folic acid

Should I take iron supplement ? My level was 49 if so what dose daily weekly ?...

Milley2

•4 years ago

19 Replies

Can I have some advice on my daughters bloods, please

Iron profile seems worrying, but doctors advised her to eat it up ^ She got b12 3 monthly for a year or more as it had been low before But they stopped it, a...

Iron profile seems worrying, but doctors advised her to eat it up ^ She got b12...

Suin

•4 years ago

14 Replies

Desiccated pigs stomach

My sister recently read research from 1930s and I was wondering if anyone knows anything about eating desiccated pigs stomach. By doing so they ingested pigs...

My sister recently read research from 1930s and I was wondering if anyone knows ...

PhilAB

•4 years ago

4 Replies

Back of Head

Did anyone have a weird pressure sensation at the base of their skull? I feel like someone is squeezing the base of my skull. My b12 is only 126 I’m trying to...

Did anyone have a weird pressure sensation at the base of their skull? I feel li...

CDALY474

•4 years ago

27 Replies

Hydroxocobalmin in US

So I went to a new doctor today who is willing to give me a prescription for hydroxocobalmin injections but we can’t find any pharmacy that carries it! They...

So I went to a new doctor today who is willing to give me a prescription for hyd...

CDALY474

•4 years ago

10 Replies

I feel body shamed

I am staring to feel down on myself and I am 28 years old. Well due to my precious anemia and autoimmune system I have gotten sick 2 times in the past two...

I am staring to feel down on myself and I am 28 years old. Well due to my precio...

mcginnmx

•4 years ago

4 Replies

How is PA diagnosed?

Hello everyone! I've found my way here from the TUK boards. I have recently discovered I have Hashimotos thyroiditis. I'm having full blood count and iron...

Hello everyone! I've found my way here from the TUK boards. I have recently dis...

Hidden

•4 years ago

15 Replies

Are these spots familiar to anybody? Pics attached

Hi all, not really sure where to go with this. But I want to start by saying this is not a rash, allergic reaction of anything to do with allergies. I've asked...

Hi all, not really sure where to go with this. But I want to start by saying thi...

DaveT81

•4 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2020

Thick blood question please

I'm so frustrated, I just want to scream!

B12/PA and lemon juice

Not anemic

Filter needles

Does anyone get head pressure after injecting Cytamen daily as a loading dose

Symptoms Reoccurring

Pins and needles/odd sensation in soles of feet - B12?

Weary cyclist.

Injection/oral

Tablets

3yrs later and Active B12 Results

Feeling jittery after first self injection

Covid and GP difficulties

First time posting here...can anyone here discuss getting a diagnosis?

Rheumatoid Arthritis Diagnosis

Buying ampoules

Methyl cobalamin side effects.

Not sure what to do

Vitamin D2 results what does sufficient 39.3 what that means

What were your Anti Parietal Cell Numbers?

Tinnitus

Iron levels

Can I have some advice on my daughters bloods, please

Desiccated pigs stomach

Back of Head

Hydroxocobalmin in US

I feel body shamed

How is PA diagnosed?

Are these spots familiar to anybody? Pics attached

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive