Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,045 posts

All posts for April 2022

What do you think? Advice please new to this.

Hi everyone, I’m new here because I honestly don’t know where to turn and need to hear from other people re my situation. About 5-7 years ago I had a...

Hi everyone, I’m new here because I honestly don’t know where to turn and need t...

Tellingbones

•2 years ago

12 Replies

Where could I get a genetic test done for B12 non absorption please?

I am coeliac but have been oob a strict gluten free diet for years. But although blood tests for B12 come back normal or sometimes over normal, I have the...

I am coeliac but have been oob a strict gluten free diet for years. But although...

Everdean

•2 years ago

15 Replies

Where to buy?

being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be...

being daft I spotted somewhere a link to site to buy supplements? Needing to ...

Polo22

•2 years ago

4 Replies

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Is iron infusion safe/ comfortable?

My wife's blood results have shown a a hb of 10. She used to have 12 ish. There is some lethargy she says and a while ago a GP suggested that if she struggles...

My wife's blood results have shown a a hb of 10. She used to have 12 ish. There ...

activelazy

•2 years ago

16 Replies

Hello It has come to my notice that I may be low in vitamin b12.

I have struggled with chronic fatigue, thyroid problems and tingling in arms hands legs and feet for years. I am also experiencing dizziness and palpatations....

I have struggled with chronic fatigue, thyroid problems and tingling in arms han...

Everdean

•2 years ago

10 Replies

Should Doctor have prescribed B12 injections?

Please advise if anyone else has experienced similar, and what treatment was. Feeling very tired and on occasions breathless when walking uphill. Blood test...

Please advise if anyone else has experienced similar, and what treatment was. Fe...

lardycake

•2 years ago

9 Replies

Can 2 + 2 ever make anything but 4

20 years ago my then GP diagnosed PA, and started me with injections. One of the symptoms I had at the time was burning feet at night. Since having the...

20 years ago my then GP diagnosed PA, and started me with injections. One of th...

Lilian15

•2 years ago

13 Replies

Injection nerves

10 years I’ve been giving myself my b12 injections, I’ve got coeliac disease so do not absorb b12 , I know how lucky I am that my understanding doctor...

10 years I’ve been giving myself my b12 injections, I’ve got coeliac disease so ...

Tanyanarialucia1965

•2 years ago

27 Replies

Confused .com.

I really am, confused. Bloods from June last year they didn't really explain but Plasma magnesium 0.82 mmol/L Serum vitamin B12 354.0 ng/L Serum...

I really am, confused. Bloods from June last year they didn't really explain bu...

Polo22

•2 years ago

26 Replies

GP Not 'following up' 6wks after diagnosing PA

I'm new here and getting more worried because at today's date 6wks have passed since my wife was diagnosed with PA by our GP. Having frightened my wife by...

I'm new here and getting more worried because at today's date 6wks have passed ...

red2022

•2 years ago

57 Replies

Different Types of Ampule Seals

I never understood what you all were talking about when you talked about breaking the glass vial open to use the B12. I recently ordered B12 vials from Canada...

I never understood what you all were talking about when you talked about breakin...

MoKayD

•2 years ago

20 Replies

B12 ampules

Hi everyone. Trying to stock up on B12 again but having probs. Versandapo are refusing my uk shipping address when ordering with Amazon pay, this normally...

Hi everyone. Trying to stock up on B12 again but having probs. Versandapo are re...

rocketrob01

•2 years ago

13 Replies

Functional vitB12 deficiency - anyone else?

I was diagnosed with a 'functional vitB12 deficiency' last year (I had high levels of MMA (methylmalonic acid) in my blood, but normal vitB12 levels in my...

I was diagnosed with a 'functional vitB12 deficiency' last year (I had high leve...

Dilly_blue

•2 years ago

41 Replies

Injection time of day

Is there a better time of day to do injections as far as getting the max benefit? Example: does it help to do them at night so I’m not active right afterwards...

Is there a better time of day to do injections as far as getting the max benefit...

lambuth_eagle

•2 years ago

4 Replies

Absorption of vitamins and Minerals in tablet form

Looking for some advice. I have a 3 monthly B12 injections due to poor absorption. My question is - will l have absorption difficulties with other vitamins...

Looking for some advice. I have a 3 monthly B12 injections due to poor absorpti...

Bialystok

•2 years ago

10 Replies

Thank You ,

Calmed down a bit now, still a bit fed up but still fighting . Looking through blood results though is really confusing. I spend time I haven't really got...

Calmed down a bit now, still a bit fed up but still fighting . Looking through b...

Polo22

•2 years ago

7 Replies

Buying B12 Cyanocobalamin in Australia

Wondering if anyone in Australia has had success buying B12 Cyanocobalamin either locally or overseas? Thanks!

Wondering if anyone in Australia has had success buying B12 Cyanocobalamin eithe...

ausdb

•2 years ago

6 Replies

DU Suppression Test and B12

Anyone heard of this test: DU Suppression and have any more recent info on this test? References provoking my question:...

Anyone heard of this test: DU Suppression and have any more recent info on this ...

B12life

•2 years ago

4 Replies

Has anyone done any genetic testing for B12 deficiency? If so, what ultimately did you achieve?

Has anyone done any genetic testing for B12 deficiency? If so, what ultimately did you achieve? I'm looking to get tested as I want evidence that I have a...

Has anyone done any genetic testing for B12 deficiency? If so, what ultimately d...

B12life

•2 years ago

27 Replies

What tests should be administered on a regular basis and how frequently for PA and/or B12 deficient patients?

Hi. I was just wondering how often PA and B12 deficient patients should be tested and for which tests? I am scheduled every 3 months to have a B12 test ( doc...

Hi. I was just wondering how often PA and B12 deficient patients should be test...

Hidden

•2 years ago

8 Replies

What is if any, the proper amount of B12 to self inject. 1ml, once a week, 2ml, once a week or 0.5ml every day. Twice a day, 0.3ml, for PA?

This site has been a tremendous help for me! I have been self- injecting 1ml of B12 subcutaneous once a week since, Nov. 8, 2022, there has been improvement....

This site has been a tremendous help for me! I have been self- injecting 1ml of ...

RisingOne

•2 years ago

18 Replies

Delusions/Hallucinarions

I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and...

I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. ...

sunshinebee

•2 years ago

2 Replies

MMA Test

Is anyone aware if recent B12 supplementation will throw off my results for an MMA test? I recently took 5000 mcg of b12 and am concerned that If I go some...

Is anyone aware if recent B12 supplementation will throw off my results for an M...

jrmuniz96

•2 years ago

9 Replies

Afraid of Permanent Damage/Dying

Hi, I'm suspicious that I may have really low B12 but the doctors haven't been able to identify that. My CBC's are normal but I can feel the pain and damage to...

Hi, I'm suspicious that I may have really low B12 but the doctors haven't been a...

jrmuniz96

•2 years ago

28 Replies

Seizures…..

Thank you everyone for your support over my previous post. It’s been really helpful…. As an update! After 18 months of seizures which have worsened I finally...

Thank you everyone for your support over my previous post. It’s been really help...

RoseFlowerDew

•2 years ago

7 Replies

Buy B12

Hi all I normally buy my b12 from Versandapo and pay for it through amazon. Never has any problems before but this morning they say my address is invalid. I...

Hi all I normally buy my b12 from Versandapo and pay for it through amazon. Neve...

Sunshine1932

•2 years ago

15 Replies

Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate

In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and...

In the category of "not helpful but interesting", I am sharing this paper decrib...

WiscGuy

•2 years ago

33 Replies

More negligence

My daughtef has 10 weekly NHS B12 injections . She is going on holiday. She has asked to have her b12 injection before she goes. Two days early. Refused. I...

My daughtef has 10 weekly NHS B12 injections . She is going on holiday. She has...

Nackapan

•2 years ago

32 Replies

B12 injections

I am new to this sight and very thankful to have found it! I have been recently diagnosed with pernicious anemia and am suffering from incredibly bad GI issues...

I am new to this sight and very thankful to have found it! I have been recently ...

CrossStitcher75

•2 years ago

7 Replies

About what should be put in a sharps bin.

i use a withdrawing needle to extract B12 from the B12 ampoule . 1) It is Blunt 2 It does not enter my body . Should this needle also go into the sharps...

i use a withdrawing needle to extract B12 from the B12 ampoule . 1) It is Blun...

wedgewood

•2 years ago

32 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2022

What do you think? Advice please new to this.

Where could I get a genetic test done for B12 non absorption please?

Where to buy?

Is iron infusion safe/ comfortable?

Hello It has come to my notice that I may be low in vitamin b12.

Should Doctor have prescribed B12 injections?

Can 2 + 2 ever make anything but 4

Injection nerves

Confused .com.

GP Not 'following up' 6wks after diagnosing PA

Different Types of Ampule Seals

B12 ampules

Functional vitB12 deficiency - anyone else?

Injection time of day

Absorption of vitamins and Minerals in tablet form

Thank You ,

Buying B12 Cyanocobalamin in Australia

DU Suppression Test and B12

Has anyone done any genetic testing for B12 deficiency? If so, what ultimately did you achieve?

What tests should be administered on a regular basis and how frequently for PA and/or B12 deficient patients?

What is if any, the proper amount of B12 to self inject. 1ml, once a week, 2ml, once a week or 0.5ml every day. Twice a day, 0.3ml, for PA?

Delusions/Hallucinarions

MMA Test

Afraid of Permanent Damage/Dying

Seizures…..

Buy B12

Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate

More negligence

B12 injections

About what should be put in a sharps bin.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive