Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for April 2019

Depression and loneliness

Does anyone else feel alienated from family and friends? I feel no one cares . I have lost touch with my friends since I quit going to bars.

Does anyone else feel alienated from family and friends? I feel no one cares . ...

JSpark10

•5 years ago

25 Replies

Pain in right side

I get sporadic muscle spasms under my rib cage on the right side of my body. The pain is so bad I can't sit straight up or cross my legs. I also get random...

I get sporadic muscle spasms under my rib cage on the right side of my body. The...

JSpark10

•5 years ago

10 Replies

Need some inspiration or just good stories

I’m waiting on my results for a blood test I just took to see if I have low b12. I guess I would just like to hear some hope of people this has affected long...

I’m waiting on my results for a blood test I just took to see if I have low b12....

Meblue

•5 years ago

45 Replies

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Advice on levels

Hi guys! Talked to my daughters primary doctor and she agreed to do weekly B12 injections for her pernicious anemia: again we are in the USA. Primary doctor...

Hi guys! Talked to my daughters primary doctor and she agreed to do weekly B12 i...

Lorstor

•5 years ago

2 Replies

Side affects

Hi, I’m new to the page. A few months ago I was diagnosed with pernicious anemia for my b12 deficiency and was put on the tablets for 3 months, I had another...

Hi, I’m new to the page. A few months ago I was diagnosed with pernicious anemia...

V-on

•5 years ago

4 Replies

Symptoms

Hi all, I’m new to this page as I wanted to know if anyone has any ways of dealing with symptoms. My injection always seems to wear off 3-4 weeks before it is...

Hi all, I’m new to this page as I wanted to know if anyone has any ways of deali...

Char19931

•5 years ago

10 Replies

Confused newbe re: low iron.

The hemotologist reported that if the next lab isn't good, it may be time to look at bone marrow because that's 'where the blood is formed'. But you all are...

The hemotologist reported that if the next lab isn't good, it may be time to loo...

Lynne0762

•5 years ago

5 Replies

In need of injectable Methylcobalamin

Hi, I just called Intravita to get my usual delivery of methyl and I'm told they're not longer selling it. They said to go directly to the manufacturer -...

Hi, I just called Intravita to get my usual delivery of methyl and I'm told they...

Rustypoo

•5 years ago

18 Replies

Helpful Neurologist

Just seen neurologist who has confirmed a type of Periferel Neuropathy. After reading some horror stories around how unhelpful some neurologists can be, I was...

Just seen neurologist who has confirmed a type of Periferel Neuropathy. After re...

Ritchie1268

•5 years ago

15 Replies

Peripheral neuropathy in legs

Want to hear from people with bad peripheral neuropathy in legs from this. How bad is your neuropathy? How long did you have it before you got treatment?...

Want to hear from people with bad peripheral neuropathy in legs from this. How ...

Meblue

•5 years ago

10 Replies

First SI, hurrah!

Just to let you good people know I did my first SI yesterday into my thigh muscle. I had a hot shower first to relax and kept warm. My husband watched the...

Just to let you good people know I did my first SI yesterday into my thigh muscl...

mountainice

•5 years ago

25 Replies

mattman2018

hi i would like to reply to mattman,i have had an email from you but it has not appeared on my post so sorry about that ,i was thinking about what 'ist' i...

hi i would like to reply to mattman,i have had an email from you but it has not ...

flosslechops

•5 years ago

6 Replies

New symptom of tingling and numbness in one foot but self injecting for 18 months. Any ideas on cause?

Hi, Have been self injecting for some time. Alternate day injections keeps my balance problem under control. Have had more stress added to ongoing problems...

Hi, Have been self injecting for some time. Alternate day injections keeps my ba...

Highland49

•5 years ago

16 Replies

B12 deficiency likely down to Ferritin

I really hope this helps somebody. I really don’t want to sound like I’m moaning. I am 54 years of age and have spent my life from about the age of 19 ( I...

I really hope this helps somebody. I really don’t want to sound like I’m moanin...

Hidden

•5 years ago

10 Replies

Is it MS or b12 deficiency

I am very confused. What is the difference between multiple sclerosis and pernicious anaemia. The symptoms and the damage that can be done by either appears...

I am very confused. What is the difference between multiple sclerosis and perni...

toph

•5 years ago

1 Reply

high blood sugar

hi everyone,i have had what i now realise to be PA/b12d symptoms all my life.i went to see gp last year with i thought was RA/lupus (had full butterfly rash...

hi everyone,i have had what i now realise to be PA/b12d symptoms all my life.i w...

flosslechops

•5 years ago

28 Replies

Can someone explain results Iron test

Doct has put me on iron supplements also offered infusion if i wanted?

sbadd

•5 years ago

16 Replies

Hi, new here, so much to learn

Hi, Over the past week I've felt terrible- shaky, fatigue, mental sluggishness, heavy arms, no appetite. I was shaky for a few weeks but to a lesser degree....

Hi, Over the past week I've felt terrible- shaky, fatigue, mental sluggishness,...

deedeebee

•5 years ago

4 Replies

How to define PA?

I don't even know if I've got pa, I'm getting the B12 injections on a 3 monthly cycle, and had a course of folic acid tablets for 2 months, then was told I was...

I don't even know if I've got pa, I'm getting the B12 injections on a 3 monthly ...

Cb1963

•5 years ago

7 Replies

Ataxia

Can someone explain ataxia? Is this common with b12 deficiency?

Meblue

•5 years ago

9 Replies

Confused.com

I recently joined healthunlocked and posted regarding my lack of B12 injections since turning 50 5 years ago. I saw my doctor a couple of weeks ago and...

I recently joined healthunlocked and posted regarding my lack of B12 injections ...

Hidden

•5 years ago

12 Replies

B12 levels 238 to 2000. Advice please.

In December I presented with some pretty awful symptoms and was diagnosed as folate deficient. However after 2 months of folic acid still felt unwell so...

In December I presented with some pretty awful symptoms and was diagnosed as fol...

Awil

•5 years ago

14 Replies

Shocking GP attitudes

I generally find GP's are keen to just get rid of you ASAP any excuse to get rid - Recently I have had blood test - Chest Xray - Lung Function test - Folic...

I generally find GP's are keen to just get rid of you ASAP any excuse to get rid...

besshilldad

•5 years ago

2 Replies

Please monitor Iron and others while being treated b12

So after struggling since b12 injections in Jan, just had my doct retest iron which hadn't been tested since dec which was 16 normal range 10-30 Results just...

So after struggling since b12 injections in Jan, just had my doct retest iron wh...

sbadd

•5 years ago

10 Replies

My Neurological Symptoms Won't Improve Any Further

I am 20 years old and my B12 deficiency started to show 7 years ago but was recently self-diagnosed by me.I had B12 level of 140.I went to the doctor and he...

I am 20 years old and my B12 deficiency started to show 7 years ago but was rece...

JhonnyBoy

•5 years ago

25 Replies

20% off all medichecks tests today for 5 days .

Might be useful for someone !

wedgewood

•5 years ago

2 Replies

Heading towards deficiency?

Hey all I'm pretty new to this so apologies for the long post. I'm 23, diagnosed with autoimmune hypothyroidism in 2017 but levels now "stable", I have been...

Hey all I'm pretty new to this so apologies for the long post. I'm 23, diagnosed...

threef

•5 years ago

8 Replies

Neurologist

Hello. All. I'm a 35 year old bloke who's been diagnosed with prenisious anemia.. my doctor is brilliant and is helping me as much as she can. I was having my...

Hello. All. I'm a 35 year old bloke who's been diagnosed with prenisious anemia....

Pete-saus1

•5 years ago

3 Replies

Autoimmune Gastritis

My best friends daughter was diagnosed with autoimmune gastritis today. She is 17. If I understand correctly it's really rare. Does anyone have this disease...

My best friends daughter was diagnosed with autoimmune gastritis today. She is ...

Sheldonmick

•5 years ago

4 Replies

B 12

Hi I'm new here . I have cfs/me . Which I thought meant that I would have low b12 so like the other post my blood tests said I was 900 over . But what they...

Hi I'm new here . I have cfs/me . Which I thought meant that I would have low b1...

debbs28

•5 years ago

9 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2019

Depression and loneliness

Pain in right side

Need some inspiration or just good stories

Advice on levels

Side affects

Symptoms

Confused newbe re: low iron.

In need of injectable Methylcobalamin

Helpful Neurologist

Peripheral neuropathy in legs

First SI, hurrah!

mattman2018

New symptom of tingling and numbness in one foot but self injecting for 18 months. Any ideas on cause?

B12 deficiency likely down to Ferritin

Is it MS or b12 deficiency

high blood sugar

Can someone explain results Iron test

Hi, new here, so much to learn

How to define PA?

Ataxia

Confused.com

B12 levels 238 to 2000. Advice please.

Shocking GP attitudes

Please monitor Iron and others while being treated b12

My Neurological Symptoms Won't Improve Any Further

20% off all medichecks tests today for 5 days .

Heading towards deficiency?

Neurologist

Autoimmune Gastritis

B 12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive