Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,843 members • 6,852 posts

Sort posts by:

Autumn booster Covid vaccine

hi Does anyone know which vaccines will be offered in the Autumn for Covid. I want to make sure is not last years stock and therefore would not protect...

hi Does anyone know which vaccines will be offered in the Autumn for Covid. I ...

Main1234

•5 days ago

4 Replies

ACTREMA FOR GPA

I am concerned about this blood sugar rising with Prednisone issue, has anyone with GPA gone quickly onto Actrema? Say within week or 2 of starting treatment

I am concerned about this blood sugar rising with Prednisone issue, has anyone w...

Oztrax

•6 days ago

7 Replies

PREDNISONE ALTERNATIVE

was looking at info on GPA initial treatment, and t A doctor/rheumatologist (USA) mentioned using a drug instead of steroids for initial treatment that was...

was looking at info on GPA initial treatment, and t A doctor/rheumatologist (US...

Oztrax

•6 days ago

3 Replies

Want to take advantage of all our features? Just log in!

HOW LONG DO FLAIRS LAST

Since I am new to this, how long do these flairs last ? or is it a variable thing.

Since I am new to this, how long do these flairs last ? or is it a variable thin...

Oztrax

•6 days ago

13 Replies

VASCULITIS CLASSIFICATION:

need help here , GCA is a large vessel vasculitis but it shows up on the temporal artery which is not a large vessel. PAN is medium vessel, but cant even find...

need help here , GCA is a large vessel vasculitis but it shows up on the tempor...

Oztrax

•9 days ago

24 Replies

COGANS SYNDROME

There are around 500 cases of this in the world, so is extremely rare, which means diagnosis becomes even more difficult. CG as its referred to is a form of...

There are around 500 cases of this in the world, so is extremely rare, which mea...

Oztrax

•10 days ago

16 Replies

Cogan's syndrome

Hello! So I was diagnosed with Cogan's in Oct 23. It all started with severe ear pain after my second COVID vaccine which progressed to hearing and balance...

Hello! So I was diagnosed with Cogan's in Oct 23. It all started with severe ear...

Popple18

•11 days ago

11 Replies

Cogan's syndrome

Hello! Does anyone here have Cogan's syndrome? I was diagnosed last year. My symptoms started straight after my second COVID vaccine and worsened after my 3rd....

Hello! Does anyone here have Cogan's syndrome? I was diagnosed last year. My sym...

Popple18

•11 days ago

Be the first to reply

How to get a diagnosis?

Hi. I'm would like to know how long it take for a diagnosis if you don't have anca in the blood test. I had skin problem but i wasn't able to get an...

Hi. I'm would like to know how long it take for a diagnosis if you don't have an...

Shadow35

•11 days ago

5 Replies

EGPA x Skin nodules

Hello, I am new to this forum and my husband has EGPA, diagnosed in 2019.He's currently prescribed mycophenolate, pred 15mg x has nucala injections once a...

Hello, I am new to this forum and my husband has EGPA, diagnosed in 2019.He's cu...

Beaniebabe

•13 days ago

3 Replies

THYALAZINE AND THIAZIDE VASCULITIS

Does anyone have experience or more info on drug induced vasculitis fom Thyalazine or Thiazide ?

Does anyone have experience or more info on drug induced vasculitis fom Thyalazi...

Oztrax

•13 days ago

1 Reply

VASCULITIS AND VEINS

Can vasculitis affect larger veins ? I think the larger veins in my scalp are inflamed and very sore, can trace them under the skin and seem to correlate...

Can vasculitis affect larger veins ? I think the larger veins in my scalp are ...

Oztrax

•13 days ago

16 Replies

GCA Diagnosis, Arm/Leg Vasculitis?

Hello, I was diagnosed with GCA this past April in the emergency room. I was experiencing lightening jolts of pain on the right side of my head and had very...

Hello, I was diagnosed with GCA this past April in the emergency room. I was ex...

Moaningxcat

•14 days ago

14 Replies

ANCA BLOOD TEST

Hello everyone, after nearly 3 years of struggling with severe fatigue, inner ear issues, vertigo, headaches and inflamed arteries in various areas, specialist...

Hello everyone, after nearly 3 years of struggling with severe fatigue, inner ea...

Oztrax

•15 days ago

11 Replies

New Girl

Hello I’m new to this-just diagnosed with GCA. Interested in comments re Preds as I’ve been started on 60mg a day feel great but highly animated so only sleep...

Hello I’m new to this-just diagnosed with GCA. Interested in comments re Preds a...

Obscureclouds

•16 days ago

22 Replies

Biopsy injection

Hi has anyone had a skin biopsy on their shin/leg for suspected hsp/ Vasculitis?Iv got a biopsy on Wednesday and I'm really worrying and anxious. Is the...

Hi has anyone had a skin biopsy on their shin/leg for suspected hsp/ Vasculitis?...

Avocado_deb

•16 days ago

5 Replies

Scottish Winter 2024 Covid/flu vaccination programme

Full details from the Scottish Chief Medical Officer for the upcoming flu and Covid vaccination programme in Scotland. Click through to the PDF to see the full...

Full details from the Scottish Chief Medical Officer for the upcoming flu and Co...

vivdunstan

Volunteer•16 days ago

1 Reply

Bronchiectasis

Dx with GPA in 2015, now newly dx with Bronchiectasis. Really really struggling, & doesn’t appear to be much available to help. Just wondered if anyone could...

Dx with GPA in 2015, now newly dx with Bronchiectasis. Really really struggling,...

Bouchaud20

•17 days ago

17 Replies

Suggestions on how to prevent infection/sepsis while on prednisone?

Hi everyone Does anyone have any suggestions on how to prevent infections or sickness while on prednisone? I've only been on a month and feel like i'm getting...

Hi everyone Does anyone have any suggestions on how to prevent infections or si...

RiviS7

•17 days ago

23 Replies

2nd Shingrix Vaccination

Was due to have my 2nd jab last week but the surgery cancelled due to staff sickness. Am booked in for Monday but feeling like I have a cold starting. Hence I...

Was due to have my 2nd jab last week but the surgery cancelled due to staff sick...

Daisyboodle

•18 days ago

5 Replies

Covid Again - Watch this Space - Summary

Well here we are 27 days since my original post, having 2 x Negative tests in a row. Here are the summary points of what I have learnt. 1/ You can get through...

Well here we are 27 days since my original post, having 2 x Negative tests in a ...

Investigator1

•20 days ago

16 Replies

HSP rash & other symptoms

I came out In a horrible rash on my lower limbs 5 weeks ago. Ot started to clear but has reappear again and it has gone up thighs and tummy and arms hands now...

I came out In a horrible rash on my lower limbs 5 weeks ago. Ot started to clear...

Avocado_deb

•21 days ago

13 Replies

Eye Problems

Hi All. I have started to have problems with my eyes. No pain but am getting a cloudy discharge and a rash and swelling around both eyes. Has anyone had...

Hi All. I have started to have problems with my eyes. No pain but am getting a c...

EGPAGuy

•22 days ago

15 Replies

medication for restless legs

My OH often suffers from restless legs he has GPA vasculitis. He has obtained some tablets from the US that are not available in the UK and I wondered if...

My OH often suffers from restless legs he has GPA vasculitis. He has obtained...

Main1234

•29 days ago

20 Replies

Temporary Stop Endoxan/Cycloph

Hello, I have renal limited ANCA vasculitis. Started Induction almost 4 months ago with 2 Rituximab infusions and Prednis 60mg. After about 3 months was...

Hello, I have renal limited ANCA vasculitis. Started Induction almost 4 months ...

Support_helps

•1 month ago

Be the first to reply

Covid again - watch this space!- Update

Hi all, remember my post above from last week well I said I would update Monday after the test. You guessed it…. I fell really ill. I went out for a walk...

Hi all, remember my post above from last week well I said I would update Monday ...

Investigator1

•1 month ago

4 Replies

Compression socks for travel

Hello, wondering if anyone has a good experience with compression socks for long haul travel? I do experience some feet swelling these days during the day...

Hello, wondering if anyone has a good experience with compression socks for long...

Support_helps

•1 month ago

7 Replies

Laryngitis symptoms - vasculitis flare?

Hi folks I've got laryngitis symptoms (pretty sure it isn't an infection as I don't have any infection symptoms and feel generally fine - tickly throat,...

Hi folks I've got laryngitis symptoms (pretty sure it isn't an infection as I d...

Grizzly-bear

•2 months ago

11 Replies

Covid again - watch this space!

Hi all, sorry I have been a bit inactive recently but not much to tell you all. They say better late than never so here goes. As you are aware I am being...

Hi all, sorry I have been a bit inactive recently but not much to tell you all. ...

Investigator1

•2 months ago

7 Replies

Gut problems with Pavlovid

hiya, never posted before but just seeking advice. I have GPA was diagnosed at the start of COVID. I currently take azathioprine. After avoiding it for all...

hiya, never posted before but just seeking advice. I have GPA was diagnosed at t...

Sweetpea0508

•2 months ago

9 Replies

Write a post or ask a question

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

Autumn booster Covid vaccine

ACTREMA FOR GPA

PREDNISONE ALTERNATIVE

HOW LONG DO FLAIRS LAST

VASCULITIS CLASSIFICATION:

COGANS SYNDROME

Cogan's syndrome

Cogan's syndrome

How to get a diagnosis?

EGPA x Skin nodules

THYALAZINE AND THIAZIDE VASCULITIS

VASCULITIS AND VEINS

GCA Diagnosis, Arm/Leg Vasculitis?

ANCA BLOOD TEST

New Girl

Biopsy injection

Scottish Winter 2024 Covid/flu vaccination programme

Bronchiectasis

Suggestions on how to prevent infection/sepsis while on prednisone?

2nd Shingrix Vaccination

Covid Again - Watch this Space - Summary

HSP rash & other symptoms

Eye Problems

medication for restless legs

Temporary Stop Endoxan/Cycloph

Covid again - watch this space!- Update

Compression socks for travel

Laryngitis symptoms - vasculitis flare?

Covid again - watch this space!

Gut problems with Pavlovid

Search posts

Pinned Posts

Latest poll

If you have had covid and contacted a medical professional/hospital what medication/treatments were you offered?

Topics

Archive