Protect-V trial: I have vasculitis GPA and... - Vasculitis UK

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Protect-V trial

Gurberly profile image
5 Replies

I have vasculitis GPA and have regular infusions of rituximab which is an immunosuppressant. On a recent trip to Addenbrookes (Cambridge Hospital) to see my consultant they signed me up to take part in the Protect-V clinical trial. An anti covid vaccine.

Anyone else here involved in that trial or any other trials?

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Gurberly profile image
Gurberly
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piglette profile image
piglette

The PROTECT-V trial is a collaborative endeavor between India and the United Kingdom.

Gma61 profile image
Gma61 in reply to piglette

Yes I have been doing it and all ok. Same with infusions too.3 x visits the rest in 2 to 5 minsn telphone call.

BronteM profile image
BronteM in reply to piglette

Yes, signed up by Addenbrookes too. Been to my first two appointments….the rest has been a few minutes of straightforward questions. No side effects from the infusion that I’ve noticed.

Mooka profile image
Mooka

I had my infusion in February. I thought I had the placebo because I had no side effects but apparently that’s been the case. The staff are lovely and treat you to tea and biscuits when you go. They do like to do additional tests four weeks after you have a Covid jab so maybe a good idea to time this to match your normal appointments.

Gurberly profile image
Gurberly in reply to Mooka

I think I have had an armful of salty water too 😀 No side affects here. I've got the four week follow up appointment coming up which I assume is just for bloods. Hopefully I'll get a cuppa and some biscuits too😄

I've not been able to get a covid booster around my way. Hoping they will start again doling those out next week 04th Sept is in my mind for some reason

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