change to leflunomide : Hi can anyone give any... - Vasculitis UK

Vasculitis UK

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change to leflunomide

gco34 profile image
7 Replies

Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!

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gco34
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PMRpro profile image
PMRpro

Did you mean to post here since you say you have SLE? This is the Vasculitis forum - just wondered.

gco34 profile image
gco34 in reply toPMRpro

I attend vasculitis clinic

gco34 profile image
gco34 in reply togco34

Am I on wrong site?

PMRpro profile image
PMRpro in reply togco34

No not necessarily, but there is a lupus forum here too - that's why I asked

jamesroybuck profile image
jamesroybuck

I had the same dilemma a few years back , after seeking medical advice I was advised to stay on Warfarin ; better the devil you know than the devil you dont.

zeddy54 profile image
zeddy54

Hi. My personal experience with leflunamide several years ago, was suffering terrible migraines. I persisted for about 8 weeks, but migraines didn't resolve or reduce so I came off this drug. Unsure how common this side effect is.

Good luck and best wishes.

gco34 profile image
gco34 in reply tozeddy54

Hi thanks I often get migraine now so not good 👍🏻 Thank you

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