angel54 : Hi guys , Sny advice I fractured my... - Vasculitis UK

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angel54

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Hi guys , Sny advice I fractured my back badly 3 yrs ago ,I have had T/C alls but never been seen this all happened before covid, I had a recent spinal scan and was told I have cysts on my kidneys, now waiting to see what’s happening next , can’t do nothing for my back and find it difficult to walk , this has changed my life , also having RA , Sjorgen’s, Osteoarthritis , Intestinal lung problem , thyroid problems , prolapse bladder , im now feeling that I’m slowing down , don’t want any operations , if I ring Gp they tell you to contact RA , and they tell you to contact GP I give up 🤦‍♀️

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Aerobobcat

Hi Angels54, I do empathise with you. I too have similar health issues to yourself. I suffer from Behcets syndrome, blood cancer CLL, joint issues but also spinal problems the list goes on.

I injured my back in 1987 and was told it was a slipped disc and it wasn’t until 1994 that I was told by a physio “you have a broken back”.

Since then I have been diagnosis with a Pars fracture of L5 vertebrae at S1 and forward slip of the same. Also degenerative discs L2 to L5 it goes on.

Like you my recent MRI confirms all the above but also highlights a lesion of my left Kidney.

Walking has become very difficult and extremely painful over the years not helped by also having suffered from deep vein blood clots since my teens.

I am only sorry that I am unable to help you in anyway, I too am finding it extremely frustrating trying to get answers let alone effective treatment.

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