Hi,
My husband has Wegeners treated with Ritiximub and steroids, all though the pandemic received all the letters about shielding but has not received the priority at home PCR.
Anyone who has received it did this come from your GP, consultant or a separate team?
Wondering who we need to contact to get one especially as rates are now so high.
Thank you!
Just commenting to say I’m exactly the same as your husband and not received a PCR for at home use. If I get covid I was planning on calling my renal consultant who I believe would get me access to whatever I needed.
Did you get the letter/email saying you could access the anti viral medication?
No I didn’t receive anything. But I know both rituximab and Prednisolone should make me eligible.
They seem now to be advising using the LFT tests and have been sending out packs to people considered as vulnerable.
They have changed the plan to use PCRs to sending us Lateral Flows instead. See my earlier post on this entitled A change of plan for testing the vulnerable. However, if you didn't receive the PCR kit, then you may not automatically receive the special Government LFTs. Everything I've received has been directly from the NHS through GOV UK I think. The email came from COVID Treatments. They say you should only use these Government supplied LFTs in order to get the treatments, and not any others. I'm sorry I'm not sure how you go about sorting this out.
Thank you. I’ll email the GP and the consultant and see what they say.
You now don't need the PCR test. You have to do an LFT and report it to the NHS app if it's positive.
There are different schemes in Scotland so it may depend on where you live?
We’re in England so should have received the LFTs
Mine just came through the post recorded delivery. Not sure were it came from though.I've also received a box of LFT'S.
I to have GPA had rituximab now on azathioprine but not working so due to start rituximab soon. Also been on pred since diagnosis
Same Vqueen, I got an email about 10 days ago saying if I test positive to report it as other treatments are immediately available & got a box of tests delivered today. Good service I think. Someone’s looking out for us!
Have emailed the consultant and Gp. Hopefully one of them will sort it out!
My email came from NHS England. This link showing eligibility was posted on the dodgy lung site.
england.nhs.uk/coronavirus/...
Hopefully it will help if you need to show it to someone. Good luck.
Thank you x
I am same, but I have been fighting since January for my 4th jab and access to PCR and anti virals, GP doesnt want to know! x
Also on Rituximab and consultant advised ringing 119 the Track & Trace number to order the priority PCR tests. They sent me through 3 the very next day.
Hi puttystuff I ordered mine via the covid app. To keep at home when needed
I have GPA and was sent a box of LFTs a couple of weeks ago. I picked up Covid last week and tested positive, recorded the test on the website. I pretty soon got contacted by the specialists at the hospital, who advised me to stop taking Methotrexate for a couple of weeks and double my dose of prednisolone. My GP got in touch and arranged for a pulse oxymeter to make sure my breathing was ok, and anti virals were sent out to me. I have to say the response from the NHS has been excellent. Luckily for me, my symptoms were nothing worse than a very slight cold, but I'm still testing positive at the moment.
Really could use some reassurance, if such a thing exists
Received a Call for PET/CT Scan
Invitation to participate in a study
A question on behalf of someone else, asked this morning by email, a new member to Vasculitis UK
Ideas for working from home? 
