Assistance would be very much appreciated! - Vasculitis UK

Vasculitis UK

7,779 members6,751 posts

Assistance would be very much appreciated!

Marieke66 profile image
9 Replies

My daughter has asked me to post the following: I am approaching the end of my International Relations degree, and decided to focus my dissertation on how the health policies and response, or lack thereof, to COVID-19 has impacted those who are Clinically Extremely Vulnerable. I’m passionate about highlighting and researching where it went wrong, so in future pandemics, we get it right from the start. Watching my mum struggle through the past two years really pushed me to focus my research on this.

If you have the time, please consider completing the linked survey. It is completely anonymous, you do not need to include any personal or medical details, nor any contact information. You don’t need to answer some questions as well. If you are in any other groups who may be interested in filling out this survey, please feel free to share it, amongst friends and family too. Thank you for your time!

s.surveyplanet.com/7e3ul1vy

Written by
Marieke66 profile image
Marieke66
To view profiles and participate in discussions please or .
9 Replies
DorsetLady profile image
DorsetLady

Have shared on PMRGCAuk forum.

Have been asked - is it UK based only?

Marieke66 profile image
Marieke66 in reply to DorsetLady

Thank you so much for sharing. The questions are Uk specific but it would be interesting to receive short testimonials from people's experience in other countries.

PMRpro profile image
PMRpro in reply to Marieke66

Where would you like such testimonials? I live in Italy, there was no shielding as such and next to no support but I never felt particularly unsafe - but the regulations were tighter than the UK and reinforced by the police! There hasn't been the same lack of access to GPs and dentists for example and if you needed it, there was reasonable access to medical care. There seems to be more access since last autumn than in the UK and things seem back to normal. And I certainly perceive things as safer now than the UK - we still have mandatory FFP2 masks in certain situations!

Marieke66 profile image
Marieke66

Thank you very much for sharing your experiences in Italy, it's good to get a broad view.

Varp profile image
Varp

I've filled it in. Best wishes to your daughter.

Marieke66 profile image
Marieke66 in reply to Varp

Thank you so much 💕

Telian profile image
Telian

Have completed the survey and good luck to your daughter.

Brussels profile image
Brussels

Hi,

For this to be research there needs to be a participant information sheet and ethical approval from the University, this survey seems to have neither. Does your daughters academic supervisor know that they have put together this survey? It may well be invalid as they don’t appear to have followed due process.

GPAJuneWoman profile image
GPAJuneWoman

I'd like to fill this in but wasn't CEV at the start of the pandemic only since 2021. SO the questions, don't quite fit.

You may also like...

Unsure on what this all means. Any advice would be very much appreciated.

what and if a diagnosis is/had been made. Thank you 😊

I have just been diagnosed with Vasculitis WG and feeling very confused and would appreciate any advice from anyone who can help?

effect on my health. I would be very grateful for any advice or help anyone might be kind enough to...

UPDATE: More than hundred responses! We did it!

take part. Please read the attached information sheet. If you have any questions, please contact...

Too much aziathioprine in system

been feeling a bit unwell for a few months now - completely wiped out, headaches and sickness that...

New to this site, with so many questions! Any help would be very gratefully received.

vasculitic lesions. She told me to let her know if I got any sores on my fingers tips, & hey presto...