Vasculitis?: Hi, I’m just waiting on my blood... - Vasculitis UK

Vasculitis UK

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Vasculitis?

CarolineLL profile image
7 Replies

Hi, I’m just waiting on my blood test results but I think it’s Vasculitis. Started as a red non blanchable rash all over my legs, swollen ankles and knees. It’s now fading and turning into yellow bruising. Is this typical? Would appreciate your feedback.

Thanks, Caroline

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CarolineLL profile image
CarolineLL
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7 Replies
Main1234 profile image
Main1234

My OH had a rash like this plus sinus issues before he was diagnosed with GPA. You will find the vasculitis helpline literally a life saver plus the vasculitis uk web site for more information if you are diagnosed with vasculitis.

Wishing you well

CarolineLL profile image
CarolineLL in reply toMain1234

Thank you so much! I’d had sinus problems a few weeks before. Although this happened 9 days after my Covid vaccine.

lemon74 profile image
lemon74

This looks very like the rash I had weeks before being diagnosed with vasculitis. I hope your blood results help get you the right treatment. It can take time but will keep you well :-) take care x

CarolineLL profile image
CarolineLL in reply tolemon74

Thanks very much x

louise112 profile image
louise112

Hi Caroline, I have had this rash twice. The second time it was accompanied by pneumonia and after 2 1/2 weeks I was sent to hospital and diagnosed with EGPA. The rash turned into ulcers and I had it for 5 months because of the cycloposphamide and predisolone treatment it wouldn't heal. They eventually gave me strong antibiotics that cleared it up within 3 weeks. Don't touch it. I will show you pics of mine when it first started with swollen feet, ankles and legs and how it can turn out.

CarolineLL profile image
CarolineLL

Thanks very much Louise. I'm currently on antibiotics and steroid cream. Did it turn into bruising eventually when it was healing?

louise112 profile image
louise112

The first rash I got was only on the 1 leg it did clear up with yellow brushing. I didnt know what I had at that stage. The second time I got the rash it went crazy. All the best with your diagnosis and treatment Caroline. I have been on antibiotics since June 2019 along with the rest....

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