Toe cramps

[TurtleWings]

I’ve recently been diagnosed with vasculitis. We’re still unsure of what kind. Or if there’s an underlying co-morbity. My calf’s were hurting really bad at night but now I’m having severe toe pain and locking and then cramping of my toe joints. It’s usually at night although I have during day to. On vacation so probably won’t go see my doctor for a few weeks. Anyone ever had this and what can I do?

[Wageners]

I have Wagener's granulomatosis, i am 3 years in on rituximab and I still get severe toe spasms

[Chris-Bromsgrove]

I had toe, foot and calf cramps which mainly occurred at night in bed. It was quite severe initially but they gradually went away during the initial treatment. I guess they lasted for about 3 months

[TurtleWings in reply to Chris-Bromsgrove]

They still don’t know what kind of vasculitis I have. Got really good bloodwork concerning inflammation so they don’t seem to care. Finally had a doctor say ok you didn’t have cancer when urologist did exam but exactly what is causing gross chronic hematuria. I said I don’t know I guess they’ll tell me in 6 months. The urologist was worried about my bladder. Don’t think they’ve thought yet about kidneys. Lol.

[TurtleWings in reply to TurtleWings]

Oh and thank you for your response it helps so much to talk to others about this.

[Rarity1]

Hi, I’ve suffered from quite severe cramps in my legs,feet,hands and forearms so you’re not alone!! I’ve bought supplements containing potassium, magnesium etc and this has helped slightly along with keeping up with fluids

[TurtleWings]

Thank you for your response. Just wasn’t sure if it was related to Azathioprine or my condition so this helps a lot.