I had got myself into a good position with my ANCA marker after Cyclophosphamide and Prednisolone and after monthly blood tests it’s started to creep up from 40 to 51 to 62. Not a massive increase and no returning symptoms. The last blood test results for ANCA was early August because I had to go local for blood tests in September and they cocked it up. Anyway my point is folks it was only a week before my last ANCA Test my specialist put my Azathioprine dose up from 100mg per day to 150mg. So my questions are:
1/ Is a week too early between increase in dose and test to see a difference?
2/ Has anybody had instances where Azathioprine just doesn't work?
3/ Am I being over optimistic re timescales.
My Specialist doesn't seem worried but I am not due to see her and have my bloods done until 12th Oct so I have taken things into my own hands and got my GP yesterday to book me an ANCA Test for next week, the results will then be available for my specialist when I go in October. It will be 8 weeks between ANCA tests so I am hoping for positive news. All my other bloods I.e Kidney, Liver, Haemoglobin are spot on. It’s chaos at the hospital where my specialist is now because Covid is taking over again.