EGPA & Night sweats

[Miriii]

Does anyone still get severe night sweats even though your EGPA is in remission?

[AmyS1]

Maybe you are not fully.in remission??

[Miriii in reply to AmyS1]

( for my mum ) According to the immunologist she is in remission, unless she is experiencing relapse. She has no other symptoms other than that. I hope its just her medication.

[Neolamp]

I had terrible night sweats whilst I was still taking Prednisolone, but since I have stopped the steroids, they've now gone.

[Miriii in reply to Neolamp]

Thank you for your reply. My mum is the one with egpa, & was diagnosed last year. Before she was diagnosed she was experiencing night sweats, then they stopped and was off and on. She is now on 8mg and has started to experience them again. I hope this is not a relapse.

Did you still get yours while on lower dosage prednisone?

[bargibar]

Yes I also still get these and I am in remission maybe its because i'm still on mycophenolate although i'm no longer taking steroids.

[Miriii in reply to bargibar]

Thank you for your reply. For now ill just put it down to steroids and methotraxate untill i see the immunoligist. The GP doesnt seem to be worried or phased by it, but to me its still concerning.

[Hidden]

Most people relapse with the symptoms they had when first diagnosed. For that reason alone it’s worth getting in touch with her Immunologist, especially if the GP doesn’t understand the potential significance of symptoms.

That doesn’t mean your mum is relapsing but you are concerned enough to ask for advice here.

[grindhaus]

I have EGPA, considered in drug induced remission. I would often get night sweats, then be soaked, then I'd get chilled... etc.

My prednisone is now at 15mg, and have less of that, more of the tremors at night, shaking and shivering, not really chilled. Oh, and the teeth chattering.... don't know what's that's about. I'm chalking up most of the weird and unusual symptoms to the pharmacy of drugs that I take.