Neuropathy and joint pain

[Mrsszyb]

Good morning

Would like to know if any of you are experiencing neuropathic pain? Lately my feet have pins and needles. One moment they feel as though they are in a bucket of ice, the next they are burning. I am also experiencing aching pain in my trochanters and ischium. MD has increased my pred to 20mg daily and I received cortisone injection s to both ischial bursa but am still experiencing pain. It is really getting me down. Any advice would be most appreciated.

Thank you!!

Peggy

[PMRpro]

What is your diagnosis?

I have similar problems but raising the oral pred dose doesn't really help. In my case it is due to myofascial pain syndrome and trochanteric bursitis - injections help the bursitis but not the MPS entirely. That needs the ministrations of a physiotherapist or therapeutic massage therapist to releace the tight muscles, usually the piriformis is involved, which usually prevents the bursitis recurring.

[2534]

Hi Messzyb!

Yes I have a small fibre neuropathy with my mpa. In my case, and this is very rare btw, I have burning feet syndrome or erythromelalgia. The is also a thing called Raynauds which is much more common but which goes the others way which is to feel freezing cold in the extremities (fingers, toes etc) and when they are warmed up again there is a lot of pain. Just in case the medics run out of options you now have a couple of names you could try on them

I am not sure where the ischium and trochanter are but I have had serious degeneration of hip and shoulder joints and 3 of these have been replaced. It is thought I also have rheumatoid arthritis but even after years and a number of excellent specialists, the jury is still out on that one. Prof David Jayne is considering if it might be rheumatoid Vasculitis, but you haven’t mentioned anything treat wd suggest that. Prof Jayne is really excellent if you are in the uk. All the best. Ajh

[Mrsszyb in reply to 2534]

Hi

The ischium and trochanters are both located in the area of the hip. And yes I have been told that I have Raynauds. I am here in the US and I see Dr. Niles at MGH.

[michichgo]

Hi Peggy.

I was diagnosed with MPA nearly six years ago. I struggle with neuropathic pain in my hands, fingers and feet. I've been taking prescription Gabapentin, which I believe quite a few other vasci patients take, and it helps. I wish you relief soon.

Cheers and be well.

Michele