Signs of improving reading ability (living with cerebral vasculitis)

[vivdunstan]

I've just blogged about improvements I'm currrently detecting in my ability to read print, which has been severely hampered since I fell ill with cerebral vasculitis in 1994. Anyway it may be of interest to folks here. To detect any signs of improvement at all after this many years, and the brain damage caused, is extremely encouraging, I think. vivsacademicblog.wordpress....

[Hildalew]

Have you changed your medication or your diet in 'recent' times?

[vivdunstan Volunteer in reply to Hildalew]

Nope But my disease is more stable than it has been for a long time, following Cyclophosphamide infusions in 2012, and benefits I was still seeing some time after. I'm actually still trying to lower my steroids, in glacially slow 0.5mg drops. And some years ago I stopped two other drugs.

[woollysox]

So glad to hear that you're improving, Viv, that's really good news. Is your brain fog getting better too, as you carry on reducing your Pred?

[vivdunstan Volunteer in reply to woollysox]

I'm generally less confused, yes, though I have increased brain problems for at least 3 months after each pred drop. At the moment I'm sometimes only managing to drop 0.5mg a _year_, cos it takes me so long for my neurological symptoms (headaches, confusion, worse leg/arm problems, and whoppingly increased bladder incontinence) to settle after each drop. And I'll not be dropping much lower, ultimately. But, that aside, in my more stable patches I'm doing pretty good brain fog wise by my standards.

[Nell]

That’s brilliant news Viv. I do hope that it continues for you.

God Bless

Nell