Next Merseyside Cheshire & N Wales VSG Meeti... - Vasculitis UK

Vasculitis UK
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Next Merseyside Cheshire & N Wales VSG Meeting Thursday 15th November 1pm

SusanCh
SusanCh

Our next meeting is at the Linda McCartney Education Centre in The Royal Liverpool Hospital Prescot St L7 8XP.

We will have a Speaker & update since the Vasculitis Clinics have now moved to the Broadgreen site. We will also have a raffle & a buffet afterwards at a local restaurant.

Anyone wishing to attend, please let either me or Keith know.

Thanks Sue

12 Replies
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Hello, I would like to attend the meeting with my wife. I haven't attended one before, it would be interesting to speak to someone else with vasculitis to see if they have similar day to day problems that I have. I know where the Linda McCartney centre is but not the education centre. Is there an entrance fee.

SusanCh
SusanCh
in reply to CL10

Hi you are both very welcome. There is no entrance fee. The Education Centre is in the same place. We have a room allocated, usually up the stairs, though there is a lift! If not sure, ask at the reception desk in the Education Centre where it is. Ant funds we raise from the raffle go towards our group.

Look forward to meeting to you both. What type of Vasculitis do you have & have you been diagnosed recently? Sue

CL10
CL10
in reply to SusanCh

Hello, thanks for your reply. I have polyarteritis nodosa, I was diagnosed in 2016 but suffered for a while before I was diagnosed correctly. I see a rheumatologist in Broadgreen, I only found out about your group through vasculitis uk when I looked on there recently.

SusanCh
SusanCh
in reply to CL10

Hi just to update you, Dr Harper Vasculitis Cons. is giving a talk on the effects of steroids & a Q&A session. Sarah Hardy the Vasculitis Nurse will give an update on the facilities at Broad Green Hospital following the change over. You are welcome to come, sorry that you didn’t know about the Group before. We have given our contact cards to Sarah to dish out to people. If you decide to come, could you let me know & confirm your contact email & we can add you to our list so you will be notified about all our local Meetings. Sue

CL10
CL10
in reply to SusanCh

Hello, thanks for the information. We are planning to be there Thursday. Do I let you know my contact email on here or on Thursday at the meeting.

SusanCh
SusanCh
in reply to CL10

Hi my email address is susanchance53@icloud.com If you could email me direct with your info & email address then I can add you to our address list & then I will have your name 😊

Sue

Hi

I wondered if this meeting would be any different in content to the North West meeting recently held in Preston...?

I am keen to learn as much as I can about this disease but as I would be travelling a fair way, it wouldn’t be beneficial if it was this group was covering the same topics....?

Thanks......

SusanCh
SusanCh
in reply to JGK99

Hi thanks for your reply. If you went to the recent Preston meeting then you would have met others with the same or similar Illness & listened to Dr Ben Parker, Vasculitis Consultant, who is very good. Our Meeting is along similar lines, I’m not sure who the speaker is yet. If you have a fair distance to travel then you may decide it’s not worth it. I live in Chester & we travel to Liverpool to meet others. We have also been to the Preston meetings, but couldn’t make the recent one. It’s good to learn as much as we can, as you say. I will post details of the speaker when I get more information.

Sue

JGK99
JGK99
in reply to SusanCh

Thank you Susan....we would be travelling from the Lake District so just keep me posted...Jill.

SusanCh
SusanCh
in reply to JGK99

Hi Jill yes that’s a long way to come! Ok will let you know. Sue

JGK99
JGK99
in reply to SusanCh

👍

SusanCh
SusanCh
in reply to JGK99

Hi Jill just to let you know that I have had confirmation about our meeting next Thursday 15th November. Dr Janice Harper Vasculitis Consultant at Liverpool will be giving a talk about the effect of steroids & a Q & A session. The Vasculitis Specialist Nurse Sarah Hardy will also give an update on the new facilities following a change to Broad Green Clinic. You are welcome to come if you wish. I appreciate that it is a long drive for you. Parking can be awkward at the Hospital like most, but there are some multi story car parks. If you want further information, let me know. Sue

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