Hi I m a new member and would like some advice regarding my 11 yr old daughters diagnosis. Since she was under 5 she has been having blistery rashes mainly on her hands, occassionaly on her feet. Various visits to our gp has not resulted in anything much other than steriod creams, wrong diagnosis (moloscum contagiosum) and pretty much no one really listening to how it has affected my daughters confidence. Finally last year I managed to get her refeered to a paediatrician. He was intrigued by the photos that I took along but was unsure of a diagnosis. At the time of referral my daughter had had strange joint swelling along with the rashes, we were referred to a dermatologist in Worcester in June this year. She diagnosed urticaria and did mention the word vasculitis but did not expand any further what this meant. As anti histamines helped with the rashes we were just advised to keep taking them. Blood tests were taken and at a follow up appointment back at Kidderminster the paediatrician went through all the test results, some of which were raised which he explained was in line with an allergic process. We have been referred to Birminghams Childrens Hospital but have yet to hear anything. This week my daughter has one knuckle joint which is swollen, but not painful, and 1 finger that has swollen and painful. I am waiting to hear from the paediatrician for best treatment. My concerns have been raised when I read about vasculitis and actually how serious it is. Should I be more concerned for my daughter as this could be a lifelong illness for her and no one has really informed us about it. I hope this makes sense to someone!!
Thank you for taking the time to read this xxx