My mum is due to have cyclophosphamise later this month for the first time. This is to replace the mmf she has been taking. She will continue with the steroids. This is due to her pins and needles getting worse- now in her hands, and pain in legs which shifts from place to place ( which she is having physio for). Anybody had same experience ? Cyclophosphamide results worth taking the risk for of extra more serious side effects?
We are also still waiting for appointment to come through for second opinion at another hospital.