Cutaneous urticaria vasculitis

[ireneghng]

A kind of vasculitis

[ireneghng]

Can anyone pls tell me what is cutaneous urticaria vasculitis? My demer doctor term it.

[PatriciaAnn]

Hi Irene

This might help: vasculitis.org.uk/about-vas...

[ireneghng in reply to PatriciaAnn]

Dear Patricia, tks for the info. I really appreciate it. I do not know what trigger it. Two weeks b4 that I hv a mild sore throat & a slight fever. GP prescribe Cefuroxime antibotic. Is it the cause. No one know. I develop patches of rashes on both my limbs & feet. Quite serious. I was admitted for 4 days.I hv to raise both my legs all the time even if I am sleeping. If not rashes will appear again. I was on steriods - Prednisolone (Dhasolone) & Cetirizine (Zyrtec).I am still on medication. What worried me is I cannot stand too long. I hv to raise my legs most of the time. I do not why? Very stress. Don't know what will happen next.

[cedric]

small vessal vasulitus

[ireneghng in reply to cedric]

Tks Cedric. Looking for more info since I am diagonis with it. No pain, no itch except rashes appearing quite often even with medication. Really stress now.

[Winter64]

Hi, I have urticarial vasculitis, I was diagnosed by biopsy 7 years ago, I currently take dapsone, doxepin, fexofenadine, tranexamic acid and ad-cal for it. I also have other types of urticaria and angioedema, along with other random stuff which wanted to join in the party With cutaneous, I assume they mean limited to your skin with no other organ involvement? Comments you can find on the internet about urticarial vasculitis suggest that it is triggered by a reaction or sensitivity to a medication and remove that and its all good, in my experience its nothing at all like that, Ive had this 10 years now and no remission. Is there anything specific you would like to know? If i can help at all I will. Karen x

[ireneghng in reply to Winter64]

Tks Karen. Mine is without pain & itchness. Appear every 2-3 days if I do not raise my legs often even on medication. A bit of stomach ache. Uneasy feeling. Will it lead to other problem later. So stress.

[PatriciaAnn]

Hi Winter64

On the Vasculitis UK website - see link in earlier post - the aetiology gives much more than a reation or sensitivity to a medication. The treatments for milder cases and for severe forms is also mentioned. The prognosis does, of course, depend on the severity of the disease and the damage done to organs. So, as you say, it isn't as straight forward as some uninformed websites would have you believe. It would appear that the main risk to patients is COPD, and that smoking is a major factor for fatal lung disease in HUVs.

PatriciaAnn

[AndrewT]

Dear ireneghnd,

I have never heard of this form of vasculitis, although cedric says that it is 'small cell' vasculitis- to be honest there are so many you could be trying to name them all, for f....g 'ever'! I have five different 'overlapping' strains, at the last count- I believe!

I'm sorry that you are feeling unwell, I sincerely hope that you are not in too much pain, and I hope that 'they' sort out, your diagnosis soon.

Very best wishes AndrewT

[ireneghng in reply to AndrewT]

Tks. I am not in pain nor hv itchness. A bit of stomach upset everyday. A bit of rashes every 2-3 days - Not knowing why. Looking for remedy & support group. Is there any support group in MALAYSIA which u r aware of?. Once again tks.

[Lupylass]

Hello there Irene

I too have urticarial vasculitis. It can vary so much from person to person that it is difficult to offer advice to you. All I can say is to share your concerns and questions with your doctors to try to understand what is going on with your condition. If you don't understand what they're saying, ask them to explain again. It's important that you understand and can hopefully get better.

With my condition, things developed and I have other autoimmune diseases now. My rheumatologist is great and encourages me to learn about my conditions and help to manage myself. I've also learned to relax a little about some of the weird and wonderful symptoms I get. But it all takes time.

I hope this helps you some. The information on the vasculitis uk website is excellent. You could use this and ask your consultant to take you through it to explain where you fit into it?

Best wishes. X

[ireneghng in reply to Lupylass]

Tks dear. I am also a Vertiligo patient due to immune system for abt 15 yrs. Hv learn to live with it. Having vasculitis now is disturbing. One thing lead to another. Even no pain & itchness, I am worried cos I do not know the cause for it. Looking for support. Do u know if there is a support group in MALAYSIA?

[AndrewT]

Dear ireneghng,

Actually no I don't know of any support groups, in Malaysia, but have you asked John or Susan? John is chairman of Vasculitis UK and, if anyone knows, it will be him. To be completely honest I don't know much about services, of any kind, in Malaysia, except that there MUST be some, of some kind.

Sorry that I can't be of more help.

AndrewT