Posts - Vasculitis UK | HealthUnlocked

Moderator•10 years ago

West Yorkshire Support Group Meeting Sunday 13th April We have Helen Worsnup, Physiotherapist who will give a talk on General Mobility and Alan Pollard Senior...

West Yorkshire Support Group Meeting Speakers Arranged

West Yorkshire Support Group Meeting Sunday 13th April We have Helen Worsnup, P...

LynneJ

Vasculitis UK•10 years ago

Be the first to reply

Restless Legs

New to me is this feeling that my legs are restless when im trying to sleep. Im moving them about most of the night, in and out out of the bed clothes. I feel...

New to me is this feeling that my legs are restless when im trying to sleep. Im ...

Great support group meeting today in York. Nice to catch up with some familiar faces :) Excellent talk by Dr Yusof from Chapel Allerton in Leeds. They're...

•10 years ago

20 Replies

Want to take advantage of all our features? Just log in!

York Support Group Meeting

Great support group meeting today in York. Nice to catch up with some familiar f...

RichardE

Volunteer•10 years ago

3 Replies

Muscles contracting

Does anyone have problems with muscles contracting after picking up something. I have found that lisfting a plate can cause my muscles to contract and...

Does anyone have problems with muscles contracting after picking up something. I...

hi can any one tell me if a level of 26.5 crp blood is acceptable and esr of 12 im curious as im always in pain and always told that my bloods are fine and i...

•10 years ago

6 Replies

crp blood test

hi can any one tell me if a level of 26.5 crp blood is acceptable and esr of 12 ...

tracey65

•10 years ago

13 Replies

In remission and 2 months without cellcept and on 5mg pronisone.Any experience.

My daughter has pulmo renal syndrome panca and gbm positive . She has been diagnosen 12.2011.She is 2 years in induced remission. Her Dr.decided to stop MMF...

My daughter has pulmo renal syndrome panca and gbm positive . She has been diagn...

tamidi

•10 years ago

http://www.benefitsandwork.co.uk/news/2651-newsletter-12-march-2014

March 2014 Benefits and Work newsletter

Moderator•10 years ago

I tested positive p-anca in November 2013. Retested again, and test has come back negative from lab. I don't know what to do now! I have all symptoms of...

ANCA now negative

I tested positive p-anca in November 2013. Retested again, and test has come bac...

Linmur1957

•10 years ago

4 Replies

Andrew will be taking part in the "Rock Solid" Race - 10K on Saturday 15th March 2014 near Exeter.

Andrew is doing this for his mum who was diagnosed with Wegener's Granulomatois when Andrew was about 11 years old. Andrew's mum has been his "rock" through...

Andrew is doing this for his mum who was diagnosed with Wegener's Granulomatois ...

Moderator•10 years ago

http://www.bbc.co.uk/news/health-26553301

Interesting Tweet from the BBC this morning. 'Early access' drugs scheme launched for severely ill

Moderator•10 years ago

This was tweeted by World Kidney UK this morning so I thought I would just share the link. http://www.worldkidneyday.co.uk/kidney-facts/

Apparently it is World Kidney Day today

This was tweeted by World Kidney UK this morning so I thought I would just share...

Moderator•10 years ago

Also sleep a lot, and I am an early riser, but on a bad day I can't seem to wake up.

What does pain from vasculitis feel like? I have neuropathy, but this pain is worse that I am having now.

cruznlcsw

•10 years ago

5 Replies

Any of you with cerebral vasculitis have difficulty with your emotions? On a bad day-crying and agitated. On a good day I'm fine.

Also sleep a lot, and I am an early riser, but on a bad day I can't seem to wake...

cruznlcsw

•10 years ago

10 Replies

I am relatively new to CNS Vasculitis diagnosis. Do the reddish purple spots on legs and arms mean I am flaring again?

Tinabelle

•10 years ago

8 Replies

hospital visit and have been told I have vasculitis in the skin, eye nose and kidneys so more tests to try to pinpoint which type I have

so more teats including scans and MRI not sure which one will have but glad someone has started looking into it.

so more teats including scans and MRI not sure which one will have but glad some...

molliecatone

•10 years ago

https://www.gov.uk/government/news/nhs-charges-from-april-2014

NHS charges from April 2014

Moderator•10 years ago

Users of this website may know about this but I didn't until recently. If you have a form of vasculitis which affects the kidneys and has meant that you are...

RENAL PATIENTVIEW

Users of this website may know about this but I didn't until recently. If you ha...

MAC12

•10 years ago

7 Replies

Interesting article from twitter this morning tweeted by the BBC. 'Worrying shortage of senior NHS nurses'

http://www.bbc.co.uk/news/health-26519324

Moderator•10 years ago

Under my toes and sometimes my big toe feels numb.?

Has anyone had accupunture and if so was it any help?

NanaB43

•10 years ago

10 Replies

Talking of feet does anyone feel like they are walking on bubble wrap. I feel this in my left foot it feels like the bubble wrap is popping

Louzoejf29

•10 years ago

9 Replies

Burning hot feet ?

Does anyone else with WG experience sudden burning sensation on the sides and top of their feet which lasts for a short time ? And what causes it please....

Does anyone else with WG experience sudden burning sensation on the sides and to...

Essex-jill

•10 years ago

20 Replies

Lumps on my arm

Iv got some painful lumps under my skin on my arms. If i run my finger over my arm i can feel then as they are raised and i can seethem. They look like lumps...

Iv got some painful lumps under my skin on my arms. If i run my finger over my a...

http://www.bbc.co.uk/news/magazine-16964783

•10 years ago

6 Replies

Interesting page on the BBC website talking about sleep and insomnia

Moderator•10 years ago

http://www.examiner.co.uk/news/west-yorkshire-news/toddler-bethan-speaks-parents-open-6786865

Young toddler Bethan is diagnosed with Henoch Schonlein Purpura

http://www.examiner.co.uk/news/west-yorkshire-news/toddler-bethan-speaks-parents...

If you are around please give them a cheer :-) Five friends have set themselves a challenge this year of running the Cambridge Half Marathon. The team are...

Moderator•10 years ago

Be the first to reply

The Fantastic Five run in the Cambridge Half Marathon tomorrow 9th March 2014

If you are around please give them a cheer :-) Five friends have set themselves...

I have had a really good week. I had my first dose of rituximab and reduced my preds by 5mg without any adverse effects. My daughter took her first steps and...

Moderator•10 years ago

Be the first to reply

Hi I have WG for about 18 years and have never been told about Rituximab Have read other people talking about, how can I get it.

Juliew123

•10 years ago

5 Replies

Did anything good happen to you this week?

I have had a really good week. I had my first dose of rituximab and reduced my p...

Hidden

•10 years ago

16 Replies

Standard blood tests

Could someone tell me if inflamation would always show up in standard blood tests. I feel sure i have some inflamatory condition but as yet my bloods have been...

Could someone tell me if inflamation would always show up in standard blood test...