Not really too sure, on this one, except to say be VERY carful 'coming off' anything- that your daughters body has got used to. I'm on MFM (is this the same/similar?) since a kidney transplant, last July. I also don't know a lot about 'pulmo renal syndrome', to be honest (I'm no bl..dy good at all, am I?) but I was on dialysis, for four years, along with some ten pre-dialysis- so I do know a bit about renal failure! Do you know her creatatanine (I think that's spelt?) level? A good indicator, of 'overall' kidney function.
I'm quite sure that everyone, on 'Health unlocked', sends you daughter their best wishes. Have you joined our 'forum'? You can we don't bite- well not hard anyway! Seriously though most of us- if not all of us- find the information exchange both useful and informative. It's good to know that others do actually understand what is, and has, 'happened' to you- in a way that the 'professionals', no matter how 'good' they are, just can't quite grasp.
All that remains is to, once again, send my 'best wishes', to your daughter, and hope to hear from you soon.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.