RENAL PATIENTVIEW: Users of this website may... - Vasculitis UK

Vasculitis UK

7,865 members6,893 posts

RENAL PATIENTVIEW

MAC12 profile image
7 Replies

Users of this website may know about this but I didn't until recently. If you have a form of vasculitis which affects the kidneys and has meant that you are treated by a hospital renal unit you may well be able to sign up to Renal Patientview. This means that with a username and password you can access your own records at the renal unit including all your blood test results and medication changes. Very useful if, like me, you like to keep a close eye on your blood results including kidney function etc. As I understand it, many renal units are part of the scheme although not all of them.

Written by
MAC12 profile image
MAC12
To view profiles and participate in discussions please or .
Read more about...
7 Replies
PatriciaAnn profile image
PatriciaAnn

There's some information in the V-UK Spring 2013 Newsletter/Journal - vasculitis.org.uk/about/new... - about Renal PatientView - page 13 if that helps. It gives a few links to find out which units take part and a link to an excellent help section.

PatriciaAnn

MAC12 profile image
MAC12

I was able to join up to this simply by picking up a form from the renal unit at Sheffield Northern General. It takes about a week to set up and the form lists participating units.

AndrewT profile image
AndrewT

Dear Mac12,

I'm very interested, having had a kidney transplant, last July- after four years on dialysis-due to vasculitis. I am under Addenbrooke's Hospital, for approx. monthly 'check-ups'. Strangely I've never heard, of this scheme, but I will ask the next time I'm there; maybe 'they' haven't heard about it! Unlikely somehow but still. I will let 'everyone' know, I promise.

Best wishes to all

AndrewT

MAC12 profile image
MAC12 in reply toAndrewT

Hi Andrew Unfortunately I've thrown away the leaflet which gave details of which Renal Units are participating in the scheme, but a great many are. I'd be surprised if Addenbrookes weren't but I'm sure your consultant will tell you. It's very easy for patients to set up access to their medical details at the unit and to use. kind regards, Mac

AndrewT profile image
AndrewT

To paraphrase- thanks Mac!

MAC12 profile image
MAC12

Hi Andrew Further to my last message, here is a link to a press release from Addenbrooke's Renal Unit, saying they will be participating in PatientView. It's fairly old so probably safe to assume they are now doing sp

akpa.org.uk/news/11-03-15-n...

kind regards, Mac

AndrewT profile image
AndrewT

Dear Mac,

I'll ask, on Monday, and let you Know.

AndrewT

Not what you're looking for?

You may also like...

Renal PatientView Plus a Cheerfull note

I see a specialist at the Royal Preston renal dept., I have Microscopic polyangiitis affecting my...

Renal Diet Confusion

Hello, apologies if this may be repetitive in the Group but I'm now about 3 months into my renal...

Renal ultrasound

Just had my results back.Entirely normal.very reassuring my neurologist words.Could this be the end...
jan85uk profile image

Should we be totally honest in declaring all the symptoms of our condition when applying for travel insurance?

i have been trying to obtain an affordable quote for travel insurance to cover a visit to my...
Ayla profile image
Volunteer

vasculitis / renal fialure with dust exposure in your worklife .

Hi , i am very interested as to know how of patients with wg / renal problems or even failure that...
morgan33 profile image

Moderation team

See all
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator
Charlie_Harper profile image
Charlie_HarperAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.