Burning hot feet ?

[Essex-jill]

Does anyone else with WG experience sudden burning sensation on the sides and top of their feet which lasts for a short time ? And what causes it please. Thanks .

[hamble99b Volunteer]

the soles of my feet burn and the veins stand out.

[Essex-jill in reply to hamble99b]

Have you mentioned it to your Consultant ? Sandra please.

[PMRpro in reply to Essex-jill]

You should mention anything like this to both your GP and your consultant.

I don't know a lot about WG but does it cause your blood vessels to close down - you would get cold feet, like in Reynauds syndrome/disease? If that happens and then suddenly the blood vessels dilate again it causes something called "reactive hyperaemia" - which is a bit like your foot/leg/hand coming back to life after you've sat uncomfortably and its "gone to sleep" but it also burns like mad as it is the blood flow coming back as well as the nerve waking up which is what happens when your foot goes to sleep. Sorry - that's a pathetic description but if I used the fancy medical terms you'd just say "Huh????"

[Essex-jill]

Thank you very much for your reply. I will mention it to my Consultant at Addenbrookes when I see him next month. My Gp admits I know more about WG than he does !!! Thanks.

[Nadine99]

My husband has WG and has just started to experience a burning sensation on the top of one of his feet, about the size of a 50p although nothing to see. Off to GP tomorrow. Maybe be can compare notes on what they all think.

[Essex-jill in reply to Nadine99]

Thanks Nadine. Good luck tomorrow for your husband and I will re post my Consultants opinion when I see him on 1st April.

[Hidden]

This is a real coincidence but I have experienced a burning sensation on the outer aspect of my right calf intermittently this weekend. The first time it happened I was sure that I was standing next to a flame.

I don't have a definitive diagnosis apart from " an auto immune disorder" and am on MTX and pred.

Will be interested to hear what your consultants opinion is Essex-Jill.

[a_Scot]

If the appearance of the feet doesn't change, the burning sensation could be paresthesia due to vasculopathic neuropathy, due to vasculitis of the vasa-nervorum of sensory nerves … en.wikipedia.org/wiki/Pares...

[Essex-jill in reply to a_Scot]

Interesting. I will certainly mention this to my Consultant. The appearance does not change when the burning occurs. Thanks again for everyone's replies.

[Suzym2u Moderator Vasculitis UK]

John has this, burning hot feet, especially at night in bed, when he is driving in the car, when he walks for a while... he puts it down to the vasculitis.. VUK carried out a poll on this subject a little while ago.. I will try and find the link..

[Suzym2u Moderator Vasculitis UK in reply to Suzym2u]

healthunlocked.com/vasculit....

[gsmith]

my feet get very hot late evening/night....I go to sleep with my feet out of the covers and wake up no covers very cold. feet are ok by then.......strangely husband also sleeps with his feet uncoverd because they are hot......his only excuse is 2 knee replacements....this leads me to blame nerve damage?????? .......georgia

[Hidden]

I also get this in my fingers and frequently get the opposite temperature swing. The most likely cause for me is nerve damage caused by the GPA/WG prior to it being brought under control. Medication could be potential factor too. Healthy wishes.

[DBH1969]

i have WG i had those burning feeling plus it was tingling too on my feet and hands this links to high doses of preds i was on 60mg at the time, when reduce the dose it seen to had calmed down, are you on preds? if so it worth mention this to your consultant about this like i did and she reduce the dose soon after

diane

[Essex-jill]

Thanks to all for all your replies.

[Doghouse]

I have WG I also have burning and tingling on the soles of my feet. My prednisolone is down to 5mg .

[gshaanika]

Hi guys I was diagnosed with WG in Jan 2012 and had experienced burning sensation in both my feet for 2 years now. I gave up asking my GP and consultant as all tests for different reasons came back fine. I have pretty much just got used to ignoring the heat under my feet. Hope you get better answers from your GP Jill. Best of luck.

Gabriel

[joanede]

Yes ..I get burning in my feet......I just found out I have vasculitis......my Dr recommended a Neurologist which I have an appointment with in 2 weeks .......How I found out is that I fell in a cast iron tub and got a cat scan and was told that my blood vessels were inflamed and then I went to an Opthalmologist because I thought I had a bad case of cataracts because my vision is so bad...I do have cataracts but she also told me I have retinal vasculitis...I freaked....I'm going today for an MRI/ contrast today and a retina specialist in 10 days.....I am scared to death with all that I am reading ....I have never heard of this disease before......I don't know what to expect or if I will die soon......please give me some hope

[Essex-jill in reply to joanede]

Hi. I have had Vasculitis for over 14 years and I live a good life with regular follow ups at Addenbrookes. I have Rutiximab every 6 months and it's my ' miracle drug' please stay strong and positive, people live a very good long life with this condition. I know how frightening this must all be for you but they know so much more about this condition and are able to treat it more effectively. Sending you my best wishes. X

[samitherose in reply to joanede]

hi joanede i nvr hav much time for the computer but the name joan caught my eye as it was my mums name. I can identify with your fears as I went through the same thing. when i first took ill really bad 6 years ago my sight went and I was in hospital for 6 mths with my legs paralised I was told i would not walk again with a fierce anger i decided I was too young for that and i am now walking again with a stick and sometimes without any aids and driving again. I AM NOT SUPERWOMAN AND i AM GOING INTO HOSPITAL FOR THE FIRST ON WED FOR A SWOLLEN ELBOW AND AM A BIT WORRIED ABOUT DEALING WTH THE OP . MY MAIN PROBS ARE VERY SORE FEET WHICH FEEL LIKE THEY HAV FROZEN and severe sweating which I think is caused by the induced diabetes from the steriods. all I can say as each day brings a new challange I find a short time out of the house helps if able and not reading too much about the illnass or i dont think i would get out of bed plus it seems everyone has different things wrong with them it is scary not knowing anyone with the illness but we just have to keep going and when tired do not feel guilty about going to bed. i hope you keep well i have stiill alot of probs but i am alot better than i was so you will improve please DONT GIVE UP. LOVE DAWN X