Hi, I was diagnosed with Takayasu's Arteritis 6 months ago after having a pulmonary embolism about a year before and being unwell for about 2 and a half years. I'm on pred and methotrexate and have just started infliximab. Despite treatment I am still short of breath and tired. A CT Pet showed inflammation in my aorta has mainly resolved but apparently there was some new activity in the smaller arteries hence starting the infliximab. However, the doc also wants me to have an MRA scan to look at the pulmonary arteries more closely and also be seen by Papworth for a heart catheter to check the pulmonary pressures. I am now worried they think that as well as my vasculitis, pulmonary hypertension might be causing my ongoing symptoms. Has anyone had this as a result of vasculitis? Everything I've read about it sounds very scary and I'm now really worried. Thanks.
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