Posts - Vasculitis UK | HealthUnlocked

Moderator•10 years ago

Richard is a consultant rheumatologist in Ipswich and senior lecturer at Norwich Medical School and Visiting Professor of Rheumatology at University Campus...

Vasculitis UK would like to welcome Dr Richard Watts as a Medical Advisor to the charity.

Richard is a consultant rheumatologist in Ipswich and senior lecturer at Norwich...

John_Mills

Volunteer•10 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Burden of Medicines

About us …. We are four students studying to become pharmacists and we are undertaking a project in our final year. We are studying at the Medway School of...

About us …. We are four students studying to become pharmacists and we are unde...

Rubana8

•10 years ago

22 Replies

What sort of vasculitus does this sound like?

ANCA positive. Symptoms: Tiny blood vessels under tongue rupture occasionaly. Tongue feels strange. Numbness in fingers. Numbness in feet and trouble walking....

ANCA positive. Symptoms: Tiny blood vessels under tongue rupture occasionaly. To...

luggsey

•10 years ago

I have Urticarial Vasculitis ,and although I have been free of symptoms for 22weeks now, I have for the last 6 weeks had a dry hot throat, I haven,t got or...

throat problem

I have Urticarial Vasculitis ,and although I have been free of symptoms for 22we...

jackrussell

•10 years ago

4 Replies

More cyclops

Mixed news today from my visit to the hospital. Positive news: signs are good for my recovery. Nerve damage has now bottomed out and she is hopeful. Bloods...

Mixed news today from my visit to the hospital. Positive news: signs are good fo...

Wellsie

•10 years ago

Media request for BBC Radio 4 from Genetic Alliance UK We've just had a request from BBC Radio 4. As part of a series called 'One-to-One' hosted by Jane Hill,...

Media Request for Radio 4 from Genetic Alliance

Media request for BBC Radio 4 from Genetic Alliance UK We've just had a request...

Moderator•10 years ago

My son has entered for the RockSolidRace in Exeter to raise funds for Vasculitis UK, a charity which has provided me much needed support since being diagnosed...

Please support my son raise funds for Vasculitis UK

My son has entered for the RockSolidRace in Exeter to raise funds for Vasculitis...

DevonLottie

•10 years ago

8 Replies

painful ribs and back

over the last couple of days i feel as ive been beaten my ribs and back hurt so much feels like there broken hurts when i move.i have been weaaned of all meds...

over the last couple of days i feel as ive been beaten my ribs and back hurt so ...

tracey65

•10 years ago

5 Replies

Does anyone in the Vasculitis UK Community have Buergers Disease please?

Moderator•10 years ago

https://www.justgiving.com/beanshow Message from Daniel's Just Giving page:- Abby and Dad are hoping to put on a concert under their new duo guise of...

Generation Gap - Vasculitis UK Fundraiser

https://www.justgiving.com/beanshow Message from Daniel's Just Giving page:- Ab...

Moderator•10 years ago

http://wowpetition.blogspot.co.uk/2013/11/kennys-review-of-pip-assessment.html?spref=tw

Wow Petition regarding PIP Assessments for those who may be interested

http://wowpetition.blogspot.co.uk/2013/11/kennys-review-of-pip-assessment.html?s...

Moderator•10 years ago

we have been given more info at work on how the changes to the appeals process will take effect. The idea is that the decision maker will contact the claimant...

esa latest

we have been given more info at work on how the changes to the appeals process w...

kath12341

•10 years ago

9 Replies

How long did you take septrin after stopping cyclophosmide?

My Mum is recovering from pcp pneumonia, she stopped taking cyclophosmide about six weeks ago and tapered pred down to 7.5mg. The pneumonia seems to have...

My Mum is recovering from pcp pneumonia, she stopped taking cyclophosmide about ...

luggsey

•10 years ago

13 Replies

Patient Views on the Regulation of Medicines – How should we weigh the risks and benefits? And who should do so? Get your voice heard!

As part of a European research study, Genetic Alliance UK and researchers at the University of South Wales want to understand how patients perceive the risks...

As part of a European research study, Genetic Alliance UK and researchers at the...

A SCOTTISH country dance evening at Uplyme Village Hall raised £425 for the charity Vasculitis UK. The evening was supported by dancers from all the nearby...

Moderator•10 years ago

7 Replies

LYME REGIS: Scottish dance raises £425 for Vasculitis UK

A SCOTTISH country dance evening at Uplyme Village Hall raised £425 for the char...

Moderator•10 years ago

I was diagnosed with Vasculitis SLE in July of this year, and I was put on Cyclophosphamine and I am presently taking 100 mg with Dapsone. I began Prednisone...

What diet changes could you suggest, I have Vasculitis SLE

I was diagnosed with Vasculitis SLE in July of this year, and I was put on Cyclo...

tonympb

•10 years ago

injection with more physiotherapy, but ruled out an operation at this stage. Has anyone had a steroid injection whilst already on steroids? I am grateful for...

Further to my messages re. shoulder problems, I had appt with specialist today. After consultation & more xrays he has suggested a steroid

injection with more physiotherapy, but ruled out an operation at this stage. Ha...

optimist-ok

•10 years ago

17 Replies

Vasculitis Ireland Awareness Support Group Meeting 16th November 2013

Next Support Group Meeting is in the Gortland Room, St Dorothea's Church, Gilnahirk, Belfast on Saturday 16th November, 2013, between 10am and 12nonn. All...

Next Support Group Meeting is in the Gortland Room, St Dorothea's Church, Gilnah...

Moderator•10 years ago

I am 47, currently on prednisolone 9mg and methotrexate 15mg. I don't have a definite diagnosis of vasculitis, I am in a wait and see situation despite...

Is it possible to differentiate between hot flashes/ sweats caused by peri menopause and those caused by vasculitis?

I am 47, currently on prednisolone 9mg and methotrexate 15mg. I don't have a def...

Hidden

•10 years ago

9 Replies

New Search facility for the HealthUnlocked Community:You can now search for questions, posts, and replies much easier than ever before.

Instructions :- http://blog.healthunlocked.com/post/65562688443/2013-11-05#.Unky0DpFDBE

Instructions :- http://blog.healthunlocked.com/post/65562688443/2013-11-05#.Unky...

Thank you Susan of the Liverpool, Cheshire and North Wales VSG for bringing this to our attention. Lots of good information and health advice for travellers at...

Moderator•10 years ago

1 Reply

Travelling to foreign places?

Thank you Susan of the Liverpool, Cheshire and North Wales VSG for bringing this...

PatriciaAnn

•10 years ago

1 Reply

bbc article on rituximab 24/10/11

http://www.bbc.co.uk/news/health-15401746 Immune system defect may cause ME By James Gallagher Health reporter, BBC News Fatigued woman Chronic fatigue...

http://www.bbc.co.uk/news/health-15401746 Immune system defect may cause ME By ...

hamble99b

Volunteer•10 years ago

This has just started 3 days ago, it only occurs in the evening and into the night. It only affects my face, nowhere else, and it feels a lot like sunburn but...

Anyone else have itching/tender skin on face?

This has just started 3 days ago, it only occurs in the evening and into the nig...

Ayla

Volunteer•10 years ago

7 Replies

Cambridge Vasculitis Support Group meeting December 7th

There are two speakers on this occasion: Dr Federico Alberici from the Addenbrookes Vasculitis team will be talking about "Vasculitis, drugs and side effects"...

There are two speakers on this occasion: Dr Federico Alberici from the Addenbroo...

Hey all. Just wondering if anyone else has this condition and what i can expect from it. Had it for around. 3 months and im on steroid treatment but doesnt...

Moderator•11 years ago

5 Replies

Retinal vasculitis

Hey all. Just wondering if anyone else has this condition and what i can expect ...

Ricky1040

•11 years ago

10 Replies

Christmas tree decoration New from the shop!

Winston really loves the new V UK Christmas tree decorations and can't wait to put the real tree up. They will be available from the Vasculitis UK shop soon....

Winston really loves the new V UK Christmas tree decorations and can't wait to p...

LynneJ

Vasculitis UK•11 years ago