Does anyone in the Vasculitis UK Community have Buergers Disease please?

[Suzym2u]

[cedric]

NO BUT I GOT A RARE ONE LIKE U MINE IS CRYGLOBULINEMIA HAAVE U JUST BEEN DIAGNOSE REGARDS CEDRIC

[Suzym2u Moderator Vasculitis UK in reply to cedric]

I was asking on behalf of someone else Cedric , this lady who has Beurgers disease does not know anyone else with this type of vasculitis and neither do I. She would dearly love to talk to someone else who understands how she feels. We believe there are about 5 cases in the UK. You are certainly rare too., I probably know of 2 others with Cryoglobulinemia but not sure how many cases there are in the UK. hope you are keeping reasonably well.

All the best

Susan

[ldwilliams in reply to Suzym2u]

Look up mdjunction.com/buerger-disease

There are about a dozen of us there

[John_Mills Volunteer in reply to ldwilliams]

thank you

[cedric]

i am keeping ok had a flare up had infusion last one fri gone but your friend is she on steroids I don't know of any body else what I have got so I under stand she feels on her own but I think u go on same treatment for them all u can speak to john mills he might have answers 4 u

[ldwilliams]

John_Mills

you are welcome