Posts - Vasculitis UK | HealthUnlocked

Volunteer•11 years ago

I had a urine test done that showed blood so I was asked to do another test which was ok! The problem I have is I have been getting a sharp pain in my kidney...

Advice needed

I had a urine test done that showed blood so I was asked to do another test whic...

CathT

•11 years ago

im currently tapering my steroids. I am on methotrexate and coming down 1mg per month. what side effects have other people had? xx

steroids...

im currently tapering my steroids. I am on methotrexate and coming down 1mg per ...

lucindaross

•11 years ago

5 Replies

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vasculitis facebook

i posted some comments the other day,which a lot of people agreed with,because the administrators,did not agree with the comments ,ive since been banned i...

i posted some comments the other day,which a lot of people agreed with,because t...

quinnster

•11 years ago

5 Replies

Query

I was diagnosed with rheumatoid vasculitis back in October 2012 as a secondary condition to rheumatoid arthritis - I also suffer from fibromyalgia. My...

I was diagnosed with rheumatoid vasculitis back in October 2012 as a secondary c...

Wolf52

•11 years ago

3 Replies

Cross Border Referrals for rare or complicated diseases

If anyone is having problems with cross border referrals please contact the Vasculitis UK helpline or write to john.mills@vasculitis.org.uk...

If anyone is having problems with cross border referrals please contact the Vasc...

Hi, I was diagnosed with Vasculitis (Wegener's granulomatosis) before 30 days. I was reading that some medications that I take can make me gain weight. Is...

Volunteer•11 years ago

1 Reply

Vasculitis and physical exercise

Hi, I was diagnosed with Vasculitis (Wegener's granulomatosis) before 30 days...

Hidden

•11 years ago

11 Replies

University professor, 37, dies from lung cancer after string of doctors dismissed symptoms as 'anxiety and depression'

Lisa Smirl, 37, saw three doctors with a range of symptoms over a year Had been suffering from shortness of breath, weight loss and arm pain Despite...

Lisa Smirl, 37, saw three doctors with a range of symptoms over a year Had bee...

Volunteer•11 years ago

Please sign this petition - LETTER TO THE ICC AT THE HAGUE RE MISTREATMENT OF THE DISABLED AND SICK you.38degrees.org.uk/petiti...

Please sign this petition - LETTER TO THE ICC AT THE HAGUE RE MISTREATMENT OF THE DISABLED AND SICK

Please sign this petition - LETTER TO THE ICC AT THE HAGUE RE MISTREATMENT OF TH...

A new study finds another reason to cut down on the salt: Increased salt intake may trigger and sustain some autoimmune diseases. Autoimmune diseases are...

Volunteer•11 years ago

1 Reply

salt intake may trigger and sustain some autoimmune diseases. CBS news.

A new study finds another reason to cut down on the salt: Increased salt intake ...

A new study finds another reason to cut down on the salt: Increased salt intake may trigger and sustain some autoimmune diseases....

Volunteer•11 years ago

1 Reply

Salty diet may increase risk for autoimmune diseases

A new study finds another reason to cut down on the salt: Increased salt intake...

PatriciaAnn

•11 years ago

Well, pre-assessment has taken place today, and biopsy is still scheduled for 20th March. I'm still not too happy that this procedure is mainly due to samples...

Further update on my WG experience

Well, pre-assessment has taken place today, and biopsy is still scheduled for 20...

suffolkgirl

•11 years ago

I had a heart scan due to a persistent cough and the x-ray suggesting an enlarged heart. they had difficulty getting a good image, but my heart "seems"...

I'm fine, but am I unique?

I had a heart scan due to a persistent cough and the x-ray suggesting an enlarge...

Does anyone with UV start a flare with Tremors, I started a flare at 3/15am today and was shaking for 45mins usually I get the shakes after the rash appears...

Volunteer•11 years ago

3 Replies

tremors and UV

Does anyone with UV start a flare with Tremors, I started a flare at 3/15am toda...

jackrussell

•11 years ago

8 Replies

Vasculitis and alcohol?

I've never been a big drinker and since I got diagnosed with wg I completely stopped. Of course I know that you drink alcohol in moderation while on these...

I've never been a big drinker and since I got diagnosed with wg I completely sto...

swissy86

•11 years ago

14 Replies

DLA v PIP

Hi Im just wondering what peoples views are on the changes to benifit from DLA to the forthcoming PIP. I believe the north west will be piloting the new...

Hi Im just wondering what peoples views are on the changes to benifit from DLA ...

carmpurple

•11 years ago

had my disability assessment for benefits carried out by ATOS .today the doctor only ask a hand full of things,20 mins he siad thats it you will here from us...

disability assessment for benefits carried out by ATOS

had my disability assessment for benefits carried out by ATOS .today the doctor ...

Tonyxx1

•11 years ago

This is the Vasculitis UK e-newsletter, emailed out a couple of days ago, if you would like to sign up for the e-newsletter please contact...

Can anybody confirm the time of the North West meeting at the Royal on 12th March please

fillyhome

•11 years ago

3 Replies

Vasculitis UK e-newsletter, Spring Newsletter, Mailing list and Data base

This is the Vasculitis UK e-newsletter, emailed out a couple of days ago, if you...

Volunteer•11 years ago

Hi all, I'm pretty new to this. I have a tentative (?) diagnosis of 'limited' Wegener's, it's mostly my lungs that have been affected, with a first 'flare'...

Anyone else get visual migraines when vasculitis flares up?

Hi all, I'm pretty new to this. I have a tentative (?) diagnosis of 'limited...

Anyanka

•11 years ago

17 Replies

REthink are looking for people who have been through the Work Capability Assessment and suffered a bad experience.

http://rethink.informz.net/InformzDataService/OnlineVersion/Individual?mailingInstanceId=2171520&subscriberId=791971705

http://rethink.informz.net/InformzDataService/OnlineVersion/Individual?mailingIn...

Volunteer•11 years ago

Hi there Just looking for a bit of advice. I have Takayasu Arteritis, diagnosed last october. I started on 60mg of prednisone and am now on 25mg....

Prednisone stomach bloating?

Hi there Just looking for a bit of advice. I have Takayasu Arteritis, dia...

MsAscerbic

•11 years ago

31 Replies

my latest news

Well, I now have pre-assessment booked for 7th March and biopsy for 13th March. Still no news on chemo.

Well, I now have pre-assessment booked for 7th March and biopsy for 13th March. ...

suffolkgirl

•11 years ago

Thanks for the e news Pat. Lots of fundraising this time. So a big thank you. You are all amazing. Good luck to Paul from my Slimming World group. I...

E News

Thanks for the e news Pat. Lots of fundraising this time. So a big thank you...

LynneJ

Vasculitis UK•11 years ago

I'm still waiting for more news about possible change from cyclophosphamide to rituximab, and for the biopsy! I have now received my next clinic appointment...

Still in limbo, and official complaint

I'm still waiting for more news about possible change from cyclophosphamide to r...

suffolkgirl

•11 years ago

5 Replies

Aspergillosis?

Hi I have had wg for over ten years with different symptoms. I have ad a persistent cough for approx two years despite having two rituximab infusions. This...

Hi I have had wg for over ten years with different symptoms. I have ad a persis...

shazza09

•11 years ago

10 Replies

Reminder for Yorkshire North (to be West) Support Group meeting

Quick reminder for Yorkshire Support Group Meeting, Sunday 21st April, Gomersal Park Hotel Cleckheaton. Contact for full details Lynne...

Quick reminder for Yorkshire Support Group Meeting, Sunday 21st April, Gom...

LynneJ

Vasculitis UK•11 years ago

Prof Stephenson told the BBC that patients with serious health conditions, perhaps requiring multiple types of treatment, would be most affected by a potential...

NHS 'privatisation' reform 'could place people in danger'

Prof Stephenson told the BBC that patients with serious health conditions, perha...

Volunteer•11 years ago

my friend's hubby has just been dxd with high blood pressure and put on meds. they've both got flu and chesty coughs. she went to her chemists yesterday. her...

blood pressure meds & decogestants [cough medicine]

my friend's hubby has just been dxd with high blood pressure and put on meds. t...

Volunteer•11 years ago

on the fibromyalgia forum charlii wrote a blog that quite touched me. I think it applies to us here too.it starts "Having fibro and surviving day to day is...

poem

on the fibromyalgia forum charlii wrote a blog that quite touched me. I think it...