I was diagnosed with rheumatoid vasculitis back in October 2012 as a secondary condition to rheumatoid arthritis - I also suffer from fibromyalgia.
My rheumatologist is treating the ra with tocilizumab (roactmera) with the thinking that if he treats the ra, the rv will take care of itself. The other problem with the rv I have is that it affects my bowel and causes diverticular type problem.
So is my rheumatologist right to treat the rv in this manner, or should he be conferring with a vascular surgeon. I have had no tests for the rv, the diagnosis was done on visual inspection. Given that we know my bowel is affected, there have been no scans for this and no tests to check my lungs (I get very short of breath as well) or any other organs. I should point out that I am 44 years of age. Should I be pushing for anymore?
If both the ra and the rv were under control, I would of course not be pondering this. Any assistance/guidance you can give me is greatly appreciated.
Thanks for reading, Nina x