Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for March 2013

Change of date for West Country Vasculitis group lunch

The next West Country Vasculitis support group lunch will now be held on Thursday 25 April, 12.00 noon at The Mill on the Exe in Exeter. Could you let me know...

The next West Country Vasculitis support group lunch will now be held on Thursda...

DevonLottie

•11 years ago

1 Reply

Vasculitis on the radio

http://www.bbc.co.uk/programmes/p015lwtj About 1 hour and 9 minutes in. Enjoy...

http://www.bbc.co.uk/programmes/p015lwtj About 1 hour and 9 minutes in. Enjo...

Wellsie

•11 years ago

4 Replies

Irritable Bladder on Methotrexate

I have TAK/GCA and take 25 mg per week methotrexate and 20 mg Prednislone. I am constantly having symptoms of cystitis but there is no infection present from...

I have TAK/GCA and take 25 mg per week methotrexate and 20 mg Prednislone. I am ...

Coffeebix

•11 years ago

5 Replies

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Tummy query!

Stomach query. Just looking for a bit of advice. I'm on 25mg of prednisone and have just started my suppressant treatment. I've also developed cushings...

Stomach query. Just looking for a bit of advice. I'm on 25mg of prednisone an...

MsAscerbic

•11 years ago

2 Replies

rituximab again

further to my earlier question on rituximab,does anyone know if it is possible to ask your local health authority or hospital,what there rules are for giving...

further to my earlier question on rituximab,does anyone know if it is possible t...

quinnster

•11 years ago

5 Replies

Methotrexate what can I expect

Difficulty coming down off prednisolone so rheumy putting me on methotrexate ,read all the info but really I need some real life answers of what to expect when...

Difficulty coming down off prednisolone so rheumy putting me on methotrexate ,re...

Voutton

•11 years ago

15 Replies

rituximab

can i ask what the timespan people round the country are given this drug seems to differ quite a lot around the country are you given it only when you flare?...

can i ask what the timespan people round the country are given this drug seems ...

quinnster

•11 years ago

10 Replies

Pillow spray; seems to be making a difference

My Mothering Sunday present was a herbal pillow spray from thisworks.com. It's called 'deep sleep pillow spray' and after a week I think it is making a...

My Mothering Sunday present was a herbal pillow spray from thisworks.com. It's c...

BronteM

•11 years ago

5 Replies

Vasculitis Awareness: spreading the word

I have been asked to appear on the mid-morning Radio show at Radio Hereford and Worcester this Thursday between 10:00 and 10:30. I will be talking about my...

I have been asked to appear on the mid-morning Radio show at Radio Hereford and ...

Wellsie

•11 years ago

5 Replies

biopsy tomorrow

Feeling pretty jittery today re tomorrow's biopsy! I survived the first one, albeit coming round rather bruised and battered, so why I'm getting wound up about...

Feeling pretty jittery today re tomorrow's biopsy! I survived the first one, alb...

suffolkgirl

•11 years ago

4 Replies

Wolf Run sponsorship

A good friend of mine has kindly arranged for Vasculitis to be listed as a supporting charity for this year's series of Wolf Runs...

A good friend of mine has kindly arranged for Vasculitis to be listed as a suppo...

Wellsie

•11 years ago

1 Reply

numbness in arms

anyone have this problem,been having it for a while have had nerve conduction studies done a while back and they were ok,consultant thought it may be the way...

anyone have this problem,been having it for a while have had nerve conduction s...

quinnster

•11 years ago

10 Replies

Lincolnshire Support Group meeting - last call!

Anyone wanting to join us at the Thorald Arms in Harmston on March 30th please confirm your booking and send a cheque for £7 per person (made out to P M Todd),...

Anyone wanting to join us at the Thorald Arms in Harmston on March 30th please c...

Ayla

Volunteer•11 years ago

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Fancy doing something great with your mobile phone? Join Donate Mobile and turn your talking into giving to Vasculitis UK!

It’s simple. Donate Mobile is a complete mobile phone service that lets you give 10% of your mobile bill to Vasculitis UK – at no extra cost to you. This is...

It’s simple. Donate Mobile is a complete mobile phone service that lets you give...

John_Mills

Volunteer•11 years ago

Be the first to reply

An Inspirational Story...

I met a lovely lady today who was diagnosed with Vasculitis (WG GPA) 40 years ago this year. She has had 2 children since she was diagnosed, she is going for a...

I met a lovely lady today who was diagnosed with Vasculitis (WG GPA) 40 years ag...

John_Mills

Volunteer•11 years ago

2 Replies

New Vasculitis Informal Support Group planned for Slough/Reading/Southampton/Portsmouth/Guildford area

Please leave a comment below or send a private message if you would be interested in joining this new Vasculitis Support Group. It is the intention that...

Please leave a comment below or send a private message if you would be intereste...

John_Mills

Volunteer•11 years ago

3 Replies

MPA and peripheral neuropathy

Hi recently diagnosed with MPA after a very convoluted illness. Being treated so far so good, fingers Xd but have peripheral neuropathy in both feet up right...

Hi recently diagnosed with MPA after a very convoluted illness. Being treated so...

cambs13

•11 years ago

13 Replies

nose like mine

I've just caught the ast few minutes of a "flog it" on bbc2 from 2009. A lady called Evelyn was on and it looked like she had a nose like mine, saddle nose....

I've just caught the ast few minutes of a "flog it" on bbc2 from 2009. A lady c...

hamble99b

Volunteer•11 years ago

1 Reply

Walk the Worcestershire Way

I now have full detailed OS maps for the walk for those who want a copy courtesy of Worcestershire county council. Let me know if you would like a copy, or...

I now have full detailed OS maps for the walk for those who want a copy courtesy...

Wellsie

•11 years ago

5 Replies

I have had Vasculitus for around 5 weeks now - my legs are covered!

The doctors have been seeing me on a weekly basis at the hospital for the finally diagnosed 'Vasculitus'. They are unaware of what type I have and are confused...

The doctors have been seeing me on a weekly basis at the hospital for the finall...

MissGill

•11 years ago

7 Replies

Benefits and Work March 2013 newsletter

PIP ENHANCED MOBILITY According to disabled people’s organisations who were at a meeting with Esther McVey on 28 February, the minister was very clear that...

PIP ENHANCED MOBILITY According to disabled people’s organisations who were at ...

John_Mills

Volunteer•11 years ago

1 Reply

Has anyone been able to use their critical illness cover on mortgage since being diagnosed?

Good afternoon my partner was diagnosed with CSS about 7 months ago and has also been made redundant from his job during this time. We have always paid a...

Good afternoon my partner was diagnosed with CSS about 7 months ago and has also...

eognij

•11 years ago

2 Replies

I have just been diagnosed with Vasculitis WG and feeling very confused and would appreciate any advice from anyone who can help?

Hi i am Richard aged 39 living in Worthing. After a positive C-ANCA and PR3 blood test i was referred to Sussex Kidney Unit, my symptoms over recent months...

Hi i am Richard aged 39 living in Worthing. After a positive C-ANCA and PR3 bloo...

richardremorino

•11 years ago

13 Replies

MPA

I saw the Dr at the hospital and asked which type I'd got, he couldn't say for definite but they were thinking it was MPA. I've had strange sensations in my...

I saw the Dr at the hospital and asked which type I'd got, he couldn't say for d...

kate48

•11 years ago

22 Replies

Any Takers?!

Found whilst trawling the Internet: Churg Strauss Syndrome amazon.co.uk/churg+strauss+syndrome 1,908 reviews for amazon.co.uk LOW PRICES ON CHURG...

Found whilst trawling the Internet: Churg Strauss Syndrome amazon.co.uk/chur...

HiveMind

•11 years ago

4 Replies

If anyone has NONE ANCA Vasculitis and has been given RITUXIMAB, can you please contact me as soon as possible please.

As I would like to know of your personal experience of Rituximab for the NICE Submission. john.mills@vasculitis.co.uk or private message me. thank you John

As I would like to know of your personal experience of Rituximab for the NICE Su...

John_Mills

Volunteer•11 years ago

1 Reply

bedroom tax latest

Mr Duncan Smith ... also said he would advise local authorities that discretionary support should remain in place for other "priority groups" such as...

Mr Duncan Smith ... also said he would advise local authorities that discretio...

hamble99b

Volunteer•11 years ago

5 Replies

NHS 111

Hi All When ordering my repeat prescription yesterday I saw on my Doctors web site that the NHS has an NHS111 to use if you don't need 999 I didn't know...

Hi All When ordering my repeat prescription yesterday I saw on my Doctors web...

LynneJ

Vasculitis UK•11 years ago

6 Replies

West Country Vasculitis Support Group Lunch

The next lunch for the West Country Vasculitis Group will be held at the Mill on the Exe in Exeter on Thursday 18 April starting at 12.00 noon. If you would...

The next lunch for the West Country Vasculitis Group will be held at the Mill on...

DevonLottie

•11 years ago

4 Replies

meeting at the royal

I had to miss this today as I still have this awful virus. I'd be grateful for any info people could share. thank you, sandra.

I had to miss this today as I still have this awful virus. I'd be grateful for a...

hamble99b

Volunteer•11 years ago

1 Reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for March 2013

Change of date for West Country Vasculitis group lunch

Vasculitis on the radio

Irritable Bladder on Methotrexate

Tummy query!

rituximab again

Methotrexate what can I expect

rituximab

Pillow spray; seems to be making a difference

Vasculitis Awareness: spreading the word

biopsy tomorrow

Wolf Run sponsorship

numbness in arms

Lincolnshire Support Group meeting - last call!

Fancy doing something great with your mobile phone? Join Donate Mobile and turn your talking into giving to Vasculitis UK!

An Inspirational Story...

New Vasculitis Informal Support Group planned for Slough/Reading/Southampton/Portsmouth/Guildford area

MPA and peripheral neuropathy

nose like mine

Walk the Worcestershire Way

I have had Vasculitus for around 5 weeks now - my legs are covered!

Benefits and Work March 2013 newsletter

Has anyone been able to use their critical illness cover on mortgage since being diagnosed?

I have just been diagnosed with Vasculitis WG and feeling very confused and would appreciate any advice from anyone who can help?

MPA

Any Takers?!

If anyone has NONE ANCA Vasculitis and has been given RITUXIMAB, can you please contact me as soon as possible please.

bedroom tax latest

NHS 111

West Country Vasculitis Support Group Lunch

meeting at the royal

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